Re: Nicotine patch - update on my sons progress

[Guest guest]

how wonderful, how just great. I'm so pleased for you. Did you get any

problems when you started -- hyperness etc? and how fast did you build

up? I'll do some more research. I feel an overwhelming urge to try myself.

The sleeping is a bit sad though. I like sleep, you could try melatonin.

xx Sally

bty462988 wrote:

>

> Hi,

>

> Just wanted to post an update on my 6 yr old sons progress on Nicotine

> patches. He is up

> to one patch a day and has been for over a fortnight. We have been

> using the patches for

> a month on Saturday.

>

> So far we have seen a lot of improvements!! and these are in all areas

> of his development.

> His school (he attends a mainstream school 3 afternoons a week) have

> noticed a change in

> him and they are unaware of the patches, and his team of home tutors

> are seeing big

> improvements across the board. My son (pretty much non verbal) is

> vocalising better and

> has been more spontaneous with his words, mands and tacts. His self

> help skills have

> improved (eg has taken himself to the toilet several times in the last

> week and he doesn't

> normally do this) He is using more words in general and showing a lot

> more concentration

> (eg. in his last session at school they decided the whole school were

> going to watch a dvd

> in the hall - and he sat through nearly an hour and half of it

> watching!!!!!) He is making us

> more aware of his wants (he is now saying no and yes which he wasn't

> before and doing

> little things like he spontaneously requested a " different " pen at

> school when given a

> green one, then he picked up a blue pen! he is seems more actively

> involved in things too,

> his headmistress commented on how much he seemed to enjoy the

> pantomime they had

> at the school last week and how engaged in it he was too!!

>

> His bowel movements and consistency etc, seem to have improved in the

> last week also,

> and his stomach is looking really normal - instead of distended! We

> have been on the SCD

> diet for over a year and we still see bloating.

>

> Anyway - I am very pleased so far...they are little moves, but in the

> right direction.....

>

> On the negative side, we have seen a decline in sleep, but more so in

> him going off to

> sleep than anything else..He is seeming to stay asleep ok once he is

> asleep, and even

> sleeping in later! but this is probably because he is taking so much

> longer to get off!!

>

> Sophie x

>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.18/1848 - Release Date: 14/12/2008

12:28

>

>

[Guest guest]

that is fantastic!! So glad for you, keep those improvements coming ))

natasa x

Hi,

Just wanted to post an update on my 6 yr old sons progress on Nicotine patches. He is up

to one patch a day and has been for over a fortnight. We have been using the patches for

a month on Saturday.

So far we have seen a lot of improvements!! and these are in all areas of his development.

His school (he attends a mainstream school 3 afternoons a week) have noticed a change in

him and they are unaware of the patches, and his team of home tutors are seeing big

improvements across the board. My son (pretty much non verbal) is vocalising better and

has been more spontaneous with his words, mands and tacts. His self help skills have

improved (eg has taken himself to the toilet several times in the last week and he doesn't

normally do this) He is using more words in general and showing a lot more concentration

(eg. in his last session at school they decided the whole school were going to watch a dvd

in the hall - and he sat through nearly an hour and half of it watching!!!!!) He is making us

more aware of his wants (he is now saying no and yes which he wasn't before and doing

little things like he spontaneously requested a " different " pen at school when given a

green one, then he picked up a blue pen! he is seems more actively involved in things too,

his headmistress commented on how much he seemed to enjoy the pantomime they had

at the school last week and how engaged in it he was too!!

His bowel movements and consistency etc, seem to have improved in the last week also,

and his stomach is looking really normal - instead of distended! We have been on the SCD

diet for over a year and we still see bloating.

Anyway - I am very pleased so far...they are little moves, but in the right direction.....

On the negative side, we have seen a decline in sleep, but more so in him going off to

sleep than anything else..He is seeming to stay asleep ok once he is asleep, and even

sleeping in later! but this is probably because he is taking so much longer to get off!!

Sophie x

[Guest guest]

Hi Sophie,

Wonderful! Can I just ask why you decided to try nicotine. Were your

inflammation levels high? My ds neopt/biopt is way out of range so it

looks like we have serious inflammation issues. We are due to start

patches tomorrow. 1/4 of a 7mg patch. We are to take it off an hour

before bed to help with settling. Also, hubby said when he was on

patches, if he forgot to take it off he'd have the most vivid weird

dreams. I've also heard they can cause sleep walking!

Again, great news!

jane

x

p.s wish us luck!

>

> Hi,

>

> Just wanted to post an update on my 6 yr old sons progress on

Nicotine patches. He is up

> to one patch a day and has been for over a fortnight. We have been

using the patches for

> a month on Saturday.

>

> So far we have seen a lot of improvements!! and these are in all

areas of his development.

> His school (he attends a mainstream school 3 afternoons a week)

have noticed a change in

> him and they are unaware of the patches, and his team of home

tutors are seeing big

> improvements across the board. My son (pretty much non verbal) is

vocalising better and

> has been more spontaneous with his words, mands and tacts. His self

help skills have

> improved (eg has taken himself to the toilet several times in the

last week and he doesn't

> normally do this) He is using more words in general and showing a

lot more concentration

> (eg. in his last session at school they decided the whole school

were going to watch a dvd

> in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

> more aware of his wants (he is now saying no and yes which he

wasn't before and doing

> little things like he spontaneously requested a " different " pen at

school when given a

> green one, then he picked up a blue pen! he is seems more actively

involved in things too,

> his headmistress commented on how much he seemed to enjoy the

pantomime they had

> at the school last week and how engaged in it he was too!!

