Genetic Studies of CMT

[Guest guest]

Hello everyone! First I wanted to introduce myself and thank the

moderator for letting me join your group. My name is Fiorella and I

am the Clinical Project manager for genetic studies on CMT at the

University of Miami. I wanted to let you know about our current

genetic study. If you are interested in participating or finding

out more information, please contact me at mihgCMT(at)med.miami.edu

To maintain your confidentiality, please do not post messages to me

on this board. Below is more information for those interested.

Thank You!!

Miami Institute for Human Genomics

Genetic Studies of CMT

We are looking for FAMILIES and INDIVIDUALS who would like to

participate in Charcot-Marie-Tooth (CMT) research. The purpose of

the research study is to identify genetic factors that contribute to

Charcot-Marie-Tooth (CMT) disease.

Any individual with a Charcot-Marie-Tooth (CMT) diagnosis and, if

willing, selected family members of the individual; can participate.

Participation is free of charge. Travel to the University of Miami

is not required. Trained staff from our team will perform a family

and medical history interview, focused neurological exam, review of

your medical records related to CMT, and a small blood sample (about

2 tablespoons). We maintain the highest standards of confidentiality

for all families.

If you are interested in participating, please contact the CMT study

coordinators at 1-877-6UM-MIHG (877-686-6444) (toll free). You may

also email us at mihgCMT(AT)med.miami.edu

Please visit our web site at www.mihg.org for more information.