Re: CMT PATIENT FAMILY CONFERENCE - NOVEMBER 8, 2008 - PALO ALTO CALIFOR

[Guest guest]

Lynda and everyone,

I'll be there!

Gretchen

[Guest guest]

Hi everyone!

I want desperately to attend the conference, but cannot. I hope

someone takes great notes that they will be willing to share with

those of us unable to attend.

I will definitely be there in spirit, and will be anxious to hear

all about it!

[Guest guest]

You can rest assured that Ouelette (host/coordinator) will publish a

very detailed report in the CMTA newsletter for all to enjoy. It's nice that you

will be there in spirit and showing your support.

Mark

[Guest guest]

Hi Mark!

I am eager to read/hear/see all the details from the conference. I

hope you all travel safely and easily. I told about the

conference and his only suggestion was if there is another one to be

scheduled for next year - let's do it on the east coast.

Be well!

[Guest guest]

>

> Hi Mark!

>

> I am eager to read/hear/see all the details from the conference. I

> hope you all travel safely and easily. I told about the

> conference and his only suggestion was if there is another one to be

> scheduled for next year - let's do it on the east coast.

>

> Be well!

>

>

>

Hello

I'm curious, which are you referring to? I have more than a couple in my

CMTA

world...lol

Mark

[Guest guest]

hi Mark -

I am referring to my son . He's 15 and has a CMT variant

diagnosed by Athena as an unseen before mutation. His onset was early

(age 4) diagnosis was made at age 9.

[Guest guest]

Gretchen... This is awesome. We'll finally meet. Elliott, Ariel, and I

will be there as well.

Shula