>

> His bowel movements and consistency etc, seem to have improved in

the last week also,

> and his stomach is looking really normal - instead of distended! We

have been on the SCD

> diet for over a year and we still see bloating.

>

> Anyway - I am very pleased so far...they are little moves, but in

the right direction.....

>

> On the negative side, we have seen a decline in sleep, but more so

in him going off to

> sleep than anything else..He is seeming to stay asleep ok once he

is asleep, and even

> sleeping in later! but this is probably because he is taking so

much longer to get off!!

>

> Sophie x

>

[Guest guest]

Hi Jane,

I choose to do the patches as I consult with Dr Bradstreet and he told us how

well other

kids with my sons issues were doing on the patches so I looked into them, and

yes my

sons test results showed major inflammation also.

Havent been told to remove them an hour before bed so I am going to try that,

thanks!

Hope you see good things with your child!!!

All the best,

Sophie x

> >

> > Hi,

> >

> > Just wanted to post an update on my 6 yr old sons progress on

> Nicotine patches. He is up

> > to one patch a day and has been for over a fortnight. We have been

> using the patches for

> > a month on Saturday.

> >

> > So far we have seen a lot of improvements!! and these are in all

> areas of his development.

> > His school (he attends a mainstream school 3 afternoons a week)

> have noticed a change in

> > him and they are unaware of the patches, and his team of home

> tutors are seeing big

> > improvements across the board. My son (pretty much non verbal) is

> vocalising better and

> > has been more spontaneous with his words, mands and tacts. His self

> help skills have

> > improved (eg has taken himself to the toilet several times in the

> last week and he doesn't

> > normally do this) He is using more words in general and showing a

> lot more concentration

> > (eg. in his last session at school they decided the whole school

> were going to watch a dvd

> > in the hall - and he sat through nearly an hour and half of it

> watching!!!!!) He is making us

> > more aware of his wants (he is now saying no and yes which he

> wasn't before and doing

> > little things like he spontaneously requested a " different " pen at

> school when given a

> > green one, then he picked up a blue pen! he is seems more actively

> involved in things too,

> > his headmistress commented on how much he seemed to enjoy the

> pantomime they had

> > at the school last week and how engaged in it he was too!!

> >

> > His bowel movements and consistency etc, seem to have improved in

> the last week also,

> > and his stomach is looking really normal - instead of distended! We

> have been on the SCD

> > diet for over a year and we still see bloating.

> >

> > Anyway - I am very pleased so far...they are little moves, but in

> the right direction.....

> >

> > On the negative side, we have seen a decline in sleep, but more so

> in him going off to

> > sleep than anything else..He is seeming to stay asleep ok once he

> is asleep, and even

> > sleeping in later! but this is probably because he is taking so

> much longer to get off!!

> >

> > Sophie x

> >

>

[Guest guest]

Hi Jane,

I choose to do the patches as I consult with Dr Bradstreet and he told us how

well other

kids with my sons issues were doing on the patches so I looked into them, and

yes my

sons test results showed major inflammation also.

Havent been told to remove them an hour before bed so I am going to try that,

thanks!

Hope you see good things with your child!!!

All the best,

Sophie x

> >

> > Hi,

> >

> > Just wanted to post an update on my 6 yr old sons progress on

> Nicotine patches. He is up

> > to one patch a day and has been for over a fortnight. We have been

> using the patches for

> > a month on Saturday.

> >

> > So far we have seen a lot of improvements!! and these are in all

> areas of his development.

> > His school (he attends a mainstream school 3 afternoons a week)

> have noticed a change in

> > him and they are unaware of the patches, and his team of home

> tutors are seeing big

> > improvements across the board. My son (pretty much non verbal) is

> vocalising better and

> > has been more spontaneous with his words, mands and tacts. His self

> help skills have

> > improved (eg has taken himself to the toilet several times in the

> last week and he doesn't

> > normally do this) He is using more words in general and showing a

> lot more concentration

> > (eg. in his last session at school they decided the whole school

> were going to watch a dvd

> > in the hall - and he sat through nearly an hour and half of it

> watching!!!!!) He is making us

> > more aware of his wants (he is now saying no and yes which he

> wasn't before and doing

> > little things like he spontaneously requested a " different " pen at

> school when given a

> > green one, then he picked up a blue pen! he is seems more actively

> involved in things too,

> > his headmistress commented on how much he seemed to enjoy the

> pantomime they had

> > at the school last week and how engaged in it he was too!!

> >

> > His bowel movements and consistency etc, seem to have improved in

> the last week also,

> > and his stomach is looking really normal - instead of distended! We

> have been on the SCD

> > diet for over a year and we still see bloating.

> >

> > Anyway - I am very pleased so far...they are little moves, but in

> the right direction.....

