Benefit for Family of 6-Year-Old Boy with CMT

September 12, 2008

is a 6-year-old boy from Riverside RI; he has been clinically

diagnosed with CMT, a neuromuscular disorder. walked until

the age of 2 when he lost mobility from the flu. From 2005 through

2007 's family took him to chiropractors and neurologists in

Boston, Providence and Detroit to figure out exactly why he lost his

mobility and what was causing his problem. The winters of 2005 and

2006, had a several stays at Hasbro Children's Hospital in

Providence, RI for pneumonia. The winter of 07' was the most

challenging. spent 10 weeks in the ICU unit of Hasbro

Children's Hospital and under went a life saving surgery where he

received a tracheotomy and placed on a breathing vent. Since being

home from the hospital continues to have numerous doctor's

appointments and needs continuous care.

is now in kindergarten and will be entering the 1st grade in

the fall. His health is improving but he still relies on a wheelchair

to get around. 's family is trying to make his life as normal

as possible for a 6-year-old boy. They built a temporary ramp in the

front of his house. It was a big milestone for to enter his

home on his own. He had the biggest smile on his face. 's

family needs to make major renovations to their home so he can move

around freely in his wheelchair and a bathroom that is handicap

accessible. They also need to purchase a handicap accessible van so

can be independent outside of his home.

Please help 's family afford the necessary changes to make his

and his family's life a little easier. Thank you for visiting our

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