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Re: Update on Mom in Michigan

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I am envious of your Las Vegas trip. You do so need the vacation and I

wish you the best. As with your mom, depression can be a big part of

LBD. I know my dad struggles with it and it manifests itself with

agitation and crying. Just another thought to your moms moods. Enjoy

your vacation, rest up, and best of luck to you.

Sandie

Des Moines, IA

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  • 2 weeks later...

In a message dated 8/31/02 12:31:04 AM Central Daylight Time,

susanenglish@... writes:

> With this disease, it's so easy for the demented one to convince everyone

> that

> they are sane.

BINGO!!! Which is why I think it would be very helpful for you to get ahold

of a good Geriatric Psychiatrist or Cognitivie Neurologist who knows this

disease. Paranoid delusions aren't unusual with this disease, and it can get

pretty awful, as you are experiencing. I am so sorry, !!

Cheryl

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In a message dated 8/31/02 12:31:04 AM Central Daylight Time,

susanenglish@... writes:

> With this disease, it's so easy for the demented one to convince everyone

> that

> they are sane.

BINGO!!! Which is why I think it would be very helpful for you to get ahold

of a good Geriatric Psychiatrist or Cognitivie Neurologist who knows this

disease. Paranoid delusions aren't unusual with this disease, and it can get

pretty awful, as you are experiencing. I am so sorry, !!

Cheryl

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In a message dated 8/31/02 12:31:04 AM Central Daylight Time,

susanenglish@... writes:

> With this disease, it's so easy for the demented one to convince everyone

> that

> they are sane.

BINGO!!! Which is why I think it would be very helpful for you to get ahold

of a good Geriatric Psychiatrist or Cognitivie Neurologist who knows this

disease. Paranoid delusions aren't unusual with this disease, and it can get

pretty awful, as you are experiencing. I am so sorry, !!

Cheryl

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Please take a deep breath.... Thank you for you post and for expressing

your need for support. You have explained my dad to a tee, in the

beginning anyway. I was the caregiver while he was in his apartment,

and one time my brother went over to find notes written saying how much

dad hated Sandie. My brother tried to reason with dad, however, as you

stated, the LBD person has a way of making it seem they are well. Most

of the time it seemed I had lost my mind as nothing was consistant so by

the time I realized something had happened, it never happened again.

Does this make sense?

Anyway, your mom's aggression is and has been my dad most of the time

for the past 5 years. All growing up he was the parent that didn't

growl or yell much...not " growl " is his middle name. He has been so

very aggressive that he lashes out at staff at the nursing home. He has

thrown several things and yelled, more like mumbled growling at everyone

including myself. I know this is my dads shell, but LBD has moved in

and changed him internally. I also know if my dad could he would thank

me, yet I feel it is I who needs to thank him for giving me life.

Please try not to take personally what your mom says and how she has

been acting. I know, easier said than done. Hopefully with the

upcoming dr. appt. meds. can be changed or modified and it will change

your moms attitude. We can only do the best with the knowledge we have.

Sounds like you are doing just that.

Take special care of yourself, and trust in knowing that all will work

out.

Sandie

Des Moines, IA

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Please take a deep breath.... Thank you for you post and for expressing

your need for support. You have explained my dad to a tee, in the

beginning anyway. I was the caregiver while he was in his apartment,

and one time my brother went over to find notes written saying how much

dad hated Sandie. My brother tried to reason with dad, however, as you

stated, the LBD person has a way of making it seem they are well. Most

of the time it seemed I had lost my mind as nothing was consistant so by

the time I realized something had happened, it never happened again.

Does this make sense?

Anyway, your mom's aggression is and has been my dad most of the time

for the past 5 years. All growing up he was the parent that didn't

growl or yell much...not " growl " is his middle name. He has been so

very aggressive that he lashes out at staff at the nursing home. He has

thrown several things and yelled, more like mumbled growling at everyone

including myself. I know this is my dads shell, but LBD has moved in

and changed him internally. I also know if my dad could he would thank

me, yet I feel it is I who needs to thank him for giving me life.

Please try not to take personally what your mom says and how she has

been acting. I know, easier said than done. Hopefully with the

upcoming dr. appt. meds. can be changed or modified and it will change

your moms attitude. We can only do the best with the knowledge we have.

Sounds like you are doing just that.

Take special care of yourself, and trust in knowing that all will work

out.

Sandie

Des Moines, IA

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Please take a deep breath.... Thank you for you post and for expressing

your need for support. You have explained my dad to a tee, in the

beginning anyway. I was the caregiver while he was in his apartment,

and one time my brother went over to find notes written saying how much

dad hated Sandie. My brother tried to reason with dad, however, as you

stated, the LBD person has a way of making it seem they are well. Most

of the time it seemed I had lost my mind as nothing was consistant so by

the time I realized something had happened, it never happened again.

Does this make sense?

Anyway, your mom's aggression is and has been my dad most of the time

for the past 5 years. All growing up he was the parent that didn't

growl or yell much...not " growl " is his middle name. He has been so

very aggressive that he lashes out at staff at the nursing home. He has

thrown several things and yelled, more like mumbled growling at everyone

including myself. I know this is my dads shell, but LBD has moved in

and changed him internally. I also know if my dad could he would thank

me, yet I feel it is I who needs to thank him for giving me life.

Please try not to take personally what your mom says and how she has

been acting. I know, easier said than done. Hopefully with the

upcoming dr. appt. meds. can be changed or modified and it will change

your moms attitude. We can only do the best with the knowledge we have.

Sounds like you are doing just that.

Take special care of yourself, and trust in knowing that all will work

out.

Sandie

Des Moines, IA

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In a message dated 9/1/02 12:03:48 PM Central Daylight Time,

susanenglish@... writes:

> I have been getting some wonderful information and support from social

> workers and Dr. at the Traverse City Munson Geriatric Center. They've

> interviewed my mom along with the family, tested her thoroughly and

> explained to her (and all of us) what LBD is. Of course this made her

> furious.

I am relieved for you to have all that good support! Sure hope Medicaid

kicks in soon. With your mom being such an angry person, , I am afraid

you will probably have a rougher time with caregiving than many of us. Hang

tight - Cheryl

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> In a message dated 8/31/02 12:31:04 AM Central Daylight Time,

> susanenglish@y... writes:

>

>

> > With this disease, it's so easy for the demented one to convince

everyone

> > that

> > they are sane.

>

> BINGO!!! Which is why I think it would be very helpful for you to

get ahold

> of a good Geriatric Psychiatrist or Cognitivie Neurologist who

knows this

> disease. Paranoid delusions aren't unusual with this disease, and

it can get

I have been getting some wonderful information and support from

social workers and Dr. at the Traverse City Munson Geriatric

Center. They've interviewed my mom along with the family, tested her

thoroughly and explained to her (and all of us) what LBD is. Of

course this made her furious. I do need some reassurance from time

to time that this is a progressive disease, and my mom will never be

the same person she was. Her delusion is that she's able to take

care of herself.

Thanks for your comment.

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