Guest guest Posted July 12, 2008 Report Share Posted July 12, 2008 Hi, My name is Lyn and my husband Graham suffers from CMT type 2, we live in Cromer Norfolk England, we have 2 daughters, 3 grandchildren. Graham was offered steroid tablets but due to having MRSA has decided not to go that way, also because there is a 1in20 chance that he could get blood clots if he has immune globlin transfusions, has also decided against this. When we saw the neurologist last week he told us that even if Graham did have these two treatments it would only improve things by 5%, therefore he is learning to live with it. We are now going to claim Disability Living Allowance with the help from the neurologist who is going to write a letter on Grahams behalf. Lyn Quote Link to comment Share on other sites More sharing options...
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