Palo Alto, Ca ; CMT Conference Agenda

[Guest guest]

Hi Amy,

We have finalized the agenda and here it is. The timing will be tight

but the speakers are excellent. We have 250 registered, and not one more

body can fit in the auditorium. If only I had predicted such a wonderful

turnout. For those who cannot make this meeting, a videotape will be

made available within a month of the conference.

WEST COAST CMT

PHYSICIAN/PATIENT/FAMILY CONFERENCE AGENDA

-8:30 AM

Sign©\in and Continental Breakfast

9:00 AM

Welcome and Introduction of CMTA Chairman Livney

Ouellette, CMTA Support Group Liaison and Board Member

15 min

9:15 AM

A World Without CMT

A. Livney, Chairman and President, CMTA Board of Directors

15 min

If questions remain after the time allotted for a presentation,

participants are asked

to reserve them for the gathering and open discussion session with the

speakers.

9:30 AM

Charcot©\Marie©\Tooth Disease: Making Sense of Alphabet Soup

Dr. Shy, Director, Wayne State University CMT Clinic, Detroit,

MI, and Chairman, CMTA Medical Advisory Board

60 min

10:30 AM

Genetics Policy Update

Dr. Billings, President and CEO, CELLectiveDx, Mountain View, CA

30 min

11:00 AM

Break

15 min

11:15 AM

Care and Management of the CMT Foot

Dr. Bill J. Metaxas, DPM, Silicon Valley Podiatry Group, San , CA

30 min

11:45 AM

Physical Therapy and CMT

Kaubish, Kaubish Physical Therapy, San , CA

30 min

12:15 PM

: Finding Information and Support Online

Gretchen Glick, Founder of the online support group

15 min

12:30 PM

Lunch Break

1:15 PM

25 Years of Progress

Pat Dreibelbis, CMTA Director of Program Services and

Dana Schwertfeger, CMTA Director of Member Services

30 min

1:45 PM

Shriners Hospitals¡ªHow They Help

Craig Mc, MD, Medical Director, Spinal Cord Injury Program,

Shriners Hospital, Sacramento, CA

30 min

2:15 PM

Dealing with a CMT Child in the Medical and School Establishments

Dr. Rosemary Shy, Pediatrician, Wayne State CMT Clinic, Detroit, MI

45 min

3:00 PM

Break

15 min

3:15 PM

Genetic Counseling and CMT

Carly Siskind and a Feely, Genetic Counselors, Wayne State CMT

Clinic, Detroit, MI

45 min

4:00 PM

Orthotic Management of Patients with CMT

McKale, Orthotist, Rehabilitation Institute of Michigan, Detroit,

MI

45 min

4:45 PM

Closing Remarks

15 min

5:00 PM

Gathering and Open Discussion

Meet the Speakers and Members of the CMTA

60 min

Display Tables

Active Forever

Athena Diagnostics

Bay Sleep Clinic

CMTA

Diablo Prosthetics & Orthotics

Jonah Berger, Author of He Walks Like a Cowboy

Muscular Dystrophy Association

Shriners Hospital

Miami Institute for Human Genomics

[Guest guest]

Hi

Will the video tape be available world wide?

Take care

[Guest guest]

Yes . The videotape can be sent to anyone in the world. I will send

along the information to order it when it becomes available.

Thanks,