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Oh Sandie, my prayers are with you!!! Wish I was closer and could do more to

help you. From my experience, we have seen alot of success after short stays

at a Psychiatric Hospital for some of our patients. The nurses and doctors

really have a different touch and approach than most nh staff. Hope all

turns out well.

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Sandie,

Stay the course. You know your Dad best. I'm sure you will make it clear to

them how these medications can complicate this disease.

I'll be praying for you and your Dad.

Mariea

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In a message dated 8/12/02 6:43:59 PM Central Daylight Time,

sanclown@... writes:

> telling me dad has been so very combative and physical for the past 2 days

> that they have been talking with the Mercy Psychiatric Center

This doesn't seem to be an uncommon phenomenon. I sure do hope they know

enough about LBD to figure out a solution!

Wishing you the best,

Cheryl

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Group

I received the daily phone call to tell me the positive part of dads day

was he took his noon meds...of course they now have to be hidden in

pudding. Other than that, he is so extremely confused and agitated that

the nh doesn't know what to do. Of course I told them the Zyprexa

probably has a lot to do with that....

Then, when I was at UPS working, I received another call from the nh

telling me dad has been so very combative and physical for the past 2

days that they have been talking with the Mercy Psychiatric Center about

admitting him to the hospital....the adult psychiatric unit that is.

So, tonight he will be admitted at 8:30 pm to be evaluated on a

one-to-one basis where he cannot harm anyone or himself. He has had

nothing to eat today and has stayed in his room most of the day. The

times he was most combative is when approached for cares. Anyway, I am

home briefly, then will have my husband follow me to the hospital where

I will park my truck. I asked that he then take me to the nh so I can

ride in the ambulance to the hospital to admit dad. This way I will

have a ride home if I feel the need to leave. My husband put a call

into my brother....but he wasn't home. I am asking for prayers for my

dad....prayers that he will continue to trust me and know in his heart

that I won't let anything happen to him that would harm him during his

hospital stay.... Thank you.

Sandie

Des Moines, IA

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You got my prayers Sandie. you're an awesome daughter.

Good luck tonight.

sanclown@... wrote:

> Group

> I received the daily phone call to tell me the positive part of dads day

> was he took his noon meds...of course they now have to be hidden in

> pudding. Other than that, he is so extremely confused and agitated that

> the nh doesn't know what to do. Of course I told them the Zyprexa

> probably has a lot to do with that....

>

> Then, when I was at UPS working, I received another call from the nh

> telling me dad has been so very combative and physical for the past 2

> days that they have been talking with the Mercy Psychiatric Center about

> admitting him to the hospital....the adult psychiatric unit that is.

> So, tonight he will be admitted at 8:30 pm to be evaluated on a

> one-to-one basis where he cannot harm anyone or himself. He has had

> nothing to eat today and has stayed in his room most of the day. The

> times he was most combative is when approached for cares. Anyway, I am

> home briefly, then will have my husband follow me to the hospital where

> I will park my truck. I asked that he then take me to the nh so I can

> ride in the ambulance to the hospital to admit dad. This way I will

> have a ride home if I feel the need to leave. My husband put a call

> into my brother....but he wasn't home. I am asking for prayers for my

> dad....prayers that he will continue to trust me and know in his heart

> that I won't let anything happen to him that would harm him during his

> hospital stay.... Thank you.

> Sandie

> Des Moines, IA

>

>

>

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I'm sorry Sandie,

With tears I am praying for your dad and your family.Love, Shirley

>From: sanclown@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: RE: Call About Dad

>Date: Mon, 12 Aug 2002 18:42:03 -0500 (CDT)

>

>Group

>I received the daily phone call to tell me the positive part of dads day

>was he took his noon meds...of course they now have to be hidden in

>pudding. Other than that, he is so extremely confused and agitated that

>the nh doesn't know what to do. Of course I told them the Zyprexa

>probably has a lot to do with that....

