Founder’s Note: How works

[Guest guest]

Hi Gretchen,

Thanks for reminding me about the group - I am still adjusting to the

concept of having CMT, and haven't been " info-hunting " for a few

months. Thanks for helping me.

Sincerely,

Steve Freeman

[Guest guest]

Founder's Note: How works

This is for those of you who are new to and/or don't understand

how works. We are a global, email discussion network spanning over 2,000

members in 30+ countries connecting daily with each other on CMT and related

issues.

We use English as our language of communication. Please don't worry about

spelling - each post is reviewed and spelling can be fixed.

For your safety, please do not divulge personal information such as your phone

number, address or social security number, unless you want it seen by the

hundreds of others in our community and the potential thousands who can search

and harvest this information.

Our postings contain both personal messages from members as

well as clips from various medical sources about new developments

related to CMT, peripheral neuropathy, neuromuscular disease, pain

and disability issues. The value of this is that it keeps everyone up

on current research, gives hope for the future, and informs members of new

clinical trials for participation. Our personal, positive experience living with

CMT is of primary interest.

You may access our message Archives, Files, and Photos at any time.

Just log in to our main page at http://hope.info with your

ID and password. You may make posts at any time, 24 hours a day, and

7 days a week. All posts are moderated and reviewed at least

twice a day, and then sent to our entire community. For more about

our community read " About " in our Files.

Please introduce yourself to us when you feel comfortable.