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Re: my mother

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I would question the Zyprexa. Everybody reacts differently, but my dad did

very poorly on it and improved greatly with Seroquel. Try again with the

hearing aid. I noticed that if my dad's wasn't in, or was turned off, he was

much more confused. Maybe since she gave up the glasses, you could convince

her to try the hearing aid again. Tell her she can only give up one at a

time! If she never had auditory hallucinations, it should be less scary for

her than the glasses. Good luck and God bless.

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dmaster

Welcome to the group. In regards to your mom, I would suggest a

different anti-psychotic/depressant. The Zyprexa had a terrible effect

on my dad, and his psychiatrist recommended we take him off it. In the

last few months of his life, we were stopping the drug, with it being

completely stopped only 2-3 weeks before he passed away. I wish it had

been stopped earlier...I feel it agrivated him more. Please know LBD

changes a persons personality. What could have been a very vibrant,

outgoing person may now be more withdrawn. It is such a strange disease

and fluctuates so often. I would suggest taking your mom out yourself.

Take her out for walks, icecream, or even just a ride. I used to do

this with my dad and it seemed he became a different person. When the

disease progressed to where I couldn't take dad out anymore, I would

walk the halls with him and just spend quality time with him...doing

whatever it was that made him happy at that time. I always used humor

in my visits as seeing him smile was a glorious gift. You are added to

my prayers and I hope to see more posts from you. Stay strong, ask

questions, and vent when ever you need to.

Sandie

Des Moines, IA

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Hi welcome to the group,

Maybe the doctor can try a different medication. Lot's of medications have

side effects. You didn't say if you mom has Lewy Body Disease? Is that why

she is in assisted living? Is she seeing a neurologist, is he familiar with

lewybody if that is what she has? Keep writing and tell us more about your

mom. There are a lot of people in this group that can share their experience

and wisdom with you and perhaps lead you down the right path. Also it sounds

like your mom is pretty depressed, not that anyone would blame her. Maybe

she can see a psychiatrist for another medication to help with this. Good

luck, we are all in this together. Your mom is lucky to have you in her

life, hang in there, and take care of yourself too. Shirley

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: my mother

>Date: Tue, 05 Nov 2002 10:46:32 -0000

>

>my mom is 78 years old and in assisted living. she has been

>hallucinating bad the last few weeks. sees bugs in hair and mice the

>size of cats jumping on her. dr doubled her zyprexa. my brother told

>her what she is seeing no one eles can see. so now she refuses to

>wear her glasses, a few months ago she decided she didn't want to

>wear her hearing aids anymore. all she does is walk the halls since

>can't hear tv and thinks everyone that lives there with her is

>crazy.feel so bad for her, try to visit her once a day for an hour,

>she refuses to go anywhere with me, refuses to join any activities,

>she does enjoy eating but not homes food, for a while all she would

>eat was mcdonalds. try and take her a treat as ofen as possible.can

>anyone think of anything i can do but just watch her waste away, if

>only she would make a friend but she is so selfish she doesn't want

>me including anyone in our visits or even speaking to all those crazy

>people. thanks for letting me ramble on, sure helps me to have

>someone to talk to.

>

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, you said your Mother improved on Seroquel. My Mom also takes

Seroquel.......67 and half MG morning and night. But her delusions and

hallucinations are still terrible,,,,,,,,daily! Dr had wanted to increase

the dosage to 75 MG twice a day but I refused it. Afraid it was too much.

What was your Mom's dose? Maybe she does need more, but her jerking

movements with the parkinson's get worse the more she takes.

Janet

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Actually, it's my dad. He also takes Aricept and Zoloft. His convulsions at

night were lessened when they reduced the Aricept and I know there was some

kind of a problem with Zyprexa, so they switched to Seroquel.

The problem is, the drugs to improve one problem exacerbate the other, and

everybody reacts differently.

I don't remember if you said you were dealing with a neurologist or what kind

of Doc?

Maybe a second opinion? Sometimes I think you might as well throw darts to

decide what to do, there is no rhyme or reason to it!

Hang in There:)

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