Re: Not Sleeping, Melatonin NBG, Adrenals? /Anita, Anyone?

[Guest guest]

I think alot of us have known similar horror. If he's taking a lot of

B6/P5P I would suggest stopping it to see if sleep improves. Try

Epsom salts baths or cream?

Perhaps stop all supplements for a while to see whether this changes

things.

Melatonin shouldn't be given long term as it ceases to be effective.

perhaps after a couple of months off it might work again.

Have black out blind and black out curtains. Have no toys in the

bedroom. - Just a couple of suggestions. Switch off all electrical

appliances in the area - they may be hearing a buzz.

Margaret

>

> Hi Troops

>

> Spoke to a chap today with severely affected lad of 9 years.

>

> Consultant Rx Melatonin syrup, 5mg used to work, for over a year

now 20mg is

> doing nothing.

>

> Child can go 48 hours with NO sleep at all. Sometimes he will go

one night

> sleep, next night none. He is SCD & GFCF.

>

> Ideas anyone?

>

> I felt that Adrenals are likely shot to bits, his and his parents -

do you

> think ACE might help on the sleep side too?

>

> Anyone done neurotransmitter testing for this issue? Did it help?

(I always

> remember AC posting you don't pee your brains out so how accurate

can it be

> ROFL)

>

> All thoughts gratefully received, this family is desperate

>

> TIA

>

> Mandi x

>

[Guest guest]

YES YES, Adrenal cortex has done it for us!!!

BUT he recently had antibiotics followed by increased probiotics but

this has disrupted his sleep again. He is so sensitive.

Sara

mcollins2001uk wrote:

>

> I think alot of us have known similar horror. If he's taking a lot of

> B6/P5P I would suggest stopping it to see if sleep improves. Try

> Epsom salts baths or cream?

> Perhaps stop all supplements for a while to see whether this changes

> things.

> Melatonin shouldn't be given long term as it ceases to be effective.

> perhaps after a couple of months off it might work again.

> Have black out blind and black out curtains. Have no toys in the

> bedroom. - Just a couple of suggestions. Switch off all electrical

> appliances in the area - they may be hearing a buzz.

> Margaret

>

>

> >

> > Hi Troops

> >

> > Spoke to a chap today with severely affected lad of 9 years.

> >

> > Consultant Rx Melatonin syrup, 5mg used to work, for over a year

> now 20mg is

> > doing nothing.

> >

> > Child can go 48 hours with NO sleep at all. Sometimes he will go

> one night

> > sleep, next night none. He is SCD & GFCF.

> >

> > Ideas anyone?

> >

> > I felt that Adrenals are likely shot to bits, his and his parents -

> do you

> > think ACE might help on the sleep side too?

> >

> > Anyone done neurotransmitter testing for this issue? Did it help?

> (I always

> > remember AC posting you don't pee your brains out so how accurate

> can it be

> > ROFL)

> >

> > All thoughts gratefully received, this family is desperate

> >

> > TIA

> >

> > Mandi x

> >

>

>

[Guest guest]

have had a terrible year,started ace a couple of months ago and

alternating sodium bicarb and epsom salts baths , DEF some

improvement.

Nina

In Autism-Biomedical-Europe , " mcollins2001uk "

wrote:

>

> I think alot of us have known similar horror. If he's taking a lot

of

> B6/P5P I would suggest stopping it to see if sleep improves. Try

> Epsom salts baths or cream?

> Perhaps stop all supplements for a while to see whether this

changes

> things.

> Melatonin shouldn't be given long term as it ceases to be

effective.

> perhaps after a couple of months off it might work again.

> Have black out blind and black out curtains. Have no toys in the

> bedroom. - Just a couple of suggestions. Switch off all electrical

> appliances in the area - they may be hearing a buzz.

> Margaret

>

>

> >

> > Hi Troops

> >

> > Spoke to a chap today with severely affected lad of 9 years.

> >

> > Consultant Rx Melatonin syrup, 5mg used to work, for over a year

> now 20mg is

> > doing nothing.

> >

> > Child can go 48 hours with NO sleep at all. Sometimes he will go

> one night

> > sleep, next night none. He is SCD & GFCF.

> >

> > Ideas anyone?

> >

> > I felt that Adrenals are likely shot to bits, his and his

parents -

> do you

> > think ACE might help on the sleep side too?

> >

> > Anyone done neurotransmitter testing for this issue? Did it help?

