Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Kote, There are currently no 100% effective treatments for CMT in the US. However, many of us have been trying different aspects of symptom management. Ascorbic Acid (Vitamin C) <also that is in clinical trials worldwide>, Vitamin E, other supplements such as Creatine, Curcumin and Citicoline. The first human trials of NT-3 proved good results for CMT 1A but research seems to have stopped on that. Many of us also exercise or receive physical therapy, get enough rest, keep stress low, and eat a heart healty diet, as recommended by Dr. Greg at UW. If you have difficulty with movement, spasicity, tremors, pain, etc., there are many different types of muscle relaxants and medications too. Oops, I guess I should have mentioned that there IS a 100% way to stop CMT - that is, for future generations. That is Pre-Implantation Genetic Diagnosis. More about all of this is in our Files section. Gretchen Quote Link to comment Share on other sites More sharing options...
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