> >

> > On the negative side, we have seen a decline in sleep, but more so

> in him going off to

> > sleep than anything else..He is seeming to stay asleep ok once he

> is asleep, and even

> > sleeping in later! but this is probably because he is taking so

> much longer to get off!!

> >

> > Sophie x

> >

>

[Guest guest]

This is awesome Sophie - be sure to keep us updated!

Mandi x

[Guest guest]

---Dear Sophie,

I'm glad to hear that your child is getting better on this

intervention.However I find hard to understand this approach. Is there

any scientific finding using nicotine patch in order to reduce the

inflammation?Is the inflammation in the gut?,my son has also.Please

tell us more if you know how Dr Bradstreet explains using nicotine

patch to autistic kids..

Thanks..

Wish you all the best

Nevin

[Guest guest]

so that's (1) 7 mg patch per

day? did you start there or work up, I think I remember hearing many

people starting with 1/4 of a patch.

-Jenna

bty462988 wrote:

Hi,

Just wanted to post an update on my 6 yr old sons progress on Nicotine

patches. He is up

to one patch a day and has been for over a fortnight. We have been

using the patches for

a month on Saturday.

So far we have seen a lot of improvements!! and these are in all

areas of his development.

His school (he attends a mainstream school 3 afternoons a week) have

noticed a change in

him and they are unaware of the patches, and his team of home tutors

are seeing big

improvements across the board. My son (pretty much non verbal) is

vocalising better and

has been more spontaneous with his words, mands and tacts. His self

help skills have

improved (eg has taken himself to the toilet several times in the last

week and he doesn't

normally do this) He is using more words in general and showing a lot

more concentration

(eg. in his last session at school they decided the whole school were

going to watch a dvd

in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

more aware of his wants (he is now saying no and yes which he wasn't

before and doing

little things like he spontaneously requested a "different" pen at

school when given a

green one, then he picked up a blue pen! he is seems more actively

involved in things too,

his headmistress commented on how much he seemed to enjoy the pantomime

they had

at the school last week and how engaged in it he was too!!

His bowel movements and consistency etc, seem to have improved in the

last week also,

and his stomach is looking really normal - instead of distended! We

have been on the SCD

diet for over a year and we still see bloating.

Anyway - I am very pleased so far...they are little moves, but in the

right direction.....

On the negative side, we have seen a decline in sleep, but more so in

him going off to

sleep than anything else..He is seeming to stay asleep ok once he is

asleep, and even

sleeping in later! but this is probably because he is taking so much

longer to get off!!

Sophie x

[Guest guest]

so that's (1) 7 mg patch per

day? did you start there or work up, I think I remember hearing many

people starting with 1/4 of a patch.

-Jenna

bty462988 wrote:

Hi,

Just wanted to post an update on my 6 yr old sons progress on Nicotine

patches. He is up

to one patch a day and has been for over a fortnight. We have been

using the patches for

a month on Saturday.

So far we have seen a lot of improvements!! and these are in all

areas of his development.

His school (he attends a mainstream school 3 afternoons a week) have

noticed a change in

him and they are unaware of the patches, and his team of home tutors

are seeing big

improvements across the board. My son (pretty much non verbal) is

vocalising better and

has been more spontaneous with his words, mands and tacts. His self

help skills have

improved (eg has taken himself to the toilet several times in the last

week and he doesn't

normally do this) He is using more words in general and showing a lot

more concentration

(eg. in his last session at school they decided the whole school were

going to watch a dvd

in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

more aware of his wants (he is now saying no and yes which he wasn't

before and doing

little things like he spontaneously requested a "different" pen at

school when given a

green one, then he picked up a blue pen! he is seems more actively

involved in things too,

his headmistress commented on how much he seemed to enjoy the pantomime

they had

at the school last week and how engaged in it he was too!!

His bowel movements and consistency etc, seem to have improved in the

last week also,

and his stomach is looking really normal - instead of distended! We

have been on the SCD

diet for over a year and we still see bloating.

Anyway - I am very pleased so far...they are little moves, but in the

right direction.....

On the negative side, we have seen a decline in sleep, but more so in

him going off to

sleep than anything else..He is seeming to stay asleep ok once he is

asleep, and even

sleeping in later! but this is probably because he is taking so much

longer to get off!!

Sophie x

[Guest guest]

We are using 7 mg patches from Novartis which i got online from the US as these

were

reommended by my US Dan doc. We started on a 1/4 for 3 days then went up to a

1/2 for

a week. We then went on to 1 patch.

Sophie x

> >

> > Hi,

> >

> > Just wanted to post an update on my 6 yr old sons progress on Nicotine

> > patches. He is up

> > to one patch a day and has been for over a fortnight. We have been

> > using the patches for

> > a month on Saturday.

> >

> > So far we have seen a lot of improvements!! and these are in all areas

> > of his development.

