grandson

[Guest guest]

> Prenatally his nutrition came from the placenta, and after birth

> his mother breast fed him. How could there be any digestive

> problems in this environment?

As I understand it (and I'm certainly not a physician, so take it for

what it's worth!), it's always possible that something goes wrong in

a child's development, even if the mother does everything right. Like

with blindness. We know a child can become blind because of disease

or trauma or exposure to something they shouldn't be exposed to. But

some people are just born blind. We don't know what causes it, and it

can't always be helped.

I would think it's the same way with digestive problems. There may be

in inherited condition that makes the child's digestion not work

right, or perhaps the mother was exposed to something that then

exposed the child at a vulnerable stage. We'll probably never know.

And I guess, for a particular child, it doesn't necessarily matter.

If they're having digestive problems, you treat them, no matter where

they came from.

Regards,

phine

[Guest guest]

My son also had issues with eye contact at birth and so you ask how

could there be digestive problems-- could his mother have been

mercury or heavy metal toxic--either from environment exposures (the

cdc study recently said 1 in 12 women had enough mercury to cause

fetal harm (I think it was 1 in 12... not sure of the exact number

but you get my point)). If she has any silvery looking fillings--

those are 50% mercury... Also, my son began his vaccination schedule

at birth and that's how I attribute the digestive damage. Also, if

the mother was herself deficient in certain vitamins and nutrients,

the baby could also be deficient as well. Over on the autism biomed

discussion board a few months ago there was a study about how

maternal cobalamin (vitamin b12) deficiency led to the same

deficiency in the babies/toddlers and their resulting neurological

problems.

Hopefully DanaAtty will see your post and respond to you because you

really need to check out her website... she has several children on

the autism spectrum and one of them was " born " autistic-- classic

Kanner's autism. She has done interventions among which enzymes and

chelating really helped him and he no longer meets criteria

as " autistic " , although he still has some areas that are not yet up

to peer development-- but still pretty amazing progress!

Also, you have to think about it this way-- the digestive system is

also controlled neurologically and so how could it possibly be exempt

from problems when you are seeing problems in other areas that are

controlled neurologically, too? Just a different way to think about

it...

Good luck to you!

W

W

> Prenatally his nutrition came from the placenta, and after birth

his

> mother breast fed him. How could there be any digestive problems

in

> this environment?

[Guest guest]

Shasir-my son had the same situation you describes-marked gaze aversion and

people AVOIDANCE RIGHT FROM THE BEGINNING.. Sound sensitivity and other

signs visible from maybe age two months. Yet he has severe digestive

problems that have responed to vitamins, dietary changes, enzymes, etc.

Most of his GI symptoms appeared immediately following his first DPT shot.

Also, if there was a metabolic problem from birth on, enzymes may help

correct it. I don't see any problem with trying-either it will help or

not:)

grandson

> I am new to the group. I have been reading 's book, " Enzymes

> for Autism " and am finding it very logical and sensible. I am

> puzzled by this thought:

> My grandson is 9 yrs old. He is low functioning, without

> speech, does not transition well, has dark circles under his eyes,

> etc. However he did not regress into autism, but I am convinced he

> was born this way. There were signs at 2 and 3 wks of age, such as

> apparent fear when being handed from one person to another. There

> was NEVER eye contact, even as he grew closer to one year old.

> Prenatally his nutrition came from the placenta, and after birth his

> mother breast fed him. How could there be any digestive problems in

> this environment?

>

>

>

>

>

>

[Guest guest]

> My grandson is 9 yrs old. He is low functioning, without

> speech, does not transition well, has dark circles under his eyes,

> etc.

Except for the transition issue, this sounds like my son about 4 years

ago.

However he did not regress into autism, but I am convinced he

> was born this way. There were signs at 2 and 3 wks of age, such as

> apparent fear when being handed from one person to another. There

> was NEVER eye contact, even as he grew closer to one year old.

My son has a Kanner dx, autistic from birth, born this way, never

regressed. I was told that he was one of the " rare genetic cases " .

My son was actually highly metal toxic. Now he no longer qualifies as

autistic. You can read his story here, if you want

http://www.danasview.net/myson.htm

> Prenatally his nutrition came from the placenta, and after birth his

> mother breast fed him. How could there be any digestive problems in

> this environment?

My son was metal toxic from my amalgams [dental fillings] and from the

HepB vaccination he received at birth. Other kids are toxic from

RhoGam and/or flu shots given to the mother. Some are toxic from the

antimony used as flame retardant in the crib/playpen mattress and/or

pajamas. There are other causes also.

Enzymes were a step in recovering my son, along with a few other

things, and chelation

http://www.danasview.net/chelate.htm

My son is now age 7-1/2 and he no longer qualifies as autistic, altho

he is still behind in language development.

Good luck.