> (I always

> > remember AC posting you don't pee your brains out so how accurate

> can it be

> > ROFL)

> >

> > All thoughts gratefully received, this family is desperate

> >

> > TIA

> >

> > Mandi x

> >

>

[Guest guest]

Hi Mandi might be a long shot but when Sophie went into a stage of

hideous no sleep we tried cranial osteopathy and it really did help A

LOT also have they tried GABA 5htp and or l'theanine they also helped

us.Sorry to hear they are having such a tough time emx

>

> Hi Troops

>

> Spoke to a chap today with severely affected lad of 9 years.

>

> Consultant Rx Melatonin syrup, 5mg used to work, for over a year

now 20mg is

> doing nothing.

>

> Child can go 48 hours with NO sleep at all. Sometimes he will go

one night

> sleep, next night none. He is SCD & GFCF.

>

> Ideas anyone?

>

> I felt that Adrenals are likely shot to bits, his and his parents -

do you

> think ACE might help on the sleep side too?

>

> Anyone done neurotransmitter testing for this issue? Did it help?

(I always

> remember AC posting you don't pee your brains out so how accurate

can it be

> ROFL)

>

> All thoughts gratefully received, this family is desperate

>

> TIA

>

> Mandi x

>

[Guest guest]

Hi Mandi might be a long shot but when Sophie went into a stage of

hideous no sleep we tried cranial osteopathy and it really did help A

LOT also have they tried GABA 5htp and or l'theanine they also helped

us.Sorry to hear they are having such a tough time emx

>

> Hi Troops

>

> Spoke to a chap today with severely affected lad of 9 years.

>

> Consultant Rx Melatonin syrup, 5mg used to work, for over a year

now 20mg is

> doing nothing.

>

> Child can go 48 hours with NO sleep at all. Sometimes he will go

one night

> sleep, next night none. He is SCD & GFCF.

>

> Ideas anyone?

>

> I felt that Adrenals are likely shot to bits, his and his parents -

do you

> think ACE might help on the sleep side too?

>

> Anyone done neurotransmitter testing for this issue? Did it help?

(I always

> remember AC posting you don't pee your brains out so how accurate

can it be

> ROFL)

>

> All thoughts gratefully received, this family is desperate

>

> TIA

>

> Mandi x

>

[Guest guest]

Yes, I think it would be a good thing to address the adrenals. Also,

melatonin might work better if dropped down to just a tiny bit, like

1 mg. Worth a try anyhow. I would think at 20 mgs that would cause

just about anybody to start dumping it and therefore have the

opposite impact.

Is the boy using 5HTP?

Is his gut much better on that diet? Are they using nuts on SCD? If

so, maybe lectins are still damaging the gut--not the case for all

kids, but if it is the case, then serotonin levels could be screwed.

I would also try to have the boy spend almost all day outside if

possible and then, as has been mentioned, complete darkness to signal

the pineal gland. Also, if quiet doesn't work, some sort of white

noise might help.

For ds phenol intolerance really played havoc with sleep (not like

this poor boy) but might be something to consider.

Anita

>

> Hi Troops

>

> Spoke to a chap today with severely affected lad of 9 years.

>

> Consultant Rx Melatonin syrup, 5mg used to work, for over a year

now 20mg is

> doing nothing.

>

> Child can go 48 hours with NO sleep at all. Sometimes he will go

one night

> sleep, next night none. He is SCD & GFCF.

>

> Ideas anyone?

>

> I felt that Adrenals are likely shot to bits, his and his parents -

do you

> think ACE might help on the sleep side too?

>

> Anyone done neurotransmitter testing for this issue? Did it help?

(I always

> remember AC posting you don't pee your brains out so how accurate

can it be

> ROFL)

>

> All thoughts gratefully received, this family is desperate

>

> TIA

>

> Mandi x

>

[Guest guest]

>

> YES YES, Adrenal cortex has done it for us!!!

> BUT he recently had antibiotics followed by increased probiotics but

> this has disrupted his sleep again. He is so sensitive.

> Sara

Sara,

's book on adrenal fatigue states that infections can cause

enormous stress to the adrenals. This may be the case with your son

and perhaps a bit extra adrenal support for the next little while would

be a good idea. Especially considering all the other stuff that the

poor chap's been through.

