Disguising the truth does nothing for CMT

[Guest guest]

I have been thinking about this. I know at times we have all told

lies about why we walk differently, why we tripped, are we drunk?

When in middle school I remember I would tell curious ones I had

sprained my ankle if I was extremely tired and dragging around.

However, once I got to the point of real acceptance and knew who I

was, I could no longer lie, and would tell people I have CMT and

explain it as ataxia (a balance and coordination problem ) This

worked. (interestingly enough, I was asked about this more when

living in Texas and Oklahoma than anywhere else I lived - and those

were strangers) My good friends, and friends for years, never asked

at all.

Now, if someone asks me anything, oh boy do they get a long, true

about CMT!!! It is rare, however, that anyone asks, though.

Getting to the point, if we keep disguising the truth, this does

nothing for CMT awareness. But I do understand some people are

uncomfortable with acceptance and how to respond to inquiries.

Would this topic of acceptance, self worth, boundaries and explaining

CMT to others be good to have at a Conference?

Gretchen