I never knew I would come this far with RSD...

August 9, 1999

I never knew I would come this far with RSD. Besides being house bound as my

asthma has become so bad that I now use an oxygen concentrator machine at 4 1/2

liters per minute. I had an implant in January 4, 1999 and 3 days later I had a

heart catherization. I was in and out of the hospital for a while but my faith

helped me quite a birchen I thought everything was settling down except the

continuous

burning thruout my body. I felt as if someone placed a match inside of my skin

and was waving it back and forth in different places thruout my body at random

plus keeping a steady flow of other pain that lasts all the time and dips higher

and higher all the time. I am now suffering and have been suffering from

arthritis

in my hands and feet for about two years. I was taking gaper and within 40

minutes

of the first 2 pills which is 1,200 mgs , I was almost pain free. Then came

1999 and all of a sudden the DAypro doesn't work anymore. So now I am being

given an analgesic Opioid called Fentanyl. It is gradually dropping down the

immense pain in my hips and back and thighs and legs and back and neck and my

tongue. How an my tongue hurt so bad that I cannot even touch my teeth. I must

stay away from my teeth until the pain eventually calms down, now that the RSD

spreading even more. I have RSD for 4 years and it is full blown and the last

evaluation was that my upper and lower extremities were severely depressed.

It was suggested to me to go back into a wheel chair. I was in one 1 year after

diagnosis and got out with the use and exercise of a quad cane, now I am being

asked to progress even thorough I know my body is, now I must be reminded by the

wheelchair. I really need my faith to help carry me to my final destination and

be able to enjoy life with my children and granddaughters and my husband. Why

is this being taken away from me at this time?

Respectfully, Theresa Gratz

Recommended Posts