Re: Guidance on braces

[Guest guest]

,

The braces made in Las Vegas are called Helios, and you can search our

archived messages for all the discussions on them and AFOs, DAFOs and KAFOs.

There is also information in our Files and Links sections.

But before you go to far, I would suggest you contact a Certified

Othotist/Pedorthorist, have an evaluation, and let the Orthotist be

your guide as to your individual needs.

Gretchen

[Guest guest]

Hi

I have the Helios brace from Vegas and also live in Florida,if you live close

enough I'll be more than happy to show them to you.

Laine

[Guest guest]

Hi ,

I have got the Helios braces, made by Ortho Rehab in Las Vegas. They are great

for my balance and I can stand with them easily without holding onto something.

I use them indoors, mostly at my work since there are long straight corridors,

and the braces are perfect for that.Unfortunately, using the braces outdoors is

harder for me. They are rigid and it makes it hard to walk on uneven ground,

especially slopes.

I have removed the braces before going out so far, but I have lately had contact

with other CMTers on this list who think uneven ground is no problem with the

braces for them, so yesterday a just kept the braces on when I left my work.

There is a slope in front of the office building but I managed that, so I guess

I have become " better " now, than last time I tried.

Yes, you save a lot of energy by using the braces. Also my muscles feel stronger

now, so walking withut braces is easier too. Best is that you get a nice gait.

People who don't know about the braces say

things like: " I think you walk a lot straighter now! " Worst thing is the price.

They are very expensive, but you will not find a similar product elsewhere. It

is also very hard to find the perfect shoe... I use sneakers but I am in search

of something better.

Good luck,

Beata

[Guest guest]

Hallo, I have diagnosed with CMT this month, I am searching for the

braces that can support my leg. I have the weakness more on my right

leg. Since I noticed this forum most people live in The US, is there

any information where can I get this braces in Asia specifically in

the Philippines? Thanks before for any response.

Regards

Mirza

[Guest guest]

,

The helios braces cost a great deal and require you to be fitted in

Las Vegas. If time and money are a concern, then you can be fitted

with different braces locally. I have braces that were made for me

by Hangar orthotics. They took some getting used to, but the end

result is they work fine and I am able to walk and balance easily

now. Helios may be in my future as I think they may be better

overall but there are options.

BTW, I can refer you to a doctor who specializes and prescribes the

braces you may need if you are local to the central fl area.

Mark

[Guest guest]

Hi Mark,

I am right outside of Tampa and also use the Trinity Hanger Orthotics. What

kind of AFOs do you have? Thanks for the info.

Elaine

[Guest guest]

Mark,

I also have AFOs at the moment made by Hangar orthotics, even

though I'm happy with them I started to think more and more of Helios

now that I know some people who use them are happy with them if

indeed Helios are better than AFOs. I'm trying to find more

information about the Helios and if the price are worth it.

I'm not sure if I make any sense but I'm thinking why someone chooses

Helios instead of AFOs. I'm just trying to understand,

Thanks

Spy