RE: Re: About having another child.

[Guest guest]

Hi again,

Thanks again for your replies and all your support.

I dont really mind having a car because i dont even drive so its not want i want.Have to fight for higher care allowence because my son needs care 24/7. Actually his care needs has increased so shouls be eligible for higher rateso have to re apply and now that he has just turned 3 can also apply for mobility.Who can help me to fill out the forms?Somebody who is in the autism field?.Shall I put in the form the diagnosis i got in Italy or this might upset somebody?Thanks again for your replies.Have one more question.Where can I find a private speech language therapist?I thing what hes doin at nursery is not enough i mean in terms of speeche therapy.Do you thing that having more hours of speech therapy can help me to develop speech or it depends more on my child skills?Thanks again.Barbara

To: Autism-Biomedical-Europe From: bobsallyeva@...Date: Thu, 4 Dec 2008 11:51:28 +0000Subject: Re: Re: About having another child.

You get a virtually free car with the top level of mobility. It's not £47 a week. That's why they fight it so much. You are entitled to Motorbility (I think that's what it's called). A car of your choice maintained by them for a £300 deposit.Sallybrownsauce66 wrote:>> Yes it was!>> Just to let you all know we won our case for the higher rate mobility> component of DLA. It took 7 mos and we had award backdated to when ds> 3rd birthday.> Our paed backed us up in the end and agreed with us that ds decision> to walk or not (dependant on external conditions)was not under his> conscious control but was a behaviour which is part and parcel of his> autism> It was a sweet victory, and stopped being about the paltry 47 quid a> week. It was a battle about gp's who'd never met my son or read his> notes making assumptions and decisions about him. It was about drones> on the end of the phone telling me I couldn't claim cos he wasn't 5.> Or that autism doesn't get mobility component.>> J> x>> > > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > > > Dear Parents,I really need your opinion and of> course> > > hear> > > > > > your> > > > > > > > > > experience about the thought of having another> > > child.Today> > > > > > had> > > > > > > > the> > > > > > > > > > visit of hte health visitor,had a very long chat> and> > > also> > > > > > told> > > > > > > > her> > > > > > > > > that> > > > > > > > > > having another child is in my thoughts.She really> put> > > me> > > > > off> > > > > > > > saying> > > > > > > > > > that the chances of having another child with> autism> > > are> > > > > very> > > > > > > > > high.What> > > > > > > > > > do you think?Thanks for your sharing your thoughts> > with> > > me.> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>> > ---------------------------------------------------------->>> No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.9.13/1827 - Release Date: 03/12/2008 17:41>> Visita il suo Spaces! Scopri le novità di Doretta.

[Guest guest]

Contactafamily are a charity for families with handicapped children.

They will give phone advice on filling in forms. Ask them re the Italian

diagnosis. You do need to produce a supporting statement but that can be

from a nursery teacher

Sally

Barbara Canepa wrote:

>

> Hi again,

>

> Thanks again for your replies and all your support.

>

> I dont really mind having a car because i dont even drive so its not

> want i want.Have to fight for higher care allowence because my son

> needs care 24/7. Actually his care needs has increased so shouls be

> eligible for higher rateso have to re apply and now that he has just

> turned 3 can also apply for mobility.Who can help me to fill out the

> forms?Somebody who is in the autism field?.Shall I put in the form

> the diagnosis i got in Italy or this might upset somebody?Thanks again

> for your replies.Have one more question.Where can I find a private

> speech language therapist?I thing what hes doin at nursery is not

> enough i mean in terms of speeche therapy.Do you thing that having

> more hours of speech therapy can help me to develop speech or it

> depends more on my child skills?Thanks again.Barbara

>

>

>

> ------------------------------------------------------------------------

>

> To: Autism-Biomedical-Europe

> From: bobsallyeva@...

> Date: Thu, 4 Dec 2008 11:51:28 +0000

> Subject: Re: Re: About having another child.

>

>

> You get a virtually free car with the top level of mobility. It's not

> £47 a week. That's why they fight it so much. You are entitled to

> Motorbility (I think that's what it's called). A car of your choice

> maintained by them for a £300 deposit.

> Sally

>

> brownsauce66 wrote:

> >

> > Yes it was!

> >

> > Just to let you all know we won our case for the higher rate mobility

> > component of DLA. It took 7 mos and we had award backdated to when ds

> > 3rd birthday.

> > Our paed backed us up in the end and agreed with us that ds decision

> > to walk or not (dependant on external conditions)was not under his

> > conscious control but was a behaviour which is part and parcel of his

> > autism

> > It was a sweet victory, and stopped being about the paltry 47 quid a

> > week. It was a battle about gp's who'd never met my son or read his

> > notes making assumptions and decisions about him. It was about drones

> > on the end of the phone telling me I couldn't claim cos he wasn't 5.

> > Or that autism doesn't get mobility component.

> >

> > J

> > x

> >

> >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > Dear Parents,I really need your opinion and of

> > course

> > > > hear

> > > > > > > your

> > > > > > > > > > > experience about the thought of having another

> > > > child.Today

> > > > > > > had

> > > > > > > > > the

> > > > > > > > > > > visit of hte health visitor,had a very long chat

> > and

> > > > also

> > > > > > > told

> > > > > > > > > her

> > > > > > > > > > that

> > > > > > > > > > > having another child is in my thoughts.She really

> > put

> > > > me

> > > > > > off

> > > > > > > > > saying

> > > > > > > > > > > that the chances of having another child with

> > autism

> > > > are

> > > > > > very

> > > > > > > > > > high.What

> > > > > > > > > > > do you think?Thanks for your sharing your thoughts

> > > with

> > > > me.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> > ----------------------------------------------------------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com <http://www.avg.com/>

> > Version: 8.0.176 / Virus Database: 270.9.13/1827 - Release Date:

> 03/12/2008 17:41

> >

> >

>

>

> ------------------------------------------------------------------------

> Visita il suo Spaces! Scopri le novità di Doretta.

> <http://doretta82live.spaces.live.com/>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.13/1828 - Release Date: 04/12/2008

08:05

>

>