>

>Then, when I was at UPS working, I received another call from the nh

>telling me dad has been so very combative and physical for the past 2

>days that they have been talking with the Mercy Psychiatric Center about

>admitting him to the hospital....the adult psychiatric unit that is.

>So, tonight he will be admitted at 8:30 pm to be evaluated on a

>one-to-one basis where he cannot harm anyone or himself. He has had

>nothing to eat today and has stayed in his room most of the day. The

>times he was most combative is when approached for cares. Anyway, I am

>home briefly, then will have my husband follow me to the hospital where

>I will park my truck. I asked that he then take me to the nh so I can

>ride in the ambulance to the hospital to admit dad. This way I will

>have a ride home if I feel the need to leave. My husband put a call

>into my brother....but he wasn't home. I am asking for prayers for my

>dad....prayers that he will continue to trust me and know in his heart

>that I won't let anything happen to him that would harm him during his

>hospital stay.... Thank you.

>Sandie

>Des Moines, IA

>

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Sandie,

Maybe you need to see your Dad's records at the NH. I would think this

supposed aggression would have to be documented. Talk to the Ombudsman for

your area. It sounds like the NH is just trying to avoid any bad marks from

the state because of their inability to care for your Dad.

Why should your Dad have to suffer being disrupted from what he has known for

the last few years. Moving your Dad will certainly add to any confusion he

may be experiencing. My Mom's doctor didn't want her to have to go out to

the ER for the cut on her head if it was avoidable. Didn't want to add to

her confusion or agitation.

If I were you I would want to be at the NH when the State comes through.

I'll be praying.

Mariea

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Mariea, Eve, , and All -

Thank you so very much for the prayers and kind words of encouragement.

Wow, what a surprise when I got to the nh.

Three of the staff told me dad had NOT been combative. They were

confused as to why dad was going to Mercy lin. And more news...I

heard State Inspection was soon, and the administrator wanted dad out!

Heard this news on the way out the door and I must admit I have been

flooded with feelings on that statement. Needless to say, I will have

another talk with the staff...and not at the expense of my dad. Come to

find out, the nurse practictioner, , from the psychiatric

services, was shocked that dad was being transferred also. She had just

talked to the nh and told them to increase the Zoloft...had NO idea all

of this transfer stuff was in the works. She found out by accident, and

ended up calling me from her home, to the nh while I was waiting for the

ambulance to pick us up. Something strange is going on...and they say

my dad growls...they just may have went too far.

Good news is my husband called my brother with desparation in his voice.

Said over the answering machine, " Your sister needs you, you have been

away too long, so call her! " My brother called my cell phone as my

husband was taking me to the nh, and told me he would meet me at the

hospital. He was there waiting as we arrived about 35 minutes late. He

stayed with me the whole time, and we left around 12:30 this morning.

We had several talks about dad, the situation, how he isn't involved,

and how he doesn't see how I do what I do. It was so comforting to have

someone to set with while answering the many questions admitting dad to

the psych. unit of this hospital.

Again, many thanks, and much appreciation to all that replied and for

the prayers sent for my dad. When my brother asked how I do it, I told

him " I pray " and that is the difference between he and I. There is

definately power in prayer.

Sandie

Des Moines, IA

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Shirley-

Wanted to thank you also for sending a reply to my call for prayer. It

does my heart wonders to know that so many are praying for my dad...and

the power that is behind that.

Hugs to ya!!

Sandie

Des Moines, IA

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Mariea

Wonderful advice....thank you. Yes, that is what the 3 staff members

told me last night. Their fear was the administrator was trying to

avoid a bad mark...and at the expense of my dad. Well, I think NOT. I

have told many of them before that yes, my dad growls....but it is

hereditary. The only difference is I am able to verbalize, dad isn't.

The thought of them removing my dad, for the appearance that all is

well...just irritates me beyond the point of return. I will be checking

into this more and will get some answers to many questions I have.

Thank you for the heads up!

