Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Louis (Philip's younger brother) has been attending Beavers (pre- Cubs) for about 9 months. Last night Apache Beaver (group leader) rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas party (she knows all about Philip and his autism). We went along tonight and it was bloody marvellous - Philip coped really well with all the noise (35 boys!!) and chaos and games over a 2 hour period, had a whale of a time and was indistinguishable from his peers (except for the paranoid mother lurking furtively in the background). I think that is about the best present I will get this Xmas and I couldn't ask for more He's still a long way off the point where his autism is no longer affecting his quality of life but what a long way he has come At the end of the party he asked if he could join Beavers and good old Apache Beaver has jumped him up the queue to start in January. Zoe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 right on Philip!!!!! what a Christmas pressie! > > Louis (Philip's younger brother) has been attending Beavers (pre- > Cubs) for about 9 months. Last night Apache Beaver (group leader) > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > party (she knows all about Philip and his autism). > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > I think that is about the best present I will get this Xmas and I > couldn't ask for more > > He's still a long way off the point where his autism is no longer > affecting his quality of life but what a long way he has come > > At the end of the party he asked if he could join Beavers and good > old Apache Beaver has jumped him up the queue to start in January. > > Zoe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Zoe That is such great news. Well done to Philip. Christmas has come early for sure. Enjoy. Lots love Helen x > > Louis (Philip's younger brother) has been attending Beavers (pre- > Cubs) for about 9 months. Last night Apache Beaver (group leader) > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > party (she knows all about Philip and his autism). > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > I think that is about the best present I will get this Xmas and I > couldn't ask for more > > He's still a long way off the point where his autism is no longer > affecting his quality of life but what a long way he has come > > At the end of the party he asked if he could join Beavers and good > old Apache Beaver has jumped him up the queue to start in January. > > Zoe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Zoe That is such great news. Well done to Philip. Christmas has come early for sure. Enjoy. Lots love Helen x > > Louis (Philip's younger brother) has been attending Beavers (pre- > Cubs) for about 9 months. Last night Apache Beaver (group leader) > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > party (she knows all about Philip and his autism). > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > I think that is about the best present I will get this Xmas and I > couldn't ask for more > > He's still a long way off the point where his autism is no longer > affecting his quality of life but what a long way he has come > > At the end of the party he asked if he could join Beavers and good > old Apache Beaver has jumped him up the queue to start in January. > > Zoe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 How wonderful for you and Philip.Congratulations to both of you. Sharon. > > Louis (Philip's younger brother) has been attending Beavers (pre- > Cubs) for about 9 months. Last night Apache Beaver (group leader) > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > party (she knows all about Philip and his autism). > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > I think that is about the best present I will get this Xmas and I > couldn't ask for more > > He's still a long way off the point where his autism is no longer > affecting his quality of life but what a long way he has come > > At the end of the party he asked if he could join Beavers and good > old Apache Beaver has jumped him up the queue to start in January. > > Zoe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 How wonderful for you and Philip.Congratulations to both of you. Sharon. > > Louis (Philip's younger brother) has been attending Beavers (pre- > Cubs) for about 9 months. Last night Apache Beaver (group leader) > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > party (she knows all about Philip and his autism). > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > I think that is about the best present I will get this Xmas and I > couldn't ask for more > > He's still a long way off the point where his autism is no longer > affecting his quality of life but what a long way he has come > > At the end of the party he asked if he could join Beavers and good > old Apache Beaver has jumped him up the queue to start in January. > > Zoe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 wow Zoe that is fantastic! Santa came early )))) nx > > Louis (Philip's younger brother) has been attending Beavers (pre- > Cubs) for about 9 months. Last night Apache Beaver (group leader) > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > party (she knows all about Philip and his autism). > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > I think that is about the best present I will get this Xmas and I > couldn't ask for more > > He's still a long way off the point where his autism is no longer > affecting his quality of life but what a long way he has come > > At the end of the party he asked if