Re: sural biopsy

[Guest guest]

Murilo,

I had this biopsy done years ago. Had no problems with it and recovery

afterwards. It is a diagnostic tool. The results were 'normal'. I wasn't aware

that I had any 'treatment' as a direct result, but the following year I began

taking prescribed Potassium and Ritalin.

Gretchen

[Guest guest]

Hello Murilo,

For me the biopsy left me with permanent numbness at the incision

site and part of the ankle and foot. I was not informed before the

procedure that this would occur. I cannot stand to have that area touched.

It itches at times and well when you cannot feel that area scratching only

increases the uncomfortable sensation. I have pain in the area too. My biopsy

was done three years ago. To me the procedure was senseless.

Teri

[Guest guest]

Hey Gretchen,

Thanks very much the answer and thanks Teri too. You help me so much.

Do you have a diagnostic CMT test ?

I have a lot of CMT symptoms but not confirmed by test.

Don't you think that sural biopsy can help to confirm or not CMT, and

helps if find other things like lack of some microorganism? In this form I might

use some precise medicine?

Thanks a lot,

Murilo

[Guest guest]

I had a sural nerve biopsy in 2002 at Mayo Clinic in Rochester, MN. I guess I

don't consider it useless because it did help with diagnosis, but it was too bad

that it had to be done. I, too have numbness in the ankle and foot, but I did

know that would probably happen. However, the numbness has improved over time

and it is not near as noticeable as it was early on. I also used to have

" sparks " up my leg if I were to touch it or accidentally run into something.

That has totally disappeared. K.

[Guest guest]

Hi Murilio,

In my experience, since the biopsy was 'normal' that ruled out other

diseases. The following year I had the first of 3 EMG/NCV tests. I only

know the results of the the last one. (I was much younger - a teen -

for the first 2). The latter EMG/NVC showed normal readings, but noted

some reinnervation which suggests an axonal form such as Type 2.

Originally, an othopedist diagnosed me with CMT from watching me walk

up and down the hallways of his office. I have not had DNA testing.

Gretchen

[Guest guest]

Murilo,

I did not get a diagnosis from the biopsy. The results are foreign to me!! Lots

of words that I do not understand. All the test concluded for my neurologist at

the time was that I did have neuropathy. Which was suspected.

I got my diagnosis through Athena Diagnostics. As far as treatment for the CMT

all that was done was Neurotin 800mg 3x's a day. Which I stopped taking since

it felt that it contributed to the fatigue. Before I had the DNA test I had 5

EMG's done which showed slow reaction and some areas non at all.

Teri