Sandie

Des Moines, IA

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Oh Sandie, how terrible. I know what you are going through. My MIL is

currently still at Abbott's mental health ward. She has no clue as to why

she has to be there. She refused all meals, but I was there last night for

dinner and she ate everything I got her. She was so happy with my visit,

but then when I left, she was sad. And when I called that evening, I found

out she had been crying. It breaks my heart. She walks the halls back and

forth and refuses a lot of care. We think it is her Paxil dose. She also

doesn't get enough sleep, so they have put her on a sleep agent hoping this

will also help. She has no short term memory, so she can't remember what is

happening. She does not understand that she has a sickness. Every time I

talk to her or see her, she asks me why she has to be there. This disease

is so unfair and I hate it.

I hope they get his meds adjusted to where he feels better.

I wish you the best with your father. I will most certainly be including

you and the others going through this in my prayers. Good luck. Keep us

posted on how he does.

RE: Call About Dad

Group

I received the daily phone call to tell me the positive part of dads day

was he took his noon meds...of course they now have to be hidden in

pudding. Other than that, he is so extremely confused and agitated that

the nh doesn't know what to do. Of course I told them the Zyprexa

probably has a lot to do with that....

Then, when I was at UPS working, I received another call from the nh

telling me dad has been so very combative and physical for the past 2

days that they have been talking with the Mercy Psychiatric Center about

admitting him to the hospital....the adult psychiatric unit that is.

So, tonight he will be admitted at 8:30 pm to be evaluated on a

one-to-one basis where he cannot harm anyone or himself. He has had

nothing to eat today and has stayed in his room most of the day. The

times he was most combative is when approached for cares. Anyway, I am

home briefly, then will have my husband follow me to the hospital where

I will park my truck. I asked that he then take me to the nh so I can

ride in the ambulance to the hospital to admit dad. This way I will

have a ride home if I feel the need to leave. My husband put a call

into my brother....but he wasn't home. I am asking for prayers for my

dad....prayers that he will continue to trust me and know in his heart

that I won't let anything happen to him that would harm him during his

hospital stay.... Thank you.

Sandie

Des Moines, IA

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I thought it was odd that recently you mentioned that your MIL and my

dad seem so similar. Now he also is in a psych. hospital. I am so

sorry you have to go through this. Your MIL is so very lucky to have

you and to love her. I know there is some answer in all of this

confusion, it is just finding it that is grueling.

Take Care of yourself, and please keep me posted as to how your MIL is

doing.

Sandie

Des Moines, IA

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Thanks Sandie. From your last post, it seems that maybe your Dad didn't

really have to go there? Like you really needed another issue to tackle. I

am sure you will get to the bottom of whatever they may be pulling. Good

luck. Keep me posted too!

RE: Call About Dad

I thought it was odd that recently you mentioned that your MIL and my

dad seem so similar. Now he also is in a psych. hospital. I am so

sorry you have to go through this. Your MIL is so very lucky to have

you and to love her. I know there is some answer in all of this

confusion, it is just finding it that is grueling.

Take Care of yourself, and please keep me posted as to how your MIL is

doing.

Sandie

Des Moines, IA

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This really is a strange situation, Sandie. WHY would they want your dad out

during an inspection? I'm about 100 posts behind, so maybe you have written

more . . .

How great that you have such a wonderful husband to insist that your brother

be there to support and help you. He must be like my Bob, you lucky lady!

:-)

Will be watching for the next installment. This is really an interesting

situation.

Cheryl

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>

> I thought it was odd that recently you mentioned that your MIL and

my

> dad seem so similar. Now he also is in a psych. hospital. I am so

> sorry you have to go through this. Your MIL is so very lucky to

have

> you and to love her. I know there is some answer in all of

this

> confusion, it is just finding it that is grueling.

> Take Care of yourself, and please keep me posted as to how your MIL

is

> doing.