> > His school (he attends a mainstream school 3 afternoons a week) have

> > noticed a change in

> > him and they are unaware of the patches, and his team of home tutors

> > are seeing big

> > improvements across the board. My son (pretty much non verbal) is

> > vocalising better and

> > has been more spontaneous with his words, mands and tacts. His self

> > help skills have

> > improved (eg has taken himself to the toilet several times in the last

> > week and he doesn't

> > normally do this) He is using more words in general and showing a lot

> > more concentration

> > (eg. in his last session at school they decided the whole school were

> > going to watch a dvd

> > in the hall - and he sat through nearly an hour and half of it

> > watching!!!!!) He is making us

> > more aware of his wants (he is now saying no and yes which he wasn't

> > before and doing

> > little things like he spontaneously requested a " different " pen at

> > school when given a

> > green one, then he picked up a blue pen! he is seems more actively

> > involved in things too,

> > his headmistress commented on how much he seemed to enjoy the

> > pantomime they had

> > at the school last week and how engaged in it he was too!!

> >

> > His bowel movements and consistency etc, seem to have improved in the

> > last week also,

> > and his stomach is looking really normal - instead of distended! We

> > have been on the SCD

> > diet for over a year and we still see bloating.

> >

> > Anyway - I am very pleased so far...they are little moves, but in the

> > right direction.....

> >

> > On the negative side, we have seen a decline in sleep, but more so in

> > him going off to

> > sleep than anything else..He is seeming to stay asleep ok once he is

> > asleep, and even

> > sleeping in later! but this is probably because he is taking so much

> > longer to get off!!

> >

> > Sophie x

> >

> >

>

[Guest guest]

We are using 7 mg patches from Novartis which i got online from the US as these

were

reommended by my US Dan doc. We started on a 1/4 for 3 days then went up to a

1/2 for

a week. We then went on to 1 patch.

Sophie x

> >

> > Hi,

> >

> > Just wanted to post an update on my 6 yr old sons progress on Nicotine

> > patches. He is up

> > to one patch a day and has been for over a fortnight. We have been

> > using the patches for

> > a month on Saturday.

> >

> > So far we have seen a lot of improvements!! and these are in all areas

> > of his development.

> > His school (he attends a mainstream school 3 afternoons a week) have

> > noticed a change in

> > him and they are unaware of the patches, and his team of home tutors

> > are seeing big

> > improvements across the board. My son (pretty much non verbal) is

> > vocalising better and

> > has been more spontaneous with his words, mands and tacts. His self

> > help skills have

> > improved (eg has taken himself to the toilet several times in the last

> > week and he doesn't

> > normally do this) He is using more words in general and showing a lot

> > more concentration

> > (eg. in his last session at school they decided the whole school were

> > going to watch a dvd

> > in the hall - and he sat through nearly an hour and half of it

> > watching!!!!!) He is making us

> > more aware of his wants (he is now saying no and yes which he wasn't

> > before and doing

> > little things like he spontaneously requested a " different " pen at

> > school when given a

> > green one, then he picked up a blue pen! he is seems more actively

> > involved in things too,

> > his headmistress commented on how much he seemed to enjoy the

> > pantomime they had

> > at the school last week and how engaged in it he was too!!

> >

> > His bowel movements and consistency etc, seem to have improved in the

> > last week also,

> > and his stomach is looking really normal - instead of distended! We

> > have been on the SCD

> > diet for over a year and we still see bloating.

> >

> > Anyway - I am very pleased so far...they are little moves, but in the

> > right direction.....

> >

> > On the negative side, we have seen a decline in sleep, but more so in

> > him going off to

> > sleep than anything else..He is seeming to stay asleep ok once he is

> > asleep, and even

> > sleeping in later! but this is probably because he is taking so much

> > longer to get off!!

> >

> > Sophie x

> >

> >

>

[Guest guest]

Jane,

what is the test for neopt/biopt? is it blood, urine, ......?

tia, Nikki x

> Hi Sophie,

>

> Wonderful! Can I just ask why you decided to try nicotine. Were

your

> inflammation levels high? My ds neopt/biopt is way out of range so

it

> looks like we have serious inflammation issues. We are due to start

> patches tomorrow. 1/4 of a 7mg patch. We are to take it off an hour

> before bed to help with settling. Also, hubby said when he was on

> patches, if he forgot to take it off he'd have the most vivid weird

> dreams. I've also heard they can cause sleep walking!

> Again, great news!

>

> jane

> x

> p.s wish us luck!

>

[Guest guest]

Hi Nikki

We had urine tested at the french lab ee Auguste (Labbio)

Test was called urinary neopterine profile

Nic's ref has always been low (0.1 but should be between 0.4 - 0.9)

But his Neopterin is always sky high. His last result was 899 and the

ref was 170-360.

jane

x

>

>

> Jane,

>

> what is the test for neopt/biopt? is it blood, urine, ......?

>

> tia, Nikki x

>

>

> > Hi Sophie,

> >

> > Wonderful! Can I just ask why you decided to try nicotine. Were

> your

> > inflammation levels high? My ds neopt/biopt is way out of range

so

> it

> > looks like we have serious inflammation issues. We are due to

start

> > patches tomorrow. 1/4 of a 7mg patch. We are to take it off an

hour

> > before bed to help with settling. Also, hubby said when he was on

> > patches, if he forgot to take it off he'd have the most vivid

weird

> > dreams. I've also heard they can cause sleep walking!

> > Again, great news!

> >

> > jane

> > x

> > p.s wish us luck!

> >

>

[Guest guest]

Hi Sophie,

Do you know if the gains are permanent or patch dependent? How long

does he have to use them for? Would you remain with 7mg patches or

are there plans to work up to higher dosages ie 14mg patches?

