Re: sorry i have been silent

[Guest guest]

Hello ,

I am very new to this site. I too suffer from chronic pain. I was in an auto

accident 9 years ago. I had three back surgeries , the first was two clean out

two disc, the second

one was a fusion and the third was to remove the rods and screws. Now I may be

facing another fusion . Pain is my biggest problem. Constant Pain.

Is fibro - fog, fibromalychia (sp) ??? I tried to spell it as it sounds but I am

not a very good speller. Any way trying to catch on to the new lingo. lol

Write back

Thankks

Maureen

ANGELPra4u@... wrote:

> From: ANGELPra4u@...

>

> In a message dated 1/28/2000 3:00:25 AM Central Standard Time,

> chronic_painonelist writes:

>

> <<

> Some people say that by communicating by way of a computer, we take away

> structure from face to face meetings. Maybe, but without this machine I

> would not have expanded my horizons as much as I have.

>

> Whether you have fibro-fog or any sort of ailment the occasional note to

> let us know your out there is always nice. Till then....

>

> Be Blest, D. >>

> Dear .......I am always blest because of you. FOr all you new ones, This

> lady does research for us on a variety of topics and is an encourager and

> unselfish giver . I appreciate her and Ken, Ray and all. I have been quite

> for some time because I have been busy getting a better diagnosis and

> treatments. I also found that I am losing weight on Sugar Busters diet and

> that is very good for me as I have insulin resistance . I was diagnosed with

> Hashimotos Tyroiditis also and low T3. I am starting to feel a bit more

> energy.

> I have pain from FM, polyneuropathy, back and neck injuries in car accident

> (89) and Lyme disease. My new Dr is Lambasting all my ills with antibiotics,

> antivirals, anti fungals and thyroid med.

> Last year this time..i cracked the Y2K problem and was called KAK or Y2K kay

> I wish you all moments of bliss and pauses from pain (((hug)))

>

> ---------------------------

[Guest guest]

Maureen,

Welcome to our list. You certainly have a full plate. I believe we

do understand constant pain, but wish you didn't have it. What part(s) of

your spine are involved? Unfortunately, spinal surgery often leads to some

arthritis in the area of the incision. So you are damned if you do and

damned if you don't. Do they know specifically what the pain is from?

Ken

At 11:29 PM 1/29/00 -0700, you wrote:

>

>

>Hello ,

>I am very new to this site. I too suffer from chronic pain. I was in an

>auto accident 9 years ago. I had three back surgeries , the first was two

>clean out two disc, the second

>one was a fusion and the third was to remove the rods and screws. Now I

>may be facing another fusion . Pain is my biggest problem. Constant Pain.

>

>Is fibro - fog, fibromalychia (sp) ??? I tried to spell it as it sounds

>but I am not a very good speller. Any way trying to catch on to the new

>lingo. lol

>Write back

>Thankks

>Maureen

>

>ANGELPra4u@... wrote:

>

> > From: ANGELPra4u@...

> >

> > In a message dated 1/28/2000 3:00:25 AM Central Standard Time,

> > chronic_painonelist writes:

> >

> > <<

> > Some people say that by communicating by way of a computer, we take away

> > structure from face to face meetings. Maybe, but without this machine I

> > would not have expanded my horizons as much as I have.

> >

> > Whether you have fibro-fog or any sort of ailment the occasional note to

> > let us know your out there is always nice. Till then....

> >

> > Be Blest, D. >>

> > Dear .......I am always blest because of you. FOr all you new

> ones, This

> > lady does research for us on a variety of topics and is an encourager and

> > unselfish giver . I appreciate her and Ken, Ray and all. I have been quite

> > for some time because I have been busy getting a better diagnosis and

> > treatments. I also found that I am losing weight on Sugar Busters diet and

> > that is very good for me as I have insulin resistance . I was diagnosed

> with

> > Hashimotos Tyroiditis also and low T3. I am starting to feel a bit more

> > energy.

> > I have pain from FM, polyneuropathy, back and neck injuries in car accident

> > (89) and Lyme disease. My new Dr is Lambasting all my ills with

> antibiotics,

> > antivirals, anti fungals and thyroid med.

> > Last year this time..i cracked the Y2K problem and was called KAK or

> Y2K kay

> > I wish you all moments of bliss and pauses from pain (((hug)))

> >

> > ---------------------------

[Guest guest]

Hi,

That's funny (KAK) since that's part of my addy. Couldn't come up with a

cute name for the puter.

