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Re: CMT Conferences

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Hi

Thanks for getting back to me. Are you on the East Coast? Most of the past

Patient/Family/Physician Conferences have been held on the East Coast for the

past 10 years. This upcoming PFP Conference on the West Coast is the first to

be held in as many years.

At some point down the road, I'd love to host one in Boston. Scheduling one now

would be very premature. Our group has only had one meeting, and we are still

in our infancy. Once we've arrived at our full group potential, you can rest

assured that a PFP will be held in Boston. It's a wonderful city with cutting

edge medical professionals, and

hosting an event here would offer numerous benefits to attendees. Thanks for

your input.

I appreciate your support.

Mark

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Hi Mark -

was diagnosed about 5 1/2 years ago and I only found out about

this group a year or so ago. So I didn't really have a clue about the

conferences.

We actually lived in Nashua, NH 22 years ago and spent alot of

weekends in Boston. Beautiful city...lots to do.

We have lived in Florida for the past 20 years (me another 10 before

getting married) and are just north of Orlando by about 12 miles. In

another few years they are opening a cutting edge medical school and

research facilities here...maybe we can think about one that far into

the future at a much later time! LOL

Anyway - good luck at the conference. Talk soon.

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