Anita

[Guest guest]

Hi Mandi

Not Anita or but had a few thoughts on this. When I felt quite

ill earlier this year my melatonin profile ws horribly wrong with

peaks in the day when they should hae been at night. My sleep was

awful and I ws really tired. This can be esily tested by 4 salia

smples if the little boy would comply but I imagine thats difficult

for most of our kids. A good wy to reset is to hae a walk before 11

am as the body resets itself. The accompanying drenal profile for me

was rubbish as were hormones. With appropriate adrenal supplements I

imagine its much better. But haent re-tested.

Ecuse my typing some of my computer keys not working. are there any

other behaiours at night like sweating, turning, lying in funny

positions, how about what he uses on his bed du et or blankets? We

battled badly with s sleep but for us the min issue ws the

bowel and tht would be my first thought with this little guy? Any

hopes of him haing any inestigations for that? lso more obious things

like tooth aches. For us lots of night time stuff is yeasty relted

but I know you know all tht.

We did do a neurotransmitter profile when we had this problem and I

dont think it ws particularly helpful. It showed some serotonin low

nd glutmates high if I rememeber. Hae they tried anything like

tryptophan or Gaba?

Another thing hae they recently decorated the room or done anything

different in the house? New bed, bedding. s pretty sensitie

and we had some probs after doing her room all girly at one point. I

also herd of another family who did up there liing room. It had red

lower walls and a red carpet and the child wouldnt go in there at

all. They couldnt figure out why and gradually tracked it back to

when they decorated. Once they repainted the walls problem soled.

We spoke to a psychologist at one point about s sleep he

suggested a weighted blanket, or a electric underblanket, huge toy if

sleeping without the parents is an issue. Our problem ws also not the

going to sleep but the staying asleep. So when we used melatonin I

gae it before I went to bed t 11-12 then we managed to keep

asleep better.

Poor people the horror of no sleeps indescribable. Bowel really worth

checking een a massie clear out, lots probios, course of Colloidal

siler and cande and a few weeks on SCD intro would be what I would

try to tckle some of it. Good Luck.

Caroline

(kisses key broken!)

[Guest guest]

when i was pregnant with my boy, our living room was red. It made me

ill, and to this day, just thinking about it still makes me feel

queasy. Colour defo has effects. we painted our living room yellow

after that and our boy was always more hyper - now its a light slate

oolour and all seems to be much better.

>

> Hi Mandi

>

> Not Anita or but had a few thoughts on this. When I felt

quite

> ill earlier this year my melatonin profile ws horribly wrong with

> peaks in the day when they should hae been at night. My sleep was

> awful and I ws really tired. This can be esily tested by 4 salia

> smples if the little boy would comply but I imagine thats difficult

> for most of our kids. A good wy to reset is to hae a walk before 11

> am as the body resets itself. The accompanying drenal profile for

me

> was rubbish as were hormones. With appropriate adrenal supplements

I

> imagine its much better. But haent re-tested.

>

> Ecuse my typing some of my computer keys not working. are there any

> other behaiours at night like sweating, turning, lying in funny

> positions, how about what he uses on his bed du et or blankets? We

> battled badly with s sleep but for us the min issue ws the

> bowel and tht would be my first thought with this little guy? Any

> hopes of him haing any inestigations for that? lso more obious

things

> like tooth aches. For us lots of night time stuff is yeasty relted

> but I know you know all tht.

>

> We did do a neurotransmitter profile when we had this problem and I

> dont think it ws particularly helpful. It showed some serotonin low

> nd glutmates high if I rememeber. Hae they tried anything like

> tryptophan or Gaba?

>

> Another thing hae they recently decorated the room or done anything

> different in the house? New bed, bedding. s pretty sensitie

> and we had some probs after doing her room all girly at one point.

I

> also herd of another family who did up there liing room. It had red

> lower walls and a red carpet and the child wouldnt go in there at

> all. They couldnt figure out why and gradually tracked it back to

> when they decorated. Once they repainted the walls problem soled.

>

> We spoke to a psychologist at one point about s sleep he

> suggested a weighted blanket, or a electric underblanket, huge toy

if

> sleeping without the parents is an issue. Our problem ws also not

the

> going to sleep but the staying asleep. So when we used melatonin I

> gae it before I went to bed t 11-12 then we managed to keep

> asleep better.

>

> Poor people the horror of no sleeps indescribable. Bowel really

worth

> checking een a massie clear out, lots probios, course of Colloidal

> siler and cande and a few weeks on SCD intro would be what I would

> try to tckle some of it. Good Luck.