he could join Beavers and good > old Apache Beaver has jumped him up the queue to start in January. > > Zoe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 wow Zoe that is fantastic! Santa came early )))) nx > > Louis (Philip's younger brother) has been attending Beavers (pre- > Cubs) for about 9 months. Last night Apache Beaver (group leader) > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > party (she knows all about Philip and his autism). > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > I think that is about the best present I will get this Xmas and I > couldn't ask for more > > He's still a long way off the point where his autism is no longer > affecting his quality of life but what a long way he has come > > At the end of the party he asked if he could join Beavers and good > old Apache Beaver has jumped him up the queue to start in January. > > Zoe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Zoe,This is fantastic!  I went to a beavers group a couple of months back and there was no way Callum could cope with that amount of noise and level of social engagement, so I know what an achievement 2 hours exposure to this is!!Where are you on RDI?  We've had to take a step back, but glad we have because I'm finding things clicking into place a lot more now.Well done to you and .Elaine x wow Zoe that is fantastic! Santa came early )))) nx  > > Louis (Philip's younger brother) has been attending Beavers (pre- > Cubs) for about 9 months.  Last night Apache Beaver (group leader) > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > party (she knows all about Philip and his autism). > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > I think that is about the best present I will get this Xmas and I > couldn't ask for more > > He's still a long way off the point where his autism is no longer > affecting his quality of life but what a long way he has come > > At the end of the party he asked if he could join Beavers and good > old Apache Beaver has jumped him up the queue to start in January. > > Zoe >      e-mail provided by Moose Internet Services http://www.moose.co.uk/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Hi Elaine We have had major lurgi in our house over the last 3 weeks so I'm afraid RDI has taken a bit of a back seat: I have been the only one to escape (so far - will probably succumb just in time for Xmas) and I have been running around like a headless chicken - it really makes a difference when one parent is out of the picture We are just going into stage 1 RDI.......but Philip has a spikey profile and has some splinter abilities from other more advanced levels, so I guess that kind of helps things along. I am planning to have him re-ADOS'd in March, so it will be really interesting so see his score...although I know this shouldnt be used in isolation, its still a good measure of where someone is on the spectrum. I think taking a step back is good - I know others who have done that and as you say, things have really fallen into place for them. It's not about how fast we get there, its about the journey we take. Did you see the post from the new Consultant in Training on the RDI list? Am really encouraged that he comes with a background in providing autism specific services for adults (and getting out coz he was so cheesed off with it). Interesting stuff. Zoe x > >> > > >> > Louis (Philip's younger brother) has been attending Beavers (pre- > >> > Cubs) for about 9 months. Last night Apache Beaver (group leader) > >> > rang to invite Philip to the joint Beavers, Cubs and Scouts Xmas > >> > party (she knows all about Philip and his autism). > >> > > >> > We went along tonight and it was bloody marvellous - Philip coped > >> > really well with all the noise (35 boys!!) and chaos and games over > >> > a 2 hour period, had a whale of a time and was indistinguishable > >> > from his peers (except for the paranoid mother lurking furtively in > >> > the background). > >> > > >> > I think that is about the best present I will get this Xmas and I > >> > couldn't ask for more > >> > > >> > He's still a long way off the point where his autism is no longer > >> > affecting his quality of life but what a long way he has come > >> > > >> > At the end of the party he asked if he could join Beavers and good > >> > old Apache Beaver has jumped him up the queue to start in January. > >> > > >> > Zoe > >> > > >> > >> > >> > > > > e-mail provided by Moose Internet Services > > http://www.moose.co.uk/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 We went along tonight and it was bloody marvellous - Philip coped really well with all the noise (35 boys!!) and chaos and games over a 2 hour period, had a whale of a time and was indistinguishable from his peers (except for the paranoid mother lurking furtively in the background). >>This is awesome Zoe, do you think its all RDI or is biomed having some effect these days? Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 We went along tonight and it was bloody marvellous - Philip coped really well with all the noise (35 boys!!) and chaos and games over a 2 hour period, had a whale of a time and was indistinguishable from his peers (except for the paranoid mother lurking furtively in the background). >>This is awesome Zoe, do you think its all RDI or is biomed having some effect these days? Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Hi Zoe, Poor you! Hope they get well soon. Be interesting to see how P does in his new ADOS rating - let us know! Callum was in the Christmas play this year - first time! Said his line perfectly, sat through 2 hours of other children singing and dancing (God it was awful, first time I've ever been to a school Christmas play before!!). Also, sat through two hours of carol service (doubly awful). I was so proud:-0 I think RDI is making a BIG difference - see my comments on the RDI site about stories of success. Yes, just saw that post. That's the thing that haunts us all - what happens when they are adults, and maybe we're not around. I've had people say the 'villages' are really good, however, they've not been parents of children with autism! - so probably a little less discerning than us... Will be very interested to follow n's future posts. Elaine p.s. don't forget to send your address, I want to send you that book I was talking about. > Hi Elaine > > We have had major lurgi in our house over the last 3 weeks so I'm > afraid RDI has taken a bit of a back seat: I have been the only one > to escape (so far - will probably succumb just in time for Xmas) and > I have been running around like a headless chicken - it really makes > a difference when one parent is out of the picture > > We are just going into stage 1 RDI.......but Philip has a spikey > profile and has some splinter abilities from other more advanced > levels, so I guess that kind of helps things along. > > I am planning to have him re-ADOS'd in March, so it will be really > interesting so see his score...although I know this shouldnt be used > in isolation, its still a good measure of where someone is on the > spectrum. > > I think taking a step back is good - I know others who have done > that and as you say, things have really fallen into place for them. > It's not about how fast we get there, its about the journey we take. > > Did you see the post from the new Consultant in Training on the RDI > list? Am really encouraged that he comes with a background in > providing autism specific services for adults (and getting out coz > he was so cheesed off with it). Interesting stuff. > > Zoe x > > > >>>>> >>>>> Louis (Philip's younger brother) has been attending Beavers > (pre- >>>>> Cubs) for about 9 months. Last night Apache Beaver (group > leader) >>>>> rang to invite Philip to the joint Beavers, Cubs and Scouts > Xmas >>>>> party (she knows all about Philip and his autism). >>>>> >>>>> We went along tonight and it was bloody marvellous - Philip > coped >>>>> really well with all the noise (35 boys!!) and chaos and > games over >>>>> a 2 hour period, had a whale of a time and was > indistinguishable >>>>> from his peers (except for the paranoid mother lurking > furtively in >>>>> the background). >>>>> >>>>> I think that is about the best present I will get this Xmas > and I >>>>> couldn't ask for more >>>>> >>>>> He's still a long way off the point where his autism is no > longer >>>>> affecting his quality of life but what a long way he has > come >>>>> >>>>> At the end of the party he asked if he could join Beavers and > good >>>>> old Apache Beaver has jumped him up the queue to start in > January. >>>>> >>>>> Zoe >>>>> >>>> >>>> >>>> >>> >>> e-mail provided by Moose Internet Services >>> http://www.moose.co.uk/ >> > > > > ------------------------------------ > > DISCLAIMER > No information contained in this post is to be construed as medical > advice. If you need medical advice, please seek it from a suitably > qualified practitioner. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Hi Zoe, Poor you! Hope they get well soon. Be interesting to see how P does in his new ADOS rating - let us know! Callum was in the Christmas play this year - first time! Said his line perfectly, sat through 2 hours of other children singing and dancing (God it was awful, first time I've ever been to a school Christmas play before!!). Also, sat through two hours of carol service (doubly awful). I was so proud:-0 I think RDI is making a BIG difference - see my comments on the RDI site about stories of success. Yes, just saw that post. That's the thing that haunts us all - what happens when they are adults, and maybe we're not around. I've had people say the 'villages' are really good, however, they've not been parents of children with autism! - so probably a little less discerning than us... Will be very interested to follow n's future posts. Elaine p.s. don't forget to send your address, I want to send you that book I was talking about. > Hi Elaine > > We have had major lurgi in our house over the last 3 weeks so I'm > afraid RDI has taken a bit of a back seat: I have been the only one > to escape (so far - will probably succumb just in time for Xmas) and > I have been running around like a headless chicken - it really makes > a difference when one parent is out of the picture > > We are just going into stage 1 RDI.......but Philip has a spikey > profile and has some splinter abilities from other more advanced > levels, so I guess that kind of helps things along. > > I am planning to have him re-ADOS'd in March, so it will be really > interesting so see his score...although I know this shouldnt be used > in isolation, its still a good measure of where someone is on the > spectrum. > > I think taking a step back is good - I know others who have done > that and as you say, things have really fallen into place for them. > It's not about how fast we get there, its about the journey we take. > > Did you see the post from the new Consultant in Training on the RDI > list? Am really encouraged that he comes with a background in > providing autism specific services for adults (and getting out coz > he was so cheesed off with it). Interesting stuff. > > Zoe x > > > >>>>> >>>>> Louis (Philip's younger brother) has been attending