Dana

[Guest guest]

> Thank You for your emails but so many confusing and conflicting

opinions. Some say get off dairy and whet and other say use so rice.

What can this baby have?

The difficult part about this is that each kid is different. For my

son, he tolerated basically no foods, but HNI enzymes allowed him to

eat foods. Altho not ALL foods. And the foods he could not eat,

were not the *usual* foods that autistic kids can't eat.

Best thing to do is keep a journal. List what he eats, and any bms,

physical or behavioral reactions, etc. Rotating foods will help you

determine which days are better or worse.

Using enzymes *should* reduce the number of foods he might have

problems with.

Good luck.

Dana

[Guest guest]

Hi everyone,

I have a question..my stepdaughter brought her son over yesterday and said his

ankles are turning down. He has very flat feet also. I'm sure he has CMT.

She said they bought him new sandals over the weekend and couldn't walk in them.

Said he kept fallig down because he couldn't pick his feet up high enough. He is

almost 10 years old.My husband has CMT and we are sure she does too. She is in

denial and about her son too.

I've tried not to say too much but yesterday I said " you need to take him to a

DR that specilizes in CMT

so he gets the correct treatment. "

She did finally agreed with me. She also peceeded to tell us she didn't have it

and her dad and I both said " yes you do. " I think it finlly sunk in at least for

the moment but tomorrow she may be in denial again.

I have had information sent to her several times but I am sure she doesn't read

it. My husband has aunts, sisters, cousins (many) with it.

But to my question.. our grandson had white spots all over his legs. I've never

seen anything like it before. I didn't look close but it looked like it was

under his skin, all over his legs. Have any of you seen anything like this

before ? Is it CMT related ? His legs show no sign of calf muscles. Just

straight up and down getting smaller as they go down.

Do you think his CMT is getting worse ? I'm hoping she takes him to a

DR soon. It seems to me like he is falling more than he used to.

Thanks for all the info I am getting from all of you. My husband

doesn't get on the computer so I relay what I read to him.

[Guest guest]

His symptoms sound alarming to me.  Sounds like CMT and very much like he needs

to get the proper care ASAP.  He is growing and changing.  Proper treatment now

could make a world of difference to his life later. 

It sounds like your loving persistance is paying off.  It's probably very

difficult for her emotionally to accept her own condition and many times more

difficult to accept that she passed it to her son.  There are many on this site

who could help her work through those feelings, when she's ready.

As for the white spots, they may be due to poor circulation in his legs.  My

hands and lower legs get splotchy with white due to the circulation problems. 

But definitely something to check out with the doctor.

Does she need help finding a doctor?  Many here can help. 

[Guest guest]

My daughter complains that she turns purple. I don't see the hurry to take him

to the doctor. Unless it is to get a note for P.E. or some AFOs.

[Guest guest]

Yes, your grandson should get a proper diagnosis, as early

intervention in CMT can help greatly. Two good places to start would

be your local MDA clinic http://mdausa.org (type in your zip code to

find it) and also Shriner's http://www.shrinershq.org/

I was 10 when I was diagnosed, 3 years prior to that I was falling on

the playground and wearing orthopedic shoes.

Gretchen

>

> Hi everyone,

>

> I have a question..my stepdaughter brought her son over yesterday

and said his ankles are turning down. He has very flat feet also. I'm

sure he has CMT.

>

> She said they bought him new sandals over the weekend and couldn't

walk in them. Said he kept fallig down because he couldn't pick his

feet up high enough. He is almost 10 years old.My husband has CMT and

we are sure she does too. She is in denial and about her son too.

>

> I've tried not to say too much but yesterday I said " you need to

take him to a DR that specilizes in CMT

> so he gets the correct treatment. "

>

> She did finally agreed with me. She also peceeded to tell us she

didn't have it and her dad and I both said " yes you do. " I think it

finlly sunk in at least for the moment but tomorrow she may be in

denial again.

>

> I have had information sent to her several times but I am sure she

doesn't read it. My husband has aunts, sisters, cousins (many) with

it.

>

> But to my question.. our grandson had white spots all over his

legs. I've never seen anything like it before. I didn't look close

but it looked like it was under his skin, all over his legs. Have any

of you seen anything like this before ? Is it CMT related ? His legs

show no sign of calf muscles. Just straight up and down getting

smaller as they go down.

>

> Do you think his CMT is getting worse ? I'm hoping she takes him to

a

> DR soon. It seems to me like he is falling more than he used to.

> Thanks for all the info I am getting from all of you. My husband

> doesn't get on the computer so I relay what I read to him.

>

[Guest guest]

My daughter has CMT too. We just saw her ped. and we are on the debate

about AFOs. she has okay calf muscles she just has severe

pronation/flatfeet. no foot drop yet. I am going back to her

orthopedist person to discuss it more. my concern is deformity

prevention versus muscle weakness.

anyways good luck

Amelia