>

> Caroline

> (kisses key broken!)

>

[Guest guest]

> >

> > Hi Troops

> >

> > Spoke to a chap today with severely affected lad of 9 years.

> >

> > Consultant Rx Melatonin syrup, 5mg used to work, for over a year

> now 20mg is

> > doing nothing.

> >

> > Child can go 48 hours with NO sleep at all. Sometimes he will go

> one night

> > sleep, next night none. He is SCD & GFCF.

> >

> > Ideas anyone?

> >

> > I felt that Adrenals are likely shot to bits, his and his

parents -

> do you

> > think ACE might help on the sleep side too?

> >

> > Anyone done neurotransmitter testing for this issue? Did it help?

> (I always

> > remember AC posting you don't pee your brains out so how accurate

> can it be

> > ROFL)

> >

> > All thoughts gratefully received, this family is desperate

> >

> > TIA

> >

> > Mandi x

> >

>

[Guest guest]

Nightmare!! talking of which, we were told not to go over 9mg of

melatonin as it can cause nightmares. so it might be that he's

scared to fall asleep if the high dose has had a negative effect.

told us this and it was reiterated with NHS (a rare

meeting of minds that one)

What about 5HTP just for its good mood/relaxing thing. Failing that

clonidine (rx) would knock him out but wouldn't stop him waking

again a few hours later. Arenal support has helped Tom a lot I

think, reduced number of meltdowns certainly.

Poor parents.

S xx

>

> Hi Troops

>

> Spoke to a chap today with severely affected lad of 9 years.

>

> Consultant Rx Melatonin syrup, 5mg used to work, for over a year

now 20mg is

> doing nothing.

>

> Child can go 48 hours with NO sleep at all. Sometimes he will go

one night

> sleep, next night none. He is SCD & GFCF.

>

> Ideas anyone?

>

> I felt that Adrenals are likely shot to bits, his and his parents -

do you

> think ACE might help on the sleep side too?

>

> Anyone done neurotransmitter testing for this issue? Did it help?

(I always

> remember AC posting you don't pee your brains out so how accurate

can it be

> ROFL)

>

> All thoughts gratefully received, this family is desperate

>

> TIA

>

> Mandi x

>

[Guest guest]

Hi Anita,

Thanks, I'm desperate to sort it out, sometimes I think there is no

point going to bed as when he is lying awake he is moving the whole

night - restless legs, sitting up, trying to climb over me, kicking me,

though unintentional - I get really mad with him The only upside

to his lack of sleep which is very unusual is he will have no seizures

(maybe just some twitches), but when he sleeps he will certainly have a

grand mal seizure or two that day.

Think I'll try the AC again, we only went up to 500mg so looks like a

higher dose is worth a try considering ds weight :-) I've got the C,

B's, E and high mag already in, but no chromium. I'll let you know how

we get on.

If that is white noise, then the constant humming of the air

conditioning in the room on holiday may have been helping!! Please let

me know if you come across white noise machines.

Thanks very much,

emily x

>

> ,

>

> I'm very sorry to hear that things are still this way. For dosing

> AC, some kids need quite a large amount. My ds, who weighed only 40

> pounds at the time, used 750 mgs a day for quite a long time, along

> with really high amounts of C and lots of B, esp B2. I've also been

> reading since and have realized the importance of adding E. We also

> use lots of mag and a small amount of chromium each day. Both my

> kids responded very quickly to adrenal support. Doing the same for

> DH now, who I realize has completely shot adrenals, and the results

> are very slow in coming. It can take some time to repair the damage.

>

> White noise is a continuous background noise. Kind of like the noise

> you would get while riding in a car at night or from a fan. Lots of

> poeple sleep better with white noise (I am one of them). When my

> kids were babies and wouldn't sleep I would put them in the laundry

> room with the drier on and they'd be asleep in just a couple

> minutes. You can actually buy white noise machines for sleep. I

> don't know much about those but am looking into them. Older ds is

> often woken up by younger ASD son during the night (the bedrooms are

> side by side) and I think a white noise machine would help the

> situation for older DS.

>

> There has been a study I think showing that white noise during the

> day actually helps people with ADD/ADHD concentrate.