Lastly, how do you keep the patches on him! I am using the patches

too and have seen smaller but similar progress as my son keeps

peeling them off!

Regards June

-- In Autism-Biomedical-Europe , " bty462988 "

wrote:

>

> Hi,

>

> Just wanted to post an update on my 6 yr old sons progress on

Nicotine patches. He is up

> to one patch a day and has been for over a fortnight. We have been

using the patches for

> a month on Saturday.

>

> So far we have seen a lot of improvements!! and these are in all

areas of his development.

> His school (he attends a mainstream school 3 afternoons a week)

have noticed a change in

> him and they are unaware of the patches, and his team of home

tutors are seeing big

> improvements across the board. My son (pretty much non verbal) is

vocalising better and

> has been more spontaneous with his words, mands and tacts. His self

help skills have

> improved (eg has taken himself to the toilet several times in the

last week and he doesn't

> normally do this) He is using more words in general and showing a

lot more concentration

> (eg. in his last session at school they decided the whole school

were going to watch a dvd

> in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

> more aware of his wants (he is now saying no and yes which he

wasn't before and doing

> little things like he spontaneously requested a " different " pen at

school when given a

> green one, then he picked up a blue pen! he is seems more actively

involved in things too,

> his headmistress commented on how much he seemed to enjoy the

pantomime they had

> at the school last week and how engaged in it he was too!!

>

> His bowel movements and consistency etc, seem to have improved in

the last week also,

> and his stomach is looking really normal - instead of distended! We

have been on the SCD

> diet for over a year and we still see bloating.

>

> Anyway - I am very pleased so far...they are little moves, but in

the right direction.....

>

> On the negative side, we have seen a decline in sleep, but more so

in him going off to

> sleep than anything else..He is seeming to stay asleep ok once he

is asleep, and even

> sleeping in later! but this is probably because he is taking so

much longer to get off!!

>

> Sophie x

>

[Guest guest]

Hi Sophie,

Do you know if the gains are permanent or patch dependent? How long

does he have to use them for? Would you remain with 7mg patches or

are there plans to work up to higher dosages ie 14mg patches?

Lastly, how do you keep the patches on him! I am using the patches

too and have seen smaller but similar progress as my son keeps

peeling them off!

Regards June

-- In Autism-Biomedical-Europe , " bty462988 "

wrote:

>

> Hi,

>

> Just wanted to post an update on my 6 yr old sons progress on

Nicotine patches. He is up

> to one patch a day and has been for over a fortnight. We have been

using the patches for

> a month on Saturday.

>

> So far we have seen a lot of improvements!! and these are in all

areas of his development.

> His school (he attends a mainstream school 3 afternoons a week)

have noticed a change in

> him and they are unaware of the patches, and his team of home

tutors are seeing big

> improvements across the board. My son (pretty much non verbal) is

vocalising better and

> has been more spontaneous with his words, mands and tacts. His self

help skills have

> improved (eg has taken himself to the toilet several times in the

last week and he doesn't

> normally do this) He is using more words in general and showing a

lot more concentration

> (eg. in his last session at school they decided the whole school

were going to watch a dvd

> in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

> more aware of his wants (he is now saying no and yes which he

wasn't before and doing

> little things like he spontaneously requested a " different " pen at

school when given a

> green one, then he picked up a blue pen! he is seems more actively

involved in things too,

> his headmistress commented on how much he seemed to enjoy the

pantomime they had

> at the school last week and how engaged in it he was too!!

>

> His bowel movements and consistency etc, seem to have improved in

the last week also,

> and his stomach is looking really normal - instead of distended! We

have been on the SCD

> diet for over a year and we still see bloating.

>

> Anyway - I am very pleased so far...they are little moves, but in

the right direction.....

>

> On the negative side, we have seen a decline in sleep, but more so

in him going off to

> sleep than anything else..He is seeming to stay asleep ok once he

is asleep, and even

> sleeping in later! but this is probably because he is taking so

much longer to get off!!

>

> Sophie x

>

[Guest guest]

Hello

My son used to peel them off too that’s why I put it on his back

( near to his shoulder) !

Katia

Van:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] Namens jgoh04

Verzonden: donderdag 18 december 2008 22:29

Aan: Autism-Biomedical-Europe

Onderwerp: Re: Nicotine patch - update on my

sons progress

Hi Sophie,

Do you know if the gains are permanent or patch dependent? How long

does he have to use them for? Would you remain with 7mg patches or

are there plans to work up to higher dosages ie 14mg patches?

Lastly, how do you keep the patches on him! I am using the patches

too and have seen smaller but similar progress as my son keeps

peeling them off!

Regards June

-- In Autism-Biomedical-Europe ,

" bty462988 "

wrote:

>

> Hi,

>

> Just wanted to post an update on my 6 yr old sons progress on

Nicotine patches. He is up

> to one patch a day and has been for over a fortnight. We have been

using the patches for

> a month on Saturday.

>

> So far we have seen a lot of improvements!! and these are in all

areas of his development.

