Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 The neurologist who diagnosed my dad said the progression rate for LBD is much quicker than Alzheimers. He said a progression rate of 5-7 years, although everyone will go through this at a different rate. My heart truly goes out to you Mai-Liis. Plus, the social worker called me yesterday to talk about the upcoming psychiatrist meeting. She said she knows my concerns about being present when the psych. sees my dad. I told her that I WILL BE THERE. She said sometimes the psych. will want to meet with the patient alone, as sometimes the patient will " act " differently when family is around. After much forcing, I ended with " Listen, I am power of attorney over dads medical decisions, I WILL BE in the meeting the WHOLE time or there WON'T be a meeting! Now are we clear? " Of course I told her a few other things and feel we were under a mutual understanding by the time we hung up......arghhhhhh!!! Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Cheryl Thank you for adding a positive twist to our upcoming psychiatrist meeting. I do agree somewhat, guess it has just been in the approach of how the nh staff has brought this information to me. I appreciate your thoughts and you have eased my mind!! Thanks again. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Cheryl Thank you for adding a positive twist to our upcoming psychiatrist meeting. I do agree somewhat, guess it has just been in the approach of how the nh staff has brought this information to me. I appreciate your thoughts and you have eased my mind!! Thanks again. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Sandie, I have read that the progression rate is 5-7 years from diagnosis....not from onset. This makes sense to me, as who would know time of onset? The disease is not that clear in its manifestations in the beginning....plus there is always the denial..... From getting to know a little about the histories of the folks people here are caregiving, I get the impression that those who manifested with Parkinson's symptoms before dementia have a different illness.....They seem to progress much more slowly, and I even notice a difference in the caregiver complaints. Good for you for standing by your guns re the psychiatric evaluation. I might feel differently IF they all knew more about LBD!!! Mai-Liis The neurologist who diagnosed my dad said the progression rate for LBD is much quicker than Alzheimers. He said a progression rate of 5-7 years, although everyone will go through this at a different rate. My heart truly goes out to you Mai-Liis. Plus, the social worker called me yesterday to talk about the upcoming psychiatrist meeting. She said she knows my concerns about being present when the psych. sees my dad. I told her that I WILL BE THERE. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Question, Who made the comment about the end stages of LBD, that the LO's dementia becomes stronger. Mom and I have noticed that dad is more and more in the pretend world, by that I mean he is busy, busy, doing things and talking to the air, etc. Note he has done this from time to time but comes back to his normal, but has been in this stage for about three to four weeks without coming back to his normal. Can anyone give me some insight? Thanks Debbie C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2002 Report Share Posted June 11, 2002 Question, Who made the comment about the end stages of LBD, that the LO's dementia becomes stronger. Mom and I have noticed that dad is more and more in the pretend world, by that I mean he is busy, busy, doing things and talking to the air, etc. Note he has done this from time to time but comes back to his normal, but has been in this stage for about three to four weeks without coming back to his normal. Can anyone give me some insight? Thanks Debbie C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2002 Report Share Posted June 14, 2002 Yes, Bob and Cheryl definitely go to the top in the Witty Department. I don't know which of them wins the prize...... Bob, who tried to convince Cheryl that he got wet when the dry creek-bed flooded, or Cheryl flying Depends. It feels so very good to have some laughter in all this.....and I respectfully suggest having a " Creative LO " and " Witty Caregiver " contest as a regular feature of this site. Mai-Liis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2002 Report Share Posted June 15, 2002 Mai Liis, I would agree we can use all the laughter we can get here. Unfortunately, when in the middle of it I wonder if Cheryl thought it was funny. I would need to just tell stories and hope someone found something funny. Like the time in the middle of the night when I was about to kill my mother. She would not leave the living room and go to bed and it was to late to call anyone. I called 911! The poor woman who answered didn't know what to do with me. She asked if I wanted an ambulance. I told her no I wanted my mother to go to sleep and I couldn't get her in bed. She finally sent the police over. It was a relief for me just to have someone here. Then he started to REASON with my mother and why didn't she go to bed, couldn't she see how tired her daughter was! She smiled at him nice as pie and said, " We weren't drinking {alcohol} either. " Almost as if she wanted him to think I was. And she thought that one up all by herself. I hadn't has a drink in my house for her or I in a long time. By now I knew he was as useless as I was, but between the two of us, I convinced her to show him the awful room where she had to sleep. In she went. And he convinced her to just try to lay down. I think that was the last time I ever pushed the issue of her going to bed. When she stayed up, I would lay down on the couch and pretend to sleep. It drove her crazy to not be doing what I was doing! And I wouldn't talk to her and pretty soon she was calling me and saying she was tired and should go to bed. Believe me, none of that was funny at the time. Especially the alcohol part. Donna A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com Quote Link to comment Share on other sites More sharing options...
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