Re: looking for a CMT specialist

[Guest guest]

Hi Ann,

No, it's not necessary to leave your state.

For Syracuse try:

Carl J Crosley, MD Neurology

SUNY Upstate Medical University Syracuse, NY 315-464-5357

Francine Vriesendorp, MD Neurology University Hospital Syracuse, NY

877-464-5540

Don't know how much of a stretch Rochester is from you, but maybe try:

L Barbano, MD, PhD Neurology

University of Rochester Medical Center Rochester, NY 585-341-7500

P McQuillen, MD, FAAN Neurology

University of Rochester Medical Center Rochester, NY 585-341-7500

Gretchen

[Guest guest]

Gretchen,

Thanks for all your help.

I already went to SUNY in Syracuse NY where Dr. Crosley practices. He only sees

children. I saw another neurologist in the group who said she was not sure if I

had CMT or not. I would prefer not to have the diagnosis, but already being

told I aready had it from another practicing neurologist in town makes me

wonder, do I have it, or do I not? I just would like to get a straight answer.

I am not sure if the Dr. I saw specializes in CMT or not.

Ann