Re: Vitamin C and genetic testing

[Guest guest]

First of all- Thanks for all of the good Vitamin C

info!!!! Also, a little helpful hint from me...

I have pretty bad neuropathic pain for which I take a

drug called Tramadol. I detest taking drugs, but my

pain keeps getting more and more intense and I was

having to take more drugs...yuck.

Anyway...my new doctor told me to try CalMax. It is a

powdered form of Calcium and Magnesium, but also

contains 500mg of Ascorbic acid. You just add a

teaspoon to a glass, add a little hot water, and then

either juice of your choice or hot tea, etc. You can

take it 3X/day. The magnesium is suppose to be a pain

reliever. Apparently, many people are low in

magnesium.

I have started taking it, and have noticed that I am

not having to take 2 of my pain killers each

day....GREAT NEWS!

You can get this at CVS, but you really have to look

hard for it. It is in the Dietary Supplement section.

Might be of help to some of you too!

As for genetic testing....

Dawn- You can request genetic testing through your

doctor when you visit him/her in July. They will refer

you to a company called Athena, who has the patent on

the CMT diagnostic tests.

These tests are expensive and not everyone does them.

Depending upon what state you live it, Athena offers a

" Patient Advocacy Program " where they will file on

your insurance, but you will only pay for 20% of the

total cost. This could still be quite a bit of money

as there are several different tests for the different

types of CMT.

As far as I know, MDA does not pay or help pay for

genetic testing. They will help you with the cost of

braces if you have a prescription for them from your

doctor.

Hope this makes sense. It is sometimes overwhelming at

first, but it will all come together for you!

Take care and I hope that your doctor's appt. goes

really well!

Amy Hodge