> His school (he attends a mainstream school 3 afternoons a week)

have noticed a change in

> him and they are unaware of the patches, and his team of home

tutors are seeing big

> improvements across the board. My son (pretty much non verbal) is

vocalising better and

> has been more spontaneous with his words, mands and tacts. His self

help skills have

> improved (eg has taken himself to the toilet several times in the

last week and he doesn't

> normally do this) He is using more words in general and showing a

lot more concentration

> (eg. in his last session at school they decided the whole school

were going to watch a dvd

> in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

> more aware of his wants (he is now saying no and yes which he

wasn't before and doing

> little things like he spontaneously requested a " different " pen

at

school when given a

> green one, then he picked up a blue pen! he is seems more actively

involved in things too,

> his headmistress commented on how much he seemed to enjoy the

pantomime they had

> at the school last week and how engaged in it he was too!!

>

> His bowel movements and consistency etc, seem to have improved in

the last week also,

> and his stomach is looking really normal - instead of distended! We

have been on the SCD

> diet for over a year and we still see bloating.

>

> Anyway - I am very pleased so far...they are little moves, but in

the right direction.....

>

> On the negative side, we have seen a decline in sleep, but more so

in him going off to

> sleep than anything else..He is seeming to stay asleep ok once he

is asleep, and even

> sleeping in later! but this is probably because he is taking so

much longer to get off!!

>

> Sophie x

>

[Guest guest]

Hello

My son used to peel them off too that’s why I put it on his back

( near to his shoulder) !

Katia

Van:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] Namens jgoh04

Verzonden: donderdag 18 december 2008 22:29

Aan: Autism-Biomedical-Europe

Onderwerp: Re: Nicotine patch - update on my

sons progress

Hi Sophie,

Do you know if the gains are permanent or patch dependent? How long

does he have to use them for? Would you remain with 7mg patches or

are there plans to work up to higher dosages ie 14mg patches?

Lastly, how do you keep the patches on him! I am using the patches

too and have seen smaller but similar progress as my son keeps

peeling them off!

Regards June

-- In Autism-Biomedical-Europe ,

" bty462988 "

wrote:

>

> Hi,

>

> Just wanted to post an update on my 6 yr old sons progress on

Nicotine patches. He is up

> to one patch a day and has been for over a fortnight. We have been

using the patches for

> a month on Saturday.

>

> So far we have seen a lot of improvements!! and these are in all

areas of his development.

> His school (he attends a mainstream school 3 afternoons a week)

have noticed a change in

> him and they are unaware of the patches, and his team of home

tutors are seeing big

> improvements across the board. My son (pretty much non verbal) is

vocalising better and

> has been more spontaneous with his words, mands and tacts. His self

help skills have

> improved (eg has taken himself to the toilet several times in the

last week and he doesn't

> normally do this) He is using more words in general and showing a

lot more concentration

> (eg. in his last session at school they decided the whole school

were going to watch a dvd

> in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

> more aware of his wants (he is now saying no and yes which he

wasn't before and doing

> little things like he spontaneously requested a " different " pen

at

school when given a

> green one, then he picked up a blue pen! he is seems more actively

involved in things too,

> his headmistress commented on how much he seemed to enjoy the

pantomime they had

> at the school last week and how engaged in it he was too!!

>

> His bowel movements and consistency etc, seem to have improved in

the last week also,

> and his stomach is looking really normal - instead of distended! We

have been on the SCD

> diet for over a year and we still see bloating.

>

> Anyway - I am very pleased so far...they are little moves, but in

the right direction.....

>

> On the negative side, we have seen a decline in sleep, but more so

in him going off to

> sleep than anything else..He is seeming to stay asleep ok once he

is asleep, and even

> sleeping in later! but this is probably because he is taking so

much longer to get off!!

>

> Sophie x

>

[Guest guest]

I used a big strip of

cloth/medical tap on top of the patch. I too found that the cut

patches were too small to stay stuck. The first day I used tape, and

the patch stayed on, Jack came home with a sticker on his shirt. I

asked what it was for. He said he wrote 9 sentences (without being

reminded to keep going and focus) This is absolutely a huge deal for

us!!!!

I stick them almost on his butt / lower back (covered by his

underwear). Because they change for PE class, I really don't need the

school freaking out about it!

-Jenna

katia wrote:

Hello

My son

used to peel them off too that’s why I put it on his back

( near to his shoulder) !

Katia

Van:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] Namens

jgoh04

Verzonden: donderdag 18 december 2008 22:29

Aan: Autism-Biomedical-Europe

Onderwerp: Re: Nicotine patch

- update on my

sons progress

Hi Sophie,

Do you know if the gains are permanent or patch dependent? How long

does he have to use them for? Would you remain with 7mg patches or

are there plans to work up to higher dosages ie 14mg patches?

Lastly, how do you keep the patches on him! I am using the patches

too and have seen smaller but similar progress as my son keeps

peeling them off!

Regards June

-- In Autism-Biomedical-Europe ,

"bty462988"

wrote:

>

> Hi,

>

> Just wanted to post an update on my 6 yr old sons progress on

Nicotine patches. He is up

> to one patch a day and has been for over a fortnight. We have been

using the patches for

> a month on Saturday.

>

> So far we have seen a lot of improvements!! and these are in

all

areas of his development.

