Guest guest Posted April 26, 2008 Report Share Posted April 26, 2008 Hi, I am 31 years old and just been diagnosed 6 months ago with CMT 1A There are no other people in my family with this disease and down both family lines there is no history that we can find. I have two daughters 6 and 2 1/2 at this moment I have decided against getting them tested for the disease as I really didn't get any information from my neurologist as to what can be done to help manage this disease.I found him not very helpful at all. Can someone please help with info on what medication is helping them and what I should do. I have put myself onto taking 1500mg a day of Vitamin C this has made a big difference. I look forward to your response. Thanks Quote Link to comment Share on other sites More sharing options...
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