Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 I told myself in the beginning of diagnosis that this is no longer the dad I knew and grew up with. LBD has moved into his body, so when he throws a fit, is agitated, cries, whatever the situation I don't take it personally. Getting the staff at the nh to " not take it personally " is yet another story. I also remind myself that as horrible it is on the outside dealing with LBD, just imagine how confusing and horrible it must be on the inside. This is truly heart wrenching. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Sandie, I agree it must be hard to feel what they feel inside. The only thing I can think of is what my MIL's doctor told me. She said most LBD patients have lost their " sensory system " , making the true effect and feeling of this disease almost null and void to them. She said they experience confusion, but what we see them " going through " is not the extent they are " feeling it " . I don't know if that makes any sense, but it is all I can cling to when I start thinking about what this disease is doing to my MIL. At first I had doubted the doctor thinking there was no way anyone could be " null and void " to this monster, but I pray she is even a little right. Re: Re: Mother with LBD I told myself in the beginning of diagnosis that this is no longer the dad I knew and grew up with. LBD has moved into his body, so when he throws a fit, is agitated, cries, whatever the situation I don't take it personally. Getting the staff at the nh to " not take it personally " is yet another story. I also remind myself that as horrible it is on the outside dealing with LBD, just imagine how confusing and horrible it must be on the inside. This is truly heart wrenching. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Sandie, I agree it must be hard to feel what they feel inside. The only thing I can think of is what my MIL's doctor told me. She said most LBD patients have lost their " sensory system " , making the true effect and feeling of this disease almost null and void to them. She said they experience confusion, but what we see them " going through " is not the extent they are " feeling it " . I don't know if that makes any sense, but it is all I can cling to when I start thinking about what this disease is doing to my MIL. At first I had doubted the doctor thinking there was no way anyone could be " null and void " to this monster, but I pray she is even a little right. Re: Re: Mother with LBD I told myself in the beginning of diagnosis that this is no longer the dad I knew and grew up with. LBD has moved into his body, so when he throws a fit, is agitated, cries, whatever the situation I don't take it personally. Getting the staff at the nh to " not take it personally " is yet another story. I also remind myself that as horrible it is on the outside dealing with LBD, just imagine how confusing and horrible it must be on the inside. This is truly heart wrenching. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 In a message dated 8/21/02 9:49:41 AM Central Daylight Time, cindy.vechinski@... writes: > lost their " sensory system " , making the true effect and feeling of this > disease almost null and void to them. , I find this to be true MOST of the time. There are moments of realization, though, about the cognitive stuff, and then my heart breaks for my husband. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 In a message dated 8/21/02 9:49:41 AM Central Daylight Time, cindy.vechinski@... writes: > lost their " sensory system " , making the true effect and feeling of this > disease almost null and void to them. , I find this to be true MOST of the time. There are moments of realization, though, about the cognitive stuff, and then my heart breaks for my husband. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 , I believe the doctor probably must be right. What I see my mom going through and how she reacts I can't believe it. I think I would have shot myself if it were me. (Just an expression I hope, don't think I really would.) Bless you all,Shirley >From: cindy.vechinski@... >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: RE: Re: Mother with LBD >Date: Wed, 21 Aug 2002 09:40:31 -0500 > >Sandie, > >I agree it must be hard to feel what they feel inside. The only thing I >can >think of is what my MIL's doctor told me. She said most LBD patients have >lost their " sensory system " , making the true effect and feeling of this >disease almost null and void to them. She said they experience confusion, >but what we see them " going through " is not the extent they are " feeling >it " . I don't know if that makes any sense, but it is all I can cling to >when I start thinking about what this disease is doing to my MIL. At first >I had doubted the doctor thinking there was no way anyone could be " null >and >void " to this monster, but I pray she is even a little right. > > > > Re: Re: Mother with LBD > > > >I told myself in the beginning of diagnosis that this is no longer the >dad I knew and grew up with. LBD has moved into his body, so when he >throws a fit, is agitated, cries, whatever the situation I don't take it >personally. Getting the staff at the nh to " not take it personally " is >yet another story. I also remind myself that as horrible it is on the >outside dealing with LBD, just imagine how confusing and horrible it >must be on the inside. This is truly heart wrenching. >Sandie >Des Moines, IA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 , I believe the doctor probably must be right. What I see my mom going through and how she reacts I can't believe it. I think I would have shot myself if it were me. (Just an expression I hope, don't think I really would.) Bless you all,Shirley >From: cindy.vechinski@... >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: RE: Re: Mother with LBD >Date: Wed, 21 Aug 2002 09:40:31 -0500 > >Sandie, > >I agree it must be hard to feel what they feel inside. The only thing I >can >think of is what my MIL's doctor told me. She said most LBD patients have >lost their " sensory system " , making the true effect and feeling of this >disease almost null and void to them. She said they experience confusion, >but what we see them " going through " is not the extent they are " feeling >it " . I don't know if that makes any sense, but it is all I can cling to >when I start thinking about what this disease is doing to my MIL. At first >I had doubted the doctor thinking there was no way anyone could be " null >and >void " to this monster, but I pray she is even a little right. > > > > Re: Re: Mother with LBD > > > >I told myself in the beginning of diagnosis that this is no longer the >dad I knew and grew up with. LBD has moved into his body, so when he >throws a fit, is agitated, cries, whatever the situation I don't take it >personally. Getting the staff at the nh to " not take it personally " is >yet another story. I also remind myself that as horrible it is on the >outside dealing with LBD, just imagine how confusing and horrible it >must be on the inside. This is truly heart wrenching. >Sandie >Des Moines, IA > > > > Quote Link to comment Share on other sites More sharing options...
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