> His school (he attends a mainstream school 3 afternoons a week)

have noticed a change in

> him and they are unaware of the patches, and his team of home

tutors are seeing big

> improvements across the board. My son (pretty much non verbal) is

vocalising better and

> has been more spontaneous with his words, mands and tacts. His

self

help skills have

> improved (eg has taken himself to the toilet several times in the

last week and he doesn't

> normally do this) He is using more words in general and showing a

lot more concentration

> (eg. in his last session at school they decided the whole school

were going to watch a dvd

> in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

> more aware of his wants (he is now saying no and yes which he

wasn't before and doing

> little things like he spontaneously requested a "different" pen

at

school when given a

> green one, then he picked up a blue pen! he is seems more actively

involved in things too,

> his headmistress commented on how much he seemed to enjoy the

pantomime they had

> at the school last week and how engaged in it he was too!!

>

> His bowel movements and consistency etc, seem to have improved in

the last week also,

> and his stomach is looking really normal - instead of distended!

We

have been on the SCD

> diet for over a year and we still see bloating.

>

> Anyway - I am very pleased so far...they are little moves, but in

the right direction.....

>

> On the negative side, we have seen a decline in sleep, but more so

in him going off to

> sleep than anything else..He is seeming to stay asleep ok once he

is asleep, and even

> sleeping in later! but this is probably because he is taking so

much longer to get off!!

>

> Sophie x

>

[Guest guest]

I used a big strip of

cloth/medical tap on top of the patch. I too found that the cut

patches were too small to stay stuck. The first day I used tape, and

the patch stayed on, Jack came home with a sticker on his shirt. I

asked what it was for. He said he wrote 9 sentences (without being

reminded to keep going and focus) This is absolutely a huge deal for

us!!!!

I stick them almost on his butt / lower back (covered by his

underwear). Because they change for PE class, I really don't need the

school freaking out about it!

-Jenna

katia wrote:

Hello

My son

used to peel them off too that’s why I put it on his back

( near to his shoulder) !

Katia

Van:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] Namens

jgoh04

Verzonden: donderdag 18 december 2008 22:29

Aan: Autism-Biomedical-Europe

Onderwerp: Re: Nicotine patch

- update on my

sons progress

Hi Sophie,

Do you know if the gains are permanent or patch dependent? How long

does he have to use them for? Would you remain with 7mg patches or

are there plans to work up to higher dosages ie 14mg patches?

Lastly, how do you keep the patches on him! I am using the patches

too and have seen smaller but similar progress as my son keeps

peeling them off!

Regards June

-- In Autism-Biomedical-Europe ,

"bty462988"

wrote:

>

> Hi,

>

> Just wanted to post an update on my 6 yr old sons progress on

Nicotine patches. He is up

> to one patch a day and has been for over a fortnight. We have been

using the patches for

> a month on Saturday.

>

> So far we have seen a lot of improvements!! and these are in

all

areas of his development.

> His school (he attends a mainstream school 3 afternoons a week)

have noticed a change in

> him and they are unaware of the patches, and his team of home

tutors are seeing big

> improvements across the board. My son (pretty much non verbal) is

vocalising better and

> has been more spontaneous with his words, mands and tacts. His

self

help skills have

> improved (eg has taken himself to the toilet several times in the

last week and he doesn't

> normally do this) He is using more words in general and showing a

lot more concentration

> (eg. in his last session at school they decided the whole school

were going to watch a dvd

> in the hall - and he sat through nearly an hour and half of it

watching!!!!!) He is making us

> more aware of his wants (he is now saying no and yes which he

wasn't before and doing

> little things like he spontaneously requested a "different" pen

at

school when given a

> green one, then he picked up a blue pen! he is seems more actively

involved in things too,

> his headmistress commented on how much he seemed to enjoy the

pantomime they had

> at the school last week and how engaged in it he was too!!

>

> His bowel movements and consistency etc, seem to have improved in

the last week also,

> and his stomach is looking really normal - instead of distended!

We

have been on the SCD

> diet for over a year and we still see bloating.

>

> Anyway - I am very pleased so far...they are little moves, but in

the right direction.....

>

> On the negative side, we have seen a decline in sleep, but more so

in him going off to

> sleep than anything else..He is seeming to stay asleep ok once he

is asleep, and even

> sleeping in later! but this is probably because he is taking so

much longer to get off!!

>

> Sophie x

>

[Guest guest]

I put my sons patches on his back in between his shoulders.

>>I just tried this morning, he can get it off wherever I put it - arghhhhhhhhhhhhhhhhhhhhhh, guess I can always use them on me!

Mandi x

[Guest guest]

I put my sons patches on his back in between his shoulders.

>>I just tried this morning, he can get it off wherever I put it - arghhhhhhhhhhhhhhhhhhhhhh, guess I can always use them on me!

Mandi x

[Guest guest]

Agile little thing ain't he.

>>Actually he's getting quite a porker but his desire to have NOTHNG on not even a 1/4 patch is intense. Even if he asks for a plaster its only on for 30 secs.

I think putting it on at night will be the only way and he'll know its there when he wakes up, might try that tonight

Mandi x

[Guest guest]

I am hoping they are permanent! but I don't really know! I am looking at the

patches as an

aid in allowing him to focus and therefore learn. Hopefully he will retain what

he has

learnt. I read one paper that said on patients with MS, the gains seen with the

use of a

patch were still evident for up to 3 weeks after removal.