>

> Anita

>

[Guest guest]

Hi ,

This is the one I'm thinking of getting when I have the money

(although the price is pretty good).

http://www.whitenoisemachine.co.uk/

The white noise may very well have helped while you were on

vacation. It may also have been the sun. I sound like a gadget-

crazy woman (which I'm not) but I wonder if a sun lamp of some sort

would help your son? We need UVB rays to produce Vitamin D and

natural light is a huge part of the circadian cycle and health in

general. Not sure if any lamp would be considered the same as

natural light, but here in the UK there aren't too many options for

natural sun.

It might be worth checking into. My sister bought one for her son in

Canada (where I come from it isn't possible to make D from the sun

for 6 months of the year. I think the same is true for here

probably). She thought it was helping but I'm not sure they're very

committed to using it often enough.

Anyway, I don't want to sound like I'm endorsing this, cause I don't

have enough info, but it would be worth looking into if your son was

actually sleeping on holidays.

I know that feeling of being hit, kicked, rolled over, poked in the

eye, etc. No matter how much you know it's not their fault, it is

impossible not to feel frustrated :-(

I hope you get to the bottom of this soon, .

Anita

>

>

>

> Hi Anita,

>

> Thanks, I'm desperate to sort it out, sometimes I think there is no

> point going to bed as when he is lying awake he is moving the whole

> night - restless legs, sitting up, trying to climb over me, kicking

me,

> though unintentional - I get really mad with him The only

upside

> to his lack of sleep which is very unusual is he will have no

seizures

> (maybe just some twitches), but when he sleeps he will certainly

have a

> grand mal seizure or two that day.

>

> Think I'll try the AC again, we only went up to 500mg so looks like

a

> higher dose is worth a try considering ds weight :-) I've got

the C,

> B's, E and high mag already in, but no chromium. I'll let you know

how

> we get on.

>

> If that is white noise, then the constant humming of the air

> conditioning in the room on holiday may have been helping!!

Please let

> me know if you come across white noise machines.

>

> Thanks very much,

>

> emily x

>

>

> >

> > ,

> >

> > I'm very sorry to hear that things are still this way. For dosing

> > AC, some kids need quite a large amount. My ds, who weighed only

40

> > pounds at the time, used 750 mgs a day for quite a long time,

along

> > with really high amounts of C and lots of B, esp B2. I've also

been

> > reading since and have realized the importance of adding E. We

also

> > use lots of mag and a small amount of chromium each day. Both my

> > kids responded very quickly to adrenal support. Doing the same for

> > DH now, who I realize has completely shot adrenals, and the

results

> > are very slow in coming. It can take some time to repair the

damage.

> >

> > White noise is a continuous background noise. Kind of like the

noise

> > you would get while riding in a car at night or from a fan. Lots

of

> > poeple sleep better with white noise (I am one of them). When my

> > kids were babies and wouldn't sleep I would put them in the

laundry

> > room with the drier on and they'd be asleep in just a couple

> > minutes. You can actually buy white noise machines for sleep. I

> > don't know much about those but am looking into them. Older ds is

> > often woken up by younger ASD son during the night (the bedrooms

are

> > side by side) and I think a white noise machine would help the

> > situation for older DS.

> >

> > There has been a study I think showing that white noise during the

> > day actually helps people with ADD/ADHD concentrate.

> >

> > Anita

> >

>

[Guest guest]

Hi

My son was absolutely gorgeous on holiday in Spain in the summer,

apart from 1 minor incident when he emptied the entire contents of my

bag into the marina.

I'm going to get one ot these special vit D lights from Boots in the

New year, hopefully in the Sales. 's sleep is v hit and miss at

home. I would say the Adrenal cortex is defin helping though. Having

read Anita's posts I think I will increase as he is only on 250 mg at

the mo. (9yrs old)

Good luck

Helen x

> >

> >

> >

> > Hi Anita,

> >

> > Thanks, I'm desperate to sort it out, sometimes I think there is

no

> > point going to bed as when he is lying awake he is moving the

whole

> > night - restless legs, sitting up, trying to climb over me,

kicking

> me,

> > though unintentional - I get really mad with him The only

> upside

> > to his lack of sleep which is very unusual is he will have no

> seizures

> > (maybe just some twitches), but when he sleeps he will certainly

> have a

> > grand mal seizure or two that day.

> >

> > Think I'll try the AC again, we only went up to 500mg so looks

like

> a

> > higher dose is worth a try considering ds weight :-) I've got

> the C,

> > B's, E and high mag already in, but no chromium. I'll let you

know

> how

> > we get on.