Kathleen in Sonoma

PS>

One of my on-line friends used to say my on-line name reminded her of a cat

gagging. lol

[Guest guest]

HelloKen,

My L4/5, L5/S1 disc were bulging from the car accident in 1991. The doctor went

in to clean them out , said it would only be a three inch incision, well when I

woke up it was five

and a half inches long. The disc were so bad he did exploritory on the disc

above and below these. I lived with constant pain until 1995 January, then had

a fusion done. The doc

opened me up from my naval all the way down and pulled those two disc out. Then

they turned me over and opened me up 10 inches and replaced the disc with bone

from the bone bank ,

6six screws and two rods to hold everything in place. In 1998 I had all the

hardware removed but I still have all the problems yet. The pain from where

everything used to be is

awful. Only best thing is my hips do not lock up any more. Before it was so bad

I would get stuck walking. My hips would lock from the hardware and I could not

move. I did stop

traffic whether in the middle of the street or in the grocery store. That is

good I can walk and I do not get stuck.

The bottom of my tail bone mid way up my back is my problem .

My doctor counts disc from the bottom up. I do know different doctors count and

label disc different. So if you start down by the tail bone that would be L1,

L2, L3, L4, L5. Then

starts the S1, S2, and so on. Now my biggest fear is the doc said there is no

more to do for my pain. We should start with another discogram to isolate the

disc, (s) that are now

bad and talk about another fusion. My fusion has so much pressure on the disc

above , I was warned this was going to happen to me but I did not think it would

happen so soon. I

thought I would have a few years break but I am not the lucky one I guess. The

only way he will do a discogram is if I am ready for surgery again. The risk

involved are infections

and this is the test they do before surgery is done. I swore I would never go

through another discogram again in my life. No one needs to go throughthat much

pain with not

medication, because that is what they are measuring is pain.

I would like to hear what you know about the arthritis and all. I tend not to go

back to my doctor until can not move. He is a spinal surgeon, one of the tops in

the midwest. I just

can not go through another surgery.

Thanks Ken

Keep in touch

Maureen

Turbin wrote:

>

>

> Maureen,

>

> Welcome to our list. You certainly have a full plate. I believe we

> do understand constant pain, but wish you didn't have it. What part(s) of

> your spine are involved? Unfortunately, spinal surgery often leads to some

> arthritis in the area of the incision. So you are damned if you do and

> damned if you don't. Do they know specifically what the pain is from?

>

> Ken

>

> At 11:29 PM 1/29/00 -0700, you wrote:

> >

> >

> >Hello ,

> >I am very new to this site. I too suffer from chronic pain. I was in an

> >auto accident 9 years ago. I had three back surgeries , the first was two

> >clean out two disc, the second

> >one was a fusion and the third was to remove the rods and screws. Now I

> >may be facing another fusion . Pain is my biggest problem. Constant Pain.

> >

> >Is fibro - fog, fibromalychia (sp) ??? I tried to spell it as it sounds

> >but I am not a very good speller. Any way trying to catch on to the new

> >lingo. lol

> >Write back

> >Thankks

> >Maureen

> >

> >ANGELPra4u@... wrote:

> >

> > > From: ANGELPra4u@...

> > >

> > > In a message dated 1/28/2000 3:00:25 AM Central Standard Time,

> > > chronic_painonelist writes:

> > >

> > > <<

> > > Some people say that by communicating by way of a computer, we take away

> > > structure from face to face meetings. Maybe, but without this machine I

> > > would not have expanded my horizons as much as I have.

> > >

> > > Whether you have fibro-fog or any sort of ailment the occasional note to

> > > let us know your out there is always nice. Till then....

> > >

> > > Be Blest, D. >>

> > > Dear .......I am always blest because of you. FOr all you new

> > ones, This

> > > lady does research for us on a variety of topics and is an encourager and

> > > unselfish giver . I appreciate her and Ken, Ray and all. I have been quite

> > > for some time because I have been busy getting a better diagnosis and

> > > treatments. I also found that I am losing weight on Sugar Busters diet

and

> > > that is very good for me as I have insulin resistance . I was diagnosed

> > with

> > > Hashimotos Tyroiditis also and low T3. I am starting to feel a bit more

> > > energy.

> > > I have pain from FM, polyneuropathy, back and neck injuries in car

accident

> > > (89) and Lyme disease. My new Dr is Lambasting all my ills with

> > antibiotics,

> > > antivirals, anti fungals and thyroid med.

