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RE: Everything!

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In a message dated 2002-07-20 3:29:22 AM Eastern Daylight Time,

dashe@... writes:

> and I had such a cough for the past week, but now Joe is starting to cough

> today.

Didn't realise a cough could be contagious, if it is nothing serious, we have

had good success with just plain old Halls cough drops...come in different

strengths and flavours. Beside the usual warm drinks, of course.

Ev

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In a message dated 2002-07-20 3:29:22 AM Eastern Daylight Time,

dashe@... writes:

>

> Re: Weight Are you all a bunch of shorties

Good things come in small fat packages...besides, I think TALL.

Ev

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In a message dated 7/20/02 2:29:37 AM Central Daylight Time,

dashe@... writes:

> bought some Robitussin DM for me, but I noticed that any psychiatric or

> Parkinsons problems cannot take it.

Eve, I hadn't noticed this at all, and Robitussin is what I have been giving

Bob for the last 5 yrs at the primary's suggestion. No ill effects.

Wouldn't it be nice if one size fit all?

Sorry to hear that Joe is confused again. So is Bob, complete with

hallucinations and not sleeping well again. Lewy has him fully in his grasp

once more.

Hoping we as a group are not headed into another downslide with our LOs . . .

Cheryl

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In a message dated 7/20/02 7:10:04 AM Central Daylight Time, buev@...

writes:

> Good things come in small fat packages...

Oh Ev, thanks for the laugh. That's a keeper! :-))) Cheryl

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When I gave Jack Robitussin DM, there were men flying in from all over (in the

air, no airplanes)

and several of them spent the night in bed with ME. He was really mad at me and

stayed mad

all day long. I had made a couple of wise cracks which didn't help the

situation..... Mai-Liis

> bought some Robitussin DM for me, but I noticed that any psychiatric or

> Parkinsons problems cannot take it.

Eve, I hadn't noticed this at all, and Robitussin is what I have been giving

Bob for the last 5 yrs at the primary's suggestion. No ill effects.

Wouldn't it be nice if one size fit all?

Sorry to hear that Joe is confused again. So is Bob, complete with

hallucinations and not sleeping well again. Lewy has him fully in his grasp

once more.

Hoping we as a group are not headed into another downslide with our LOs . . .

Cheryl

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Sandie,

I feel so sad for you and your Dad. For awhile I could see that my Mom's

anxiety level was so high and it would just make me feel so bad for her. I

hate the way the meds make her sleep so much, but I guess it's the lesser of

two evils.

Hugs from Pennsylvania.

Mariea

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Cheryl and All-

My dad has been having more bad days lately. He struggles with what

seem to be hallucinations and delusions. He usually stays in his room,

and refuses most care. Today, after dressing and re-dressing him the

staff finally was able to keep him clothed. He wouldn't take his meds.,

or eat breakfast. He opened one of the outside/locked doors that sets

off a very loud alarm and held the door open until staff got

there...which their response time is pretty quick. By the time I

visited, he was still dressed, had eaten lunch, had taken meds., and

cried most of the visit. He was very anxious and needed to walk a lot.

When I would ask questions and prompt with a " yes " or " no " it was even

difficult to understand his reply. So, sad as it may be, Lewy has my dad

as well. Sure do appreciate this group and being able to ramble on,

where others know what I am dealing with. Thanks to all!!!

Sandie

Des Moines, IA

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Sandie,

I will say an extra prayer for you and your Dad tonight. Take care, Shirley

>From: sanclown@...

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: Everything!

>Date: Sat, 20 Jul 2002 17:50:21 -0500 (CDT)

>

>Cheryl and All-

>My dad has been having more bad days lately. He struggles with what

>seem to be hallucinations and delusions. He usually stays in his room,

>and refuses most care. Today, after dressing and re-dressing him the

>staff finally was able to keep him clothed. He wouldn't take his meds.,

>or eat breakfast. He opened one of the outside/locked doors that sets

>off a very loud alarm and held the door open until staff got

>there...which their response time is pretty quick. By the time I

>visited, he was still dressed, had eaten lunch, had taken meds., and

>cried most of the visit. He was very anxious and needed to walk a lot.

>When I would ask questions and prompt with a " yes " or " no " it was even

>difficult to understand his reply. So, sad as it may be, Lewy has my dad

>as well. Sure do appreciate this group and being able to ramble on,

>where others know what I am dealing with. Thanks to all!!!

>Sandie

>Des Moines, IA

>

_________________________________________________________________

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Mariea

Thank you for your caring words. I know when my dad goes through the

sleep mode, it bothers me, yet at the same time is comforting as he

isn't awake enough to know what is going on. When he is awake this

disease truly brings him down as he is very aware. Best of luck to you

Mariea and hugs to ya!

Sandie

Des Moines, IA

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Hi Cheryl. Sorry to hear about Bob. I hope he bounces back soon. Strange

about the Robitussin. My MIL's doctor said no Sudafed or OTC drying agents

should be used. They said only prescribed meds should be taken. I never

knew OTC drugs could be so dangerous.

> Re: Everything!

>

> In a message dated 7/20/02 2:29:37 AM Central Daylight Time,

> dashe@... writes:

>

>

> > bought some Robitussin DM for me, but I noticed that any psychiatric or

> > Parkinsons problems cannot take it.

>

> Eve, I hadn't noticed this at all, and Robitussin is what I have been

> giving

> Bob for the last 5 yrs at the primary's suggestion. No ill effects.

> Wouldn't it be nice if one size fit all?

>

> Sorry to hear that Joe is confused again. So is Bob, complete with

> hallucinations and not sleeping well again. Lewy has him fully in his

> grasp

> once more.

>

> Hoping we as a group are not headed into another downslide with our LOs .

> . .

> Cheryl

>

>

>

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I can relate Sandie. My MIL has similar experiences when she is having a

" bad " day (or week). She too refuses care, meals, and meds. She becomes

agitated and will even swear at some of the staff. After spending time in

her room she usually will calm down. The bad days seem to pass in 1 to 3

days, but then again, she is in the first year of diagnoses (not first year

of symptoms), so this will most likely change. It is so hard to see, and

even harder not being able to do much. But I know what you are going

through, so I am sending a hug your way!

Take care,

> Re: Everything!

>

> Cheryl and All-

> My dad has been having more bad days lately. He struggles with what

> seem to be hallucinations and delusions. He usually stays in his room,

> and refuses most care. Today, after dressing and re-dressing him the

> staff finally was able to keep him clothed. He wouldn't take his meds.,

> or eat breakfast. He opened one of the outside/locked doors that sets

> off a very loud alarm and held the door open until staff got

> there...which their response time is pretty quick. By the time I

> visited, he was still dressed, had eaten lunch, had taken meds., and

> cried most of the visit. He was very anxious and needed to walk a lot.

> When I would ask questions and prompt with a " yes " or " no " it was even

> difficult to understand his reply. So, sad as it may be, Lewy has my dad

> as well. Sure do appreciate this group and being able to ramble on,

> where others know what I am dealing with. Thanks to all!!!

> Sandie

> Des Moines, IA

>

>

>

>

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