Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 Have been using Manganese and Vit B2 (both from Solgar), but I'd like to find out what other Manganese and B2 others are using? tia, emily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Have been using Manganese and Vit B2 (both from Solgar), but I'd like tofind out what other Manganese and B2 others are using? >>I use NOW B2, MinerAll for regular Maganese and Metabolics Ionic if I need to top up or chelating hth Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Thanks Mandi. Sorry but can you tell me where you get it from,Nutricentre don't seem to do these (apart from ionic manganese). >>I get it from the USA, I can always get you some, pretty cheap, do want to try Norman on some first and see how he goes? I use 100mg caps, that's a mighty dose, but like Anita's lad Sam needs LOTS Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Thanks Mandi. Sorry but can you tell me where you get it from,Nutricentre don't seem to do these (apart from ionic manganese). >>I get my Ioninc from Metabolics.co.uk, I think that's the one NC keep anyways Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Thanks Mandi. Sorry but can you tell me where you get it from, Nutricentre don't seem to do these (apart from ionic manganese). emily > > > In a message dated 27/10/2008 01:02:43 GMT Standard Time, > emilyscorer@... writes: > > Have been using Manganese and Vit B2 (both from Solgar), but I'd like to > find out what other Manganese and B2 others are using? > > > > > >>I use NOW B2, MinerAll for regular Maganese and Metabolics Ionic if I need > to top up or chelating > > > hth > > > Mandi x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 > > > In a message dated 27/10/2008 01:02:43 GMT Standard Time, > emilyscorer@... writes: > > Have been using Manganese and Vit B2 (both from Solgar), but I'd like to > find out what other Manganese and B2 others are using? > > > > > >>I use NOW B2, MinerAll for regular Maganese and Metabolics Ionic if I need > to top up or chelating > > > hth > > > Mandi x > Could you say for what reasons that you take manganese? I took some because I have poor hearing (sudden onset) but it did'nt seem to make much difference. Kenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 ds has low blood manganese levels and has epilepsy. Several research studies show that blood and hair manganese levels are low in epileptics, with the correlation that those typically having the highest seizure rates show the lowest levels of manganese. emily > > > > > > In a message dated 27/10/2008 01:02:43 GMT Standard Time, > > emilyscorer@ writes: > > > > Have been using Manganese and Vit B2 (both from Solgar), but I'd > like to > > find out what other Manganese and B2 others are using? > > > > > > > > > > >>I use NOW B2, MinerAll for regular Maganese and Metabolics Ionic > if I need > > to top up or chelating > > > > > > hth > > > > > > Mandi x > > > Could you say for what reasons that you take manganese? I took some > because I have poor hearing (sudden onset) but it did'nt seem to make > much difference. > > Kenny > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 > > > In a message dated 27/10/2008 17:52:31 GMT Standard Time, > emilyscorer@... writes: > > Thanks Mandi. Sorry but can you tell me where you get it from, > Nutricentre don't seem to do these (apart from ionic manganese). > > > > >>I get it from the USA, I can always get you some, pretty cheap, do want to > try Norman on some first and see how he goes? I use 100mg caps, that's a > mighty dose, but like Anita's lad Sam needs LOTS > > Mandi x > WOW! Yes that's a mighty dose, I'd like to try this but I'd probably give 1/4 capsule (25mg) first. Is Sam needing lots from blood levels being low? thanks, emily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 They must have tried supplementing them. Does it not help? Sally Scorer wrote: > > > ds has low blood manganese levels and has epilepsy. > > Several research studies show that blood and hair manganese levels are > low in epileptics, with the correlation that those typically having the > highest seizure rates show the lowest levels of manganese. > > emily > > > > > > > > > > > In a message dated 27/10/2008 01:02:43 GMT Standard Time, > > > emilyscorer@ writes: > > > > > > Have been using Manganese and Vit B2 (both from Solgar), but I'd > > like to > > > find out what other Manganese and B2 others are using? > > > > > > > > > > > > > > > >>I use NOW B2, MinerAll for regular Maganese and Metabolics Ionic > > if I need > > > to top up or chelating > > > > > > > > > hth > > > > > > > > > Mandi x > > > > > Could you say for what reasons that you take manganese? I took some > > because I have poor hearing (sudden onset) but it did'nt seem to make > > much difference. > > > > Kenny > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.175 / Virus Database: 270.8.4/1752 - Release Date: 28/10/2008 10:04 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Hi Sally, I started supplementing the manganese (on my own) at very low dosage, before we had the bloods levels done. I can't say for certain that it has had an effect or not - for reasons that ds has really complex epilepsy and a whole host of other things going on (myelination problems, chromosome deletion, and now more recently possibility of identifying a metabolic/mito condition - somehow hope that it is not!). It might also be that he needs a higher dosage of the manganese????? But I have also read that although manganese is low in epileptics, when it is supplemented there has not been any clear evidence/research(?) to show/indicate that it has helped control/reduce the seizures. ds is usually one to show very, very tiny improvements (hard to see kind of thing amongst everything else going on). The most definite improvement seizure wise I will always say was the P5P and magnesium. emily > > > > > > > > > > > > In