> > > Last year this time..i cracked the Y2K problem and was called KAK or

> > Y2K kay

> > > I wish you all moments of bliss and pauses from pain (((hug)))

> > >

> > > ---------------------------

[Guest guest]

HelloKen,

My L4/5, L5/S1 disc were bulging from the car accident in 1991. The doctor went

in to clean them out , said it would only be a three inch incision, well when I

woke up it was five

and a half inches long. The disc were so bad he did exploritory on the disc

above and below these. I lived with constant pain until 1995 January, then had

a fusion done. The doc

opened me up from my naval all the way down and pulled those two disc out. Then

they turned me over and opened me up 10 inches and replaced the disc with bone

from the bone bank ,

6six screws and two rods to hold everything in place. In 1998 I had all the

hardware removed but I still have all the problems yet. The pain from where

everything used to be is

awful. Only best thing is my hips do not lock up any more. Before it was so bad

I would get stuck walking. My hips would lock from the hardware and I could not

move. I did stop

traffic whether in the middle of the street or in the grocery store. That is

good I can walk and I do not get stuck.

The bottom of my tail bone mid way up my back is my problem .

My doctor counts disc from the bottom up. I do know different doctors count and

label disc different. So if you start down by the tail bone that would be L1,

L2, L3, L4, L5. Then

starts the S1, S2, and so on. Now my biggest fear is the doc said there is no

more to do for my pain. We should start with another discogram to isolate the

disc, (s) that are now

bad and talk about another fusion. My fusion has so much pressure on the disc

above , I was warned this was going to happen to me but I did not think it would

happen so soon. I

thought I would have a few years break but I am not the lucky one I guess. The

only way he will do a discogram is if I am ready for surgery again. The risk

involved are infections

and this is the test they do before surgery is done. I swore I would never go

through another discogram again in my life. No one needs to go throughthat much

pain with not

medication, because that is what they are measuring is pain.

I would like to hear what you know about the arthritis and all. I tend not to go

back to my doctor until can not move. He is a spinal surgeon, one of the tops in

the midwest. I just

can not go through another surgery.

Thanks Ken

Keep in touch

Maureen

Turbin wrote:

>

>

> Maureen,

>

> Welcome to our list. You certainly have a full plate. I believe we

> do understand constant pain, but wish you didn't have it. What part(s) of

> your spine are involved? Unfortunately, spinal surgery often leads to some

> arthritis in the area of the incision. So you are damned if you do and

> damned if you don't. Do they know specifically what the pain is from?

>

> Ken

>

> At 11:29 PM 1/29/00 -0700, you wrote:

> >

> >

> >Hello ,

> >I am very new to this site. I too suffer from chronic pain. I was in an

> >auto accident 9 years ago. I had three back surgeries , the first was two

> >clean out two disc, the second

> >one was a fusion and the third was to remove the rods and screws. Now I

> >may be facing another fusion . Pain is my biggest problem. Constant Pain.

> >

> >Is fibro - fog, fibromalychia (sp) ??? I tried to spell it as it sounds

> >but I am not a very good speller. Any way trying to catch on to the new

> >lingo. lol

> >Write back

> >Thankks

> >Maureen

> >

> >ANGELPra4u@... wrote:

> >

> > > From: ANGELPra4u@...

> > >

> > > In a message dated 1/28/2000 3:00:25 AM Central Standard Time,

> > > chronic_painonelist writes:

> > >

> > > <<

> > > Some people say that by communicating by way of a computer, we take away

> > > structure from face to face meetings. Maybe, but without this machine I

> > > would not have expanded my horizons as much as I have.

> > >

> > > Whether you have fibro-fog or any sort of ailment the occasional note to

> > > let us know your out there is always nice. Till then....

> > >

> > > Be Blest, D. >>

> > > Dear .......I am always blest because of you. FOr all you new

> > ones, This

> > > lady does research for us on a variety of topics and is an encourager and

> > > unselfish giver . I appreciate her and Ken, Ray and all. I have been quite

> > > for some time because I have been busy getting a better diagnosis and

> > > treatments. I also found that I am losing weight on Sugar Busters diet

and

> > > that is very good for me as I have insulin resistance . I was diagnosed

> > with

> > > Hashimotos Tyroiditis also and low T3. I am starting to feel a bit more

> > > energy.

> > > I have pain from FM, polyneuropathy, back and neck injuries in car

accident

> > > (89) and Lyme disease. My new Dr is Lambasting all my ills with

> > antibiotics,

> > > antivirals, anti fungals and thyroid med.

