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For our New Members: How works

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How works

This is for those of you who are new to and/or don't understand

how works. We are a community of over 2,000 members. We have a

global membership spanning 33 + countries. We are an email network to

connect with each other on CMT and disability related issues. We use

English as our language of communication. Please don't worry about

spelling - each post is reviewed and spelling can be fixed.

For your safety, please do not divulge personal information such as

your phone number, social security number or snail or email address in posts,

unless you want it seen by the hundreds of others in our community and the

potential thousands who can search and harvest this

information.

Our postings contain both personal messages from members as

well as clips from various medical sources about new developments

related to CMT, peripheral neuropathy, and pain issues. The value of

this is that it keeps everyone up on current research, gives hope for

the future, and informs of new clinical trials for participation.

You may access our message Archives, Files, Links and Photos at any

time. Just log in to our main page at http://hope.info with your

ID and password. You may make posts at any time, 24 hours a

day, and 7 days a week. All posts are moderated and reviewed at

least twice a day, and then sent to our entire community.

Please introduce yourself to us when you feel comfortable.

Gretchen ( Founder)

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