> Sandie

> Des Moines, IA

Sandie-

It is amazing that I am gone for a week, come back and so much

changes. I am terribly sorry that your Dad is not doing well. I

have been reading through the posts the last few days to catch up and

the rollercoast everyone is on just takes my breath away. Then, to

come home to the news that my Mom was hospitalized- I don't even know

how to process it when I deploy in 13 days. I wish you what I wish

for myself and my family...peace and comfort in these most awful

challenges. Take care,

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Sandie,

What a mess. I hope those people get their poop together soon. I am so glad

that your husband cared enough to get your brother going. I'm sure between

the two of you hopefully things will get a little easier.At least he will

become aware of what is going on. Hopefully your Dad is aware of your

brother being there too. I talked to my brothers also today and we are

getting together soon to try and get something going for our parents. Not

sure what but something has to be done. Take care, keep us posted,

Shirley

>From: sanclown@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: Call About Dad

>Date: Tue, 13 Aug 2002 07:56:25 -0500 (CDT)

>

>Mariea, Eve, , and All -

>Thank you so very much for the prayers and kind words of encouragement.

>Wow, what a surprise when I got to the nh.

>

>Three of the staff told me dad had NOT been combative. They were

>confused as to why dad was going to Mercy lin. And more news...I

>heard State Inspection was soon, and the administrator wanted dad out!

>Heard this news on the way out the door and I must admit I have been

>flooded with feelings on that statement. Needless to say, I will have

>another talk with the staff...and not at the expense of my dad. Come to

>find out, the nurse practictioner, , from the psychiatric

>services, was shocked that dad was being transferred also. She had just

>talked to the nh and told them to increase the Zoloft...had NO idea all

>of this transfer stuff was in the works. She found out by accident, and

>ended up calling me from her home, to the nh while I was waiting for the

>ambulance to pick us up. Something strange is going on...and they say

>my dad growls...they just may have went too far.

>

>Good news is my husband called my brother with desparation in his voice.

>Said over the answering machine, " Your sister needs you, you have been

>away too long, so call her! " My brother called my cell phone as my

>husband was taking me to the nh, and told me he would meet me at the

>hospital. He was there waiting as we arrived about 35 minutes late. He

>stayed with me the whole time, and we left around 12:30 this morning.

>We had several talks about dad, the situation, how he isn't involved,

>and how he doesn't see how I do what I do. It was so comforting to have

>someone to set with while answering the many questions admitting dad to

>the psych. unit of this hospital.

>

>Again, many thanks, and much appreciation to all that replied and for

>the prayers sent for my dad. When my brother asked how I do it, I told

>him " I pray " and that is the difference between he and I. There is

>definately power in prayer.

>Sandie

>Des Moines, IA

>

_________________________________________________________________

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Group

I went to the nh to get clothes for my dad and had made up my mind that

if asked, I would just say he is o.k. Well one nurse asked, and even

stopped to ask more questions, I just told her he is o.k. and walked

away. Another of the staff said she didn't see my son and myself slip

in...I told her now we are going to slip out. She asked if we were ok,

I said yes, she asked if dad was ok, I said yes and left.

Then my son and I went to see dad. Bloodwork had been taken, yet he

seemed all right. The staff at the hospital said he ate 2 trays at

lunch. He slept only 4 hrs through the night, and was not up for

breakfast. Also, by 3:00 he had not taken his meds. I asked the nurse

if she could give him his meds. while I was there and she did. He

seemed a little confused and disoriented, but I think this is all normal

for being in a differet environment. Before we left I realized he was

wet so 2 people changed him and I didn't have to. Afterward, he was

laying in his bed freezing. It was very cold in the room, and he was

shivering. I covered him up and even tucked his arms in. Suddenly he

had a serious hallucination. He sat up, yelling and screaming at me and

then at the glass covering the window. After reassuring him that he was

ok, and I was there with him, he laid back down and I closed the

curtains. He had 2 more hallucinations in the following few minutes,

even covered his own head up with the blanket. I felt an enormous need

to protect him from the fear he was having, yet was helpless as there

was nothing on the outside to fight away. Again, I spoke softly and

reassuring to let him know I was still there and that all was gone

again. I wouldn't let anything get him.

I called the hospital after work and was told he had a good dinner, took

his pills for the nurse, and had even been smiling at times. It was a

very positive report.

