Re: Neighbor with a big mouth

[Guest guest]

Hi ,

Here's a few links that may be of interest to you, your neighbor and

Adam.

http://www.genetics.gsk.com/kids/index_kids.htm

http://www.kidsturncentral.com/links/geneticslinks.htm

http://www.uga.edu/srel/kidsdoscience/kidsdoscience-genetics.htm

http://genetics-education-

partnership.mbt.washington.edu/cool/coolgrade.html

Gretchen

>

> I do not want a religious debate so if you feel the same as this

lady just don't respond.

>

> So last night I get a call from one of Adam's friends mom's She

just loves Adam and thinks he is wonderful, smart, cute , nice ,

etc.... She keeps telling me Adam is looking for God.

>

> She turned on the bible Cd's and Adam loved them. Then she tells me

she is (was) dyslexic and the bible tapes taught her how to read.

Then she tells me that Satan has tried to cripple Adam (CMT) but God

will heal him.

>

> I know she meant well but how to I tell her that having CMT has

nothing to do with anything evil. That it is not sinister on any

level. Just genetics.

>

> It's not a problem for me to never bring it up again but what if

she is telling Adam that his CMT is from Satan? I know it's lower

level thinking on her part but maybe I should say something? Why

would some one even say this stuff to me? I feel bad enough as it is.

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[Guest guest]

Thank you Geri,

I thought I was the only one that had this stuff happen to them.

I have had people tell me I have some thing to learn and this is why I have CMT.

Sometimes they put a spin on it and I have something to teach others.

Of course we all live and learn but please.... It has also been indicated that I

don't have enough faith. I sure don't want all this stuff said to Adam. He has

enough to think about.

I am going to have a talk with him as soon as he sits down for 5 minutes.

[Guest guest]

Thank you Gretchen

[Guest guest]

Ouch! your neighbor is soooooo wrong! There is verses in the bible to prove

it.......I got sick of people telling me I was disabled because I had not enough

faith..Sorry but I don't think she is good for your son!.I grew up thinking I

wasn't good enough to get healed( not good)..I am a Christian by the way...I

have had all kinds telling me why I haven't been healed or why I'm like

this...How about this one..My mother looked at a disabled person when she was PG

and I was marked!

In the Bible lots of people were healed ALSO many were not........

I think with some people..when God was passing out brains they thought HE said

pains and they hid behind the door..........

Just my .2

Blessings

Geri

[Guest guest]

I think your best strategy is to explain to your son that some people have

strange ideas about disease, and not to take her views seriously. It is not

likely that a debate with your neighbor is going to change her way of

thinking.

[Guest guest]

,

I am very religious and Bible believing. I feel this lady is really bizzare. I

don't know where in the world she got her weird ideas! I also feel like it's

crossing boundaries to play Bible CDs to your son without asking you.

Friendship should be relaxed and fun for children, not a missionary project!

I say follow your instincts as a mother. No matter what someone says on the

surface, if there are red flags going up for you about the person's influence in

your child's life--follow your instincts! I would never try to talk anyone OUT

of seeking faith in their life, however this woman is not someone to trust in

that department if she believes what she says she does about the CMT.

For us, our experience with a belief in God has helped my kids know that they

are perfect just the way they are and that they have a source of comfort to turn

to when they have problems. Best wishes for you and your son!

Jen

[Guest guest]

,

I have often been amazed over the years at what people, even total stranger say

to me regarding the CMT.  I could not EVER think of saying something to a total

stranger regarding something they obviously have wrong with them. 

 

I guess if we are ALL here to learn something or teach something maybe your job

is to teach her to keep he stupid ideas to herself!   Only kidding!  I am sure

it would be time wasted. 

 

I have a relative with CMT that had someone walk by her and say " I hope

whatever is wrong there, it gets better soon. "     I always say I am glad it is

my legs and arms that don't work right instead of my brain!

 

Love yor baby and let him know he is a great person and that these people have a

bigger handicap than we do.

 

Cyndi

[Guest guest]

Hi ,

I think you are right about this one. I can't imagine anything I have to say

changing her mind. It kind of reminds me of the Salem Witch trials. Just mind

blowing stupidity.

[Guest guest]

Yes Jen EXACTLLY!

I don't want Adam turned off by religion if he can find any comfort in it.

Something good will come out of this, I am just not sure what it will be.

[Guest guest]

Hi Cyndi,

Adam just wants to be " normal " you know. He doesn't want these people all over

him about his disability. Maybe to shut them up he needs to tell them it is

personal and he doesn't want to talk about it?

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[Guest guest]

Today Adam had a new pair of AFOs casted. Adam told the orthotist about the

curse and being healed neighbor. The orthotist handled it pretty well for being

caught off guard. He told Adam that even in this day and age it is common for

some people to remain uneducated and believe in curses. He told Adam the women

sounded a bit off her rocker. Then of course Adam went in to his theory that she

did to much acid and fried the logical part of her brain.

[Guest guest]

Adam sounds like an awesome kid! I bet you're proud of him. How

awesome that you have a relationship with him that he will talk to you

when stuff is bothering him! That's big for a teenager! I hope as my

kids get older they will come to me also. Thanks for sharing this with

us!

Jen

[Guest guest]

Hi Jen

Adam is one hard nut to crack. He talks when he wants other than that I just

have to wait until he is ready. On the neighbor subject he didn't want to stop

talking. Very unusual for him. He was really bothered by the neighbor.

, , Spencer and Jase never stop coming to me with their problems.

Adam is very quiet. He tries to be so tough. I sure don't want this neighbor to

hold him back socially. I am now wondering if he will feel comfortable around

new families. He seems to be a bit more self conscious this week.