new to group -- important question for you all

[Guest guest]

Hello everyone - my name is , and I was diagnosed at 17, now

almost 32. I get around pretty well with Mitch's fancy Kevlar braces

(Las Vegas Ortho). My symptoms have progressed to my hands and above

my knees, but I'm very strong in all other ways and manage to live a

fairly normal life with my darling husband and dog.

Like most of you, I've learned how to manage this mostly on my own

with help from various sources. But something strange has happened

this past week, and I don't know if it is CMT related, or something

totally different.

Over the past several days, I've experienced marked numbness in ONLY

MY RIGHT SIDE, mostly topical, in large patches from my toes up to the

top of my head. It is more numb the further out (ie my foot is

asleep), but I can also feel in in my tongue, mid back... There is no

pain, no needles, nothing but basic numbness. It feels a lot like

when your foot falls asleep (but before the tingling of " waking up " )

combined with that strange feeling of topical anesthia you get at the

dentist. I haven't done anything different in terms of shoes, braces,

exercise, etc, nor strained my back. Nothing has changed, except for

these very un-CMT-like symptoms (at least in my experience).

I have an appointment with a neurologist in two weeks, but I'm sure

he'll know even less than I do about this. So I wanted to check in

with all of you to see if you've ever experienced anything similiar or

if there is anything you can tell me before my appointment.

Thank you so much, and thank you all for creating and maintaining this

forum. It is such a blessing.

Take care,

Los Angeles, CA