> > > Last year this time..i cracked the Y2K problem and was called KAK or

> > Y2K kay

> > > I wish you all moments of bliss and pauses from pain (((hug)))

> > >

> > > ---------------------------

[Guest guest]

Maureen,

You certainly have been through a lot. What seems to be missing is

pain control. Your doc has probably done as much as he possibly could.

There are other doctors who possible could do more, but no matter how much

surgery, you are still stuck with the basic issues of pain control It is

not unusual to feel pain at a place where what has been causing it has been

removed. radical microsurgery could *possibly* help some. but then you are

still left with other sources of pain.

It is most important that you get pain control. This is where the

focus needs to be, and you need to work on this with your doctor or other

doctors, if need be. And this can be a tough job.

Ken

At 12:38 AM 1/31/00 -0700, you wrote:

>No one needs to go throughthat much pain with not

>medication, because that is what they are measuring is pain.

----------

Turbin | Mailto:kturbin@... | webmaster@...

Net Biz Development | *Page me: http://www.mirabilis.com/17198172

Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/

[Guest guest]

Maureen,

You certainly have been through a lot. What seems to be missing is

pain control. Your doc has probably done as much as he possibly could.

There are other doctors who possible could do more, but no matter how much

surgery, you are still stuck with the basic issues of pain control It is

not unusual to feel pain at a place where what has been causing it has been

removed. radical microsurgery could *possibly* help some. but then you are

still left with other sources of pain.

It is most important that you get pain control. This is where the

focus needs to be, and you need to work on this with your doctor or other

doctors, if need be. And this can be a tough job.

Ken

At 12:38 AM 1/31/00 -0700, you wrote:

>No one needs to go throughthat much pain with not

>medication, because that is what they are measuring is pain.

----------

Turbin | Mailto:kturbin@... | webmaster@...

Net Biz Development | *Page me: http://www.mirabilis.com/17198172

Tel. (702) 312- 6888 | Fax | GetICQ http://www.icq.com/

[Guest guest]

HI maureen i had a fusion done and a discogram done .I will never do it

again surgery i had made me worse my hips lock up and pop right out of the

socket the pain is unbearable i have a brace , tens unit and pain meds.my

medal is still in my back they told me if they took it out now cause it fell

apart theres a ninty percent chance it would paralize me so i guess it stays

in there. somedays i cant even move i cant even wash my own dishes or

anything cat

[Guest guest]

Hi ,

I know all the tens machines , then the mens machines, the steroid shots. My

only problem is I had so many steroid shots ,my doc finally said no more. I was

getting a few weeks

releif, then they slowly did not work at all, finally the doc said no more. Only

my face had already mooned, or has a moon shape now. Doc just forgot to tell me

of that side effect.

I have pain all the time. I can not sit , walk or lay down for too long. I

positively can not sit on a couch. So you will know when I walk in your door and

sit on your coffee table.

I am almost at my end. I need releif. I can not keep popping the pain meds. Then

I put the milk in the dishwasher and the hot coffee pot in the frig. I have to

function. My home

life is still with school age kids and they need help with their math.

I just need releif.

Honestly that last surgery, I would just as soon die then do that again. I

swear.

I am going to call my doc and see where he can refer me for pain mangement in my

area, Omaha, Ne.

I am sorry you can not have the metal out. That surgery was like going to the

eye doctor compare to the surgery of putting it in. I did have great relief with

it out but that has

been almost 14 months ago and now I feel like I am back to square one.

I have a severe pinching pain across the buttom of my but , all the way across.

The pain shots down both legs. My back aches above the fusion. I can tell when I

am not keeping my

back straight.

I do have a brace to wear but it is formed , rigid plastic, that feels as hard

as metal. Just can not stand to wear it anymore.

I just need relief. Hot baths work well, soon I will have a whirlpool, we are

remodeling soon. Please God make it tomorrow.

Well I wish you felt better. Just remember I am with you in pain.

lol

It does help.

Maureen

Bentley wrote:

>

>

> HI maureen i had a fusion done and a discogram done .I will never do it

> again surgery i had made me worse my hips lock up and pop right out of the

> socket the pain is unbearable i have a brace , tens unit and pain meds.my

> medal is still in my back they told me if they took it out now cause it fell

> apart theres a ninty percent chance it would paralize me so i guess it stays

> in there. somedays i cant even move i cant even wash my own dishes or

> anything cat

>

> ---------------------------