Introduction

[Guest guest]

Hello everyone! My name is - I'm 25 years old from Spanish

Fork, UT. I've been a member of this group for a couple months, but

am just getting around to posting about myself.

I was diagnosed with CMT Type 1A when I was 12. I was actually

tested for the disease at age 4, through a nerve biopsy, but the test

came back negative. I have had roughly 12 surgeries on my feet and

my left hip, and currently wear an AFO on my left leg. I was also

diagnosed with scoliosis at age twelve, wore a brace for a short time

for that, but gave it up after not much time.

I am a mother of two, and step-mother of one. My son, luckily, does

not have CMT, but my 4-month old daughter was just diagnosed with it

a couple months ago. It breaks my heart to have passed this disease

on to her, but hopefully I can be a source of inspiration and

strength to her as she also deals with this trial.

I have started my own personal blog, to document mine and my

daughter's experiences with this disease, and I welcome anyone who

would like to read and leave comments! The address is

www.mylifewithcmt.blogspot.com. I look forward to being a part of

this group, and learning from everyone here!

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