Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 We have had a few new parents of CMT kids join the last month. My heart really goes out to you. I have been there done that 3 times. It will get easier. Something I think of a lot is how strong my kids are on the inside. Not life as I planned but a good life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 Thanks . My husband and I did some deep grieving when we first got the diagnosis, but I think we're in more of a problem solving mode right now. It's hard, but it really helps to have a group like this for support and so much info. Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2008 Report Share Posted October 22, 2008 In a message dated 10/22/2008 9:05:05 A.M. Pacific Daylight Time, slloken@... writes: <It's hard, but it really helps to have a group like this for support and so much info.> It really helped me too. Just having something in common with people made me feel like my life was normal. Normal for a family with CMT it in anyway. I took forever to grieve. Maybe because I had CMT X 3. At the time I felt horrible for not dealing with it like everyone else and just moving on. Quote Link to comment Share on other sites More sharing options...
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