Thanks to all that have shown such caring concern...any many heartfelt

thanks for all the prayers sent my dads way.

Sandie

Des Moines, IA

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Group

I went to the nh to get clothes for my dad and had made up my mind that

if asked, I would just say he is o.k. Well one nurse asked, and even

stopped to ask more questions, I just told her he is o.k. and walked

away. Another of the staff said she didn't see my son and myself slip

in...I told her now we are going to slip out. She asked if we were ok,

I said yes, she asked if dad was ok, I said yes and left.

Then my son and I went to see dad. Bloodwork had been taken, yet he

seemed all right. The staff at the hospital said he ate 2 trays at

lunch. He slept only 4 hrs through the night, and was not up for

breakfast. Also, by 3:00 he had not taken his meds. I asked the nurse

if she could give him his meds. while I was there and she did. He

seemed a little confused and disoriented, but I think this is all normal

for being in a differet environment. Before we left I realized he was

wet so 2 people changed him and I didn't have to. Afterward, he was

laying in his bed freezing. It was very cold in the room, and he was

shivering. I covered him up and even tucked his arms in. Suddenly he

had a serious hallucination. He sat up, yelling and screaming at me and

then at the glass covering the window. After reassuring him that he was

ok, and I was there with him, he laid back down and I closed the

curtains. He had 2 more hallucinations in the following few minutes,

even covered his own head up with the blanket. I felt an enormous need

to protect him from the fear he was having, yet was helpless as there

was nothing on the outside to fight away. Again, I spoke softly and

reassuring to let him know I was still there and that all was gone

again. I wouldn't let anything get him.

I called the hospital after work and was told he had a good dinner, took

his pills for the nurse, and had even been smiling at times. It was a

very positive report.

Thanks to all that have shown such caring concern...any many heartfelt

thanks for all the prayers sent my dads way.

Sandie

Des Moines, IA

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Sandie, Arn't you the one who had to cover up mirrors windows and glass so

your Dad couldn't see the reflections?? I hope you informed the staff to

keep the glass covered. Glad everything seems to be going ok. You are in my

thoughts, Shirley

>From: sanclown@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: RE: Call About Dad

>Date: Tue, 13 Aug 2002 22:43:31 -0500 (CDT)

>

>Group

>I went to the nh to get clothes for my dad and had made up my mind that

>if asked, I would just say he is o.k. Well one nurse asked, and even

>stopped to ask more questions, I just told her he is o.k. and walked

>away. Another of the staff said she didn't see my son and myself slip

>in...I told her now we are going to slip out. She asked if we were ok,

>I said yes, she asked if dad was ok, I said yes and left.

>

>Then my son and I went to see dad. Bloodwork had been taken, yet he

>seemed all right. The staff at the hospital said he ate 2 trays at

>lunch. He slept only 4 hrs through the night, and was not up for

>breakfast. Also, by 3:00 he had not taken his meds. I asked the nurse

>if she could give him his meds. while I was there and she did. He

>seemed a little confused and disoriented, but I think this is all normal

>for being in a differet environment. Before we left I realized he was

>wet so 2 people changed him and I didn't have to. Afterward, he was

>laying in his bed freezing. It was very cold in the room, and he was

>shivering. I covered him up and even tucked his arms in. Suddenly he

>had a serious hallucination. He sat up, yelling and screaming at me and

>then at the glass covering the window. After reassuring him that he was

>ok, and I was there with him, he laid back down and I closed the

>curtains. He had 2 more hallucinations in the following few minutes,

>even covered his own head up with the blanket. I felt an enormous need

>to protect him from the fear he was having, yet was helpless as there

>was nothing on the outside to fight away. Again, I spoke softly and

>reassuring to let him know I was still there and that all was gone

>again. I wouldn't let anything get him.

>

>I called the hospital after work and was told he had a good dinner, took

>his pills for the nurse, and had even been smiling at times. It was a

>very positive report.

>

>Thanks to all that have shown such caring concern...any many heartfelt

>thanks for all the prayers sent my dads way.

