CMT Work Disaster

[Guest guest]

Hello Group,

It has been a while since I have been on here.  I decided to take intermittent

leave from my job to see if anyone can help.  I was falling a lot at work, The

EEO/AA person at my job who told me he can't have me falling like I have that I

was a direct threat to myself and others.  When I asked what that means he said

he would have to see what he can do to accomadate me.  I told him my diagnosis

which I was told would be held in confidence however he sent me a letter with my

Diagnosis and Carbon Copied a lot of people.  I did not appreciate that and felt

it was a unlawful. 

I told him I do not want an accomadation, he said maybe I need a walker and I

told him repectively that he is not a doctor and should not give me a

recommendation like that.  He said he may have to send me to an independant

doctor.  I said would this independent doctor be a CMT specialist he said he

doesn't know but said he would get one.  I told him that I have seen them all

and I really got no where with that.  He then told me maybe I need to sit down

and someone can roll me around.  His off humor was not appreciated and I asked

if my job was at risk and he said well he can't have me falling.  I said I do my

job and do it well and he said he heard I was the best employee they had and

didn't feel that was the issue.  I said I do have pain and struggles but I just

have to work twice as hard because of the CMT.  He said " You don't know what

struggle is I am a black man living in a white world "  

I have an office job which I have done extremely well and never had any job I

couldn't master so there were no job I couldn't do yet they wanted to force an

accomdation.  I was told to get a recommendation from my doctor which I did

cooperate with and my doctor said I was under his care and no accomadation was

needed nor does he recommend specialists. 

I did research and found his way of handling this unlawful and unethical.  No

one should be forced to see independent doctors or forced to take an

accomadation when there was no work issues of getting work done.  I also think

him claiming I was a threat to myself and others to be ridiculous since I work

in an office and there are universal precautions in place.  I also don't like

anyone sharing my diagnosis with the world, not that I am ashamed of it but its

more private to me.

I have seen Neurologists who sent me to Physiatrist who send me to Physical

Therapists who send me to Aquatic therapy who sends me to Occupational Therapist

who sends me right back to a Neurologist.  I mention the word " CMT " and most do

not want to help.  I went to a Pain Managment Clinic and he said he would do

research and after 4 months he came back empty.  I hate the fact that I had to

take all this time away from work to get no where.

Andy