Beavers > (pre- >>>>> Cubs) for about 9 months. Last night Apache Beaver (group > leader) >>>>> rang to invite Philip to the joint Beavers, Cubs and Scouts > Xmas >>>>> party (she knows all about Philip and his autism). >>>>> >>>>> We went along tonight and it was bloody marvellous - Philip > coped >>>>> really well with all the noise (35 boys!!) and chaos and > games over >>>>> a 2 hour period, had a whale of a time and was > indistinguishable >>>>> from his peers (except for the paranoid mother lurking > furtively in >>>>> the background). >>>>> >>>>> I think that is about the best present I will get this Xmas > and I >>>>> couldn't ask for more >>>>> >>>>> He's still a long way off the point where his autism is no > longer >>>>> affecting his quality of life but what a long way he has > come >>>>> >>>>> At the end of the party he asked if he could join Beavers and > good >>>>> old Apache Beaver has jumped him up the queue to start in > January. >>>>> >>>>> Zoe >>>>> >>>> >>>> >>>> >>> >>> e-mail provided by Moose Internet Services >>> http://www.moose.co.uk/ >> > > > > ------------------------------------ > > DISCLAIMER > No information contained in this post is to be construed as medical > advice. If you need medical advice, please seek it from a suitably > qualified practitioner. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I am so pleased for you Zoe, onwards and upwards. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I am so pleased for you Zoe, onwards and upwards. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I see Philip as a non-responder to (pre-chelation) biomed - I think there are certain kids in whom it doesnt engender dramatic responses and my theory about this is that their problems are really really deep seated.......P's exposure to mercury was foetal exposure - the worst time with the most potential to the most damage. I think it may be easier to 'unpick' the damage if what triggered the autism occurred after a child is born eg a virus as a toddler (immune system and brain development much more advanced and able to deal with insult).....but that is just my theory and I have no evidence for it other than looking at the types of kids that respond best to biomed. >>I think you are right but I'm glad his body is at least accepting some biomed now even without the dramatic gains. Go RDI Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 I see Philip as a non-responder to (pre-chelation) biomed - I think there are certain kids in whom it doesnt engender dramatic responses and my theory about this is that their problems are really really deep seated.......P's exposure to mercury was foetal exposure - the worst time with the most potential to the most damage. I think it may be easier to 'unpick' the damage if what triggered the autism occurred after a child is born eg a virus as a toddler (immune system and brain development much more advanced and able to deal with insult).....but that is just my theory and I have no evidence for it other than looking at the types of kids that respond best to biomed. >>I think you are right but I'm glad his body is at least accepting some biomed now even without the dramatic gains. Go RDI Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2008 Report Share Posted December 20, 2008 Hi Mandi I wish I could say it was biomed but I am certain it's RDI. I think biomed can do an awful lot - most certainly if you can get to chelation, but unfortunately we can't go there :( Thats not to say that I dont think biomed has helped - I think it is working away positively in the background (but what it is doing isn't particularly obvious on the surface). We won't be stopping it and we are going to try natural chelation (I hear your groan lol - but its better than nothing imho). I see Philip as a non-responder to (pre-chelation) biomed - I think there are certain kids in whom it doesnt engender dramatic responses and my theory about this is that their problems are really really deep seated.......P's exposure to mercury was foetal exposure - the worst time with the most potential to the most damage. I think it may be easier to 'unpick' the damage if what triggered the autism occurred after a child is born eg a virus as a toddler (immune system and brain development much more advanced and able to deal with insult).....but that is just my theory and I have no evidence for it other than looking at the types of kids that respond best to biomed. The reason I am certain its RDI that is making big differences is that I have really steeped myself in the theory of RDI and I can see exactly where it is now playing itself out in the way Philip is responding. Eg you can't get joint attention developing through anything else but human interaction - guided participation, to be specific.......and if you havent got joint attention you wont get reciprocal social interaction and eventually, theory of mind. Philip still has a long long way to go but I do feel we are on the right track with RDI. Zoe x > > > In a message dated 16/12/2008 20:28:11 GMT Standard Time, > zoet@... writes: > > We went along tonight and it was bloody marvellous - Philip coped > really well with all the noise (35 boys!!) and chaos and games over > a 2 hour period, had a whale of a time and was indistinguishable > from his peers (except for the paranoid mother lurking furtively in > the background). > > > > >>This is awesome Zoe, do you think its all RDI or is biomed having some > effect these days? > > Mandi x > Quote Link to comment Share on other sites More sharing options...
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