>Sandie

>Des Moines, IA

>

_________________________________________________________________

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Sandie, Arn't you the one who had to cover up mirrors windows and glass so

your Dad couldn't see the reflections?? I hope you informed the staff to

keep the glass covered. Glad everything seems to be going ok. You are in my

thoughts, Shirley

>From: sanclown@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: RE: Call About Dad

>Date: Tue, 13 Aug 2002 22:43:31 -0500 (CDT)

>

>Group

>I went to the nh to get clothes for my dad and had made up my mind that

>if asked, I would just say he is o.k. Well one nurse asked, and even

>stopped to ask more questions, I just told her he is o.k. and walked

>away. Another of the staff said she didn't see my son and myself slip

>in...I told her now we are going to slip out. She asked if we were ok,

>I said yes, she asked if dad was ok, I said yes and left.

>

>Then my son and I went to see dad. Bloodwork had been taken, yet he

>seemed all right. The staff at the hospital said he ate 2 trays at

>lunch. He slept only 4 hrs through the night, and was not up for

>breakfast. Also, by 3:00 he had not taken his meds. I asked the nurse

>if she could give him his meds. while I was there and she did. He

>seemed a little confused and disoriented, but I think this is all normal

>for being in a differet environment. Before we left I realized he was

>wet so 2 people changed him and I didn't have to. Afterward, he was

>laying in his bed freezing. It was very cold in the room, and he was

>shivering. I covered him up and even tucked his arms in. Suddenly he

>had a serious hallucination. He sat up, yelling and screaming at me and

>then at the glass covering the window. After reassuring him that he was

>ok, and I was there with him, he laid back down and I closed the

>curtains. He had 2 more hallucinations in the following few minutes,

>even covered his own head up with the blanket. I felt an enormous need

>to protect him from the fear he was having, yet was helpless as there

>was nothing on the outside to fight away. Again, I spoke softly and

>reassuring to let him know I was still there and that all was gone

>again. I wouldn't let anything get him.

>

>I called the hospital after work and was told he had a good dinner, took

>his pills for the nurse, and had even been smiling at times. It was a

>very positive report.

>

>Thanks to all that have shown such caring concern...any many heartfelt

>thanks for all the prayers sent my dads way.

>Sandie

>Des Moines, IA

>

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Cheryl

From what I can piece together, and from what intuition tells me...dad

has not has regular cares done on him. His meds. have not been given

regularly, nor was he even shaved. I was told by the nurse during

admitting last night that the state has the right to have any or all

charts pulled and do evaluations on cares. Strikes against the nh come

when the staff has not done their job. Also, I told her about the

unexplained bruising dad had the day I saw him about 2 wks ago...he had

not had anything to eat or drink and no meds. for about 2 1/2 days. He

was a complete mess and in a true state of confusion. Apparently all of

this would not have a good outcome for the nh. This admitting nurse

encouraged me to call the state on the nh as it is my right. Before, I

was so willing to work with the staff and after throwing my fits, I

would forgive their mistakes. Well, my heart is telling me differently

this time. Stay tuned for another segment of " Guiding Fight " ....

Sandie

Des Moines, IA

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Shirley

Yes, at the nh, dads mirror was taken down in his room. All glass was

removed from pictures on the walls, and his windows were covered with a

shelf lining type sticky paper. I guess as exhausted as I was last

night, and more concerned of him I didn't think to close the curtain and

to inform them. I did however, mention it during the admitting meeting.

I will need to make sure they understand the importance. Thanks for the

reminder.

Sandie

Des Moines, IA

who's mind is feeling on over load, whew

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Sandie, I agree totally. this is exactly why some people are sent out--so

that the state does not see those who are loud, non-compliant, etc. Be there

when they come, let them know you would like to speak with them--Part of

their survey is to talk with family members and residents. Hope this helps,

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Sandie, I agree totally. this is exactly why some people are sent out--so

that the state does not see those who are loud, non-compliant, etc. Be there

when they come, let them know you would like to speak with them--Part of

their survey is to talk with family members and residents. Hope this helps,

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