a message dated 27/10/2008 01:02:43 GMT Standard Time, > > > > emilyscorer@ writes: > > > > > > > > Have been using Manganese and Vit B2 (both from Solgar), but I'd > > > like to > > > > find out what other Manganese and B2 others are using? > > > > > > > > > > > > > > > > > > > > >>I use NOW B2, MinerAll for regular Maganese and Metabolics Ionic > > > if I need > > > > to top up or chelating > > > > > > > > > > > > hth > > > > > > > > > > > > Mandi x > > > > > > > Could you say for what reasons that you take manganese? I took some > > > because I have poor hearing (sudden onset) but it did'nt seem to make > > > much difference. > > > > > > Kenny > > > > > > > > > ------------------------------------------------------------------------ > > > > > > No virus found in this incoming message. > > Checked by AVG - http://www.avg.com > > Version: 8.0.175 / Virus Database: 270.8.4/1752 - Release Date: 28/10/2008 10:04 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 thanks . I've seen this before -- supplementation not helping a deficit. I suppose that it's a metabolic block rather than a shortage in the diet. I'll look for some research. Let me know off-list how the home ed is going? What made you do it? Sally Scorer wrote: > > > Hi Sally, > > I started supplementing the manganese (on my own) at very low dosage, > before we had the bloods levels done. I can't say for certain that > it has had an effect or not - for reasons that ds has really complex > epilepsy and a whole host of other things going on (myelination > problems, chromosome deletion, and now more recently possibility of > identifying a metabolic/mito condition - somehow hope that it is not!). > It might also be that he needs a higher dosage of the manganese????? > But I have also read that although manganese is low in epileptics, when > it is supplemented there has not been any clear evidence/research(?) to > show/indicate that it has helped control/reduce the seizures. > > ds is usually one to show very, very tiny improvements (hard to see kind > of thing amongst everything else going on). The most definite > improvement seizure wise I will always say was the P5P and magnesium. > > emily > > > > > > > > > > > > > > > > > In a message dated 27/10/2008 01:02:43 GMT Standard Time, > > > > > emilyscorer@ writes: > > > > > > > > > > Have been using Manganese and Vit B2 (both from Solgar), but I'd > > > > like to > > > > > find out what other Manganese and B2 others are using? > > > > > > > > > > > > > > > > > > > > > > > > > >>I use NOW B2, MinerAll for regular Maganese and Metabolics > Ionic > > > > if I need > > > > > to top up or chelating > > > > > > > > > > > > > > > hth > > > > > > > > > > > > > > > Mandi x > > > > > > > > > Could you say for what reasons that you take manganese? I took > some > > > > because I have poor hearing (sudden onset) but it did'nt seem to > make > > > > much difference. > > > > > > > > Kenny > > > > > > > > > > > > > > ---------------------------------------------------------- > > > > > > > > > No virus found in this incoming message. > > > Checked by AVG - http://www.avg.com <http://www.avg.com> > > > Version: 8.0.175 / Virus Database: 270.8.4/1752 - Release Date: > 28/10/2008 10:04 > > > > > > > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.175 / Virus Database: 270.8.5/1755 - Release Date: 29/10/2008 17:27 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 thanks . I've seen this before -- supplementation not helping a deficit. I suppose that it's a metabolic block rather than a shortage in the diet. I'll look for some research. Let me know off-list how the home ed is going? What made you do it? Sally Scorer wrote: > > > Hi Sally, > > I started supplementing the manganese (on my own) at very low dosage, > before we had the bloods levels done. I can't say for certain that > it has had an effect or not - for reasons that ds has really complex > epilepsy and a whole host of other things going on (myelination > problems, chromosome deletion, and now more recently possibility of > identifying a metabolic/mito condition - somehow hope that it is not!). > It might also be that he needs a higher dosage of the manganese????? > But I have also read that although manganese is low in epileptics, when > it is supplemented there has not been any clear evidence/research(?) to > show/indicate that it has helped control/reduce the seizures. > > ds is usually one to show very, very tiny improvements (hard to see kind > of thing amongst everything else going on). The most definite > improvement seizure wise I will always say was the P5P and magnesium. > > emily > > > > > > > > > > > > > > > > > In a message dated 27/10/2008 01:02:43 GMT Standard Time, > > > > > emilyscorer@ writes: > > > > > > > > > > Have been using Manganese and Vit B2 (both from Solgar), but I'd > > > > like to > > > > > find out what other Manganese and B2 others are using? > > > > > > > > > > > > > > > > > > > > > > > > > >>I use NOW B2, MinerAll for regular Maganese and Metabolics > Ionic > > > > if I need > > > > > to top up or chelating > > > > > > > > > > > > > > > hth > > > > > > > > > > > > > > > Mandi x > > > > > > > > > Could you say for what reasons that you take manganese? I took > some > > > > because I have poor hearing (sudden onset) but it did'nt seem to > make > > > > much difference. > > > > > > > > Kenny > > > > > > > > > > > > > > ---------------------------------------------------------- > > > > > > > > > No virus found in this incoming message. > > > Checked by AVG - http://www.avg.com <http://www.avg.com> > > > Version: 8.0.175 / Virus Database: 270.8.4/1752 - Release Date: > 28/10/2008 10:04 > > > > > > > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.175 / Virus Database: 270.8.5/1755 - Release Date: 29/10/2008 17:27 > > Quote Link to comment Share on other sites More sharing options...
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