We are staying on a fixed dose of 7mg. I put my sons patches on his back in

between his

shoulders. I always move it a bit so I don't keep putting it on the same place.

Hth

Sophie

> >

> > Hi,

> >

> > Just wanted to post an update on my 6 yr old sons progress on

> Nicotine patches. He is up

> > to one patch a day and has been for over a fortnight. We have been

> using the patches for

> > a month on Saturday.

> >

> > So far we have seen a lot of improvements!! and these are in all

> areas of his development.

> > His school (he attends a mainstream school 3 afternoons a week)

> have noticed a change in

> > him and they are unaware of the patches, and his team of home

> tutors are seeing big

> > improvements across the board. My son (pretty much non verbal) is

> vocalising better and

> > has been more spontaneous with his words, mands and tacts. His self

> help skills have

> > improved (eg has taken himself to the toilet several times in the

> last week and he doesn't

> > normally do this) He is using more words in general and showing a

> lot more concentration

> > (eg. in his last session at school they decided the whole school

> were going to watch a dvd

> > in the hall - and he sat through nearly an hour and half of it

> watching!!!!!) He is making us

> > more aware of his wants (he is now saying no and yes which he

> wasn't before and doing

> > little things like he spontaneously requested a " different " pen at

> school when given a

> > green one, then he picked up a blue pen! he is seems more actively

> involved in things too,

> > his headmistress commented on how much he seemed to enjoy the

> pantomime they had

> > at the school last week and how engaged in it he was too!!

> >

> > His bowel movements and consistency etc, seem to have improved in

> the last week also,

> > and his stomach is looking really normal - instead of distended! We

> have been on the SCD

> > diet for over a year and we still see bloating.

> >

> > Anyway - I am very pleased so far...they are little moves, but in

> the right direction.....

> >

> > On the negative side, we have seen a decline in sleep, but more so

> in him going off to

> > sleep than anything else..He is seeming to stay asleep ok once he

> is asleep, and even

> > sleeping in later! but this is probably because he is taking so

> much longer to get off!!

> >

> > Sophie x

> >

>

[Guest guest]

I am hoping they are permanent! but I don't really know! I am looking at the

patches as an

aid in allowing him to focus and therefore learn. Hopefully he will retain what

he has

learnt. I read one paper that said on patients with MS, the gains seen with the

use of a

patch were still evident for up to 3 weeks after removal.

We are staying on a fixed dose of 7mg. I put my sons patches on his back in

between his

shoulders. I always move it a bit so I don't keep putting it on the same place.

Hth

Sophie

> >

> > Hi,

> >

> > Just wanted to post an update on my 6 yr old sons progress on

> Nicotine patches. He is up

> > to one patch a day and has been for over a fortnight. We have been

> using the patches for

> > a month on Saturday.

> >

> > So far we have seen a lot of improvements!! and these are in all

> areas of his development.

> > His school (he attends a mainstream school 3 afternoons a week)

> have noticed a change in

> > him and they are unaware of the patches, and his team of home

> tutors are seeing big

> > improvements across the board. My son (pretty much non verbal) is

> vocalising better and

> > has been more spontaneous with his words, mands and tacts. His self

> help skills have

> > improved (eg has taken himself to the toilet several times in the

> last week and he doesn't

> > normally do this) He is using more words in general and showing a

> lot more concentration

> > (eg. in his last session at school they decided the whole school

> were going to watch a dvd

> > in the hall - and he sat through nearly an hour and half of it

> watching!!!!!) He is making us

> > more aware of his wants (he is now saying no and yes which he

> wasn't before and doing

> > little things like he spontaneously requested a " different " pen at

> school when given a

> > green one, then he picked up a blue pen! he is seems more actively

> involved in things too,

> > his headmistress commented on how much he seemed to enjoy the

> pantomime they had

> > at the school last week and how engaged in it he was too!!

> >

> > His bowel movements and consistency etc, seem to have improved in

> the last week also,

> > and his stomach is looking really normal - instead of distended! We

> have been on the SCD

> > diet for over a year and we still see bloating.

> >

> > Anyway - I am very pleased so far...they are little moves, but in

> the right direction.....

> >

> > On the negative side, we have seen a decline in sleep, but more so

> in him going off to

> > sleep than anything else..He is seeming to stay asleep ok once he

> is asleep, and even

> > sleeping in later! but this is probably because he is taking so

> much longer to get off!!

> >

> > Sophie x

> >

>

[Guest guest]

Agile little thing ain't he. Try rewarding him for leaving it on?

Nicotine chewing gum?

Sally

Mum231ASD@... wrote:

>

> In a message dated 20/12/2008 13:18:50 GMT Standard Time,

> soph.henderson@... writes:

>

> I put my sons patches on his back in between his

> shoulders.

>

>

> >>I just tried this morning, he can get it off wherever I put it -

> arghhhhhhhhhhhhhhhhhhhhhh, guess I can always use them on me!

>

> Mandi x

>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.19/1857 - Release Date: 19/12/2008

10:09

>

>