> >

> > If that is white noise, then the constant humming of the air

> > conditioning in the room on holiday may have been helping!!

> Please let

> > me know if you come across white noise machines.

> >

> > Thanks very much,

> >

> > emily x

> >

> >

> > >

> > > ,

> > >

> > > I'm very sorry to hear that things are still this way. For

dosing

> > > AC, some kids need quite a large amount. My ds, who weighed

only

> 40

> > > pounds at the time, used 750 mgs a day for quite a long time,

> along

> > > with really high amounts of C and lots of B, esp B2. I've also

> been

> > > reading since and have realized the importance of adding E. We

> also

> > > use lots of mag and a small amount of chromium each day. Both my

> > > kids responded very quickly to adrenal support. Doing the same

for

> > > DH now, who I realize has completely shot adrenals, and the

> results

> > > are very slow in coming. It can take some time to repair the

> damage.

> > >

> > > White noise is a continuous background noise. Kind of like the

> noise

> > > you would get while riding in a car at night or from a fan.

Lots

> of

> > > poeple sleep better with white noise (I am one of them). When my

> > > kids were babies and wouldn't sleep I would put them in the

> laundry

> > > room with the drier on and they'd be asleep in just a couple

> > > minutes. You can actually buy white noise machines for sleep. I

> > > don't know much about those but am looking into them. Older ds

is

> > > often woken up by younger ASD son during the night (the

bedrooms

> are

> > > side by side) and I think a white noise machine would help the

> > > situation for older DS.

> > >

> > > There has been a study I think showing that white noise during

the

> > > day actually helps people with ADD/ADHD concentrate.

> > >

> > > Anita

> > >

> >

>

[Guest guest]

Hi

My son was absolutely gorgeous on holiday in Spain in the summer,

apart from 1 minor incident when he emptied the entire contents of my

bag into the marina.

I'm going to get one ot these special vit D lights from Boots in the

New year, hopefully in the Sales. 's sleep is v hit and miss at

home. I would say the Adrenal cortex is defin helping though. Having

read Anita's posts I think I will increase as he is only on 250 mg at

the mo. (9yrs old)

Good luck

Helen x

> >

> >

> >

> > Hi Anita,

> >

> > Thanks, I'm desperate to sort it out, sometimes I think there is

no

> > point going to bed as when he is lying awake he is moving the

whole

> > night - restless legs, sitting up, trying to climb over me,

kicking

> me,

> > though unintentional - I get really mad with him The only

> upside

> > to his lack of sleep which is very unusual is he will have no

> seizures

> > (maybe just some twitches), but when he sleeps he will certainly

> have a

> > grand mal seizure or two that day.

> >

> > Think I'll try the AC again, we only went up to 500mg so looks

like

> a

> > higher dose is worth a try considering ds weight :-) I've got

> the C,

> > B's, E and high mag already in, but no chromium. I'll let you

know

> how

> > we get on.

> >

> > If that is white noise, then the constant humming of the air

> > conditioning in the room on holiday may have been helping!!

> Please let

> > me know if you come across white noise machines.

> >

> > Thanks very much,

> >

> > emily x

> >

> >

> > >

> > > ,

> > >

> > > I'm very sorry to hear that things are still this way. For

dosing

> > > AC, some kids need quite a large amount. My ds, who weighed

only

> 40

> > > pounds at the time, used 750 mgs a day for quite a long time,

> along

> > > with really high amounts of C and lots of B, esp B2. I've also

> been

> > > reading since and have realized the importance of adding E. We

> also

> > > use lots of mag and a small amount of chromium each day. Both my

> > > kids responded very quickly to adrenal support. Doing the same

for

> > > DH now, who I realize has completely shot adrenals, and the

> results

> > > are very slow in coming. It can take some time to repair the

> damage.

> > >

> > > White noise is a continuous background noise. Kind of like the

> noise

> > > you would get while riding in a car at night or from a fan.

Lots

> of

> > > poeple sleep better with white noise (I am one of them). When my

> > > kids were babies and wouldn't sleep I would put them in the

> laundry

> > > room with the drier on and they'd be asleep in just a couple

> > > minutes. You can actually buy white noise machines for sleep. I

> > > don't know much about those but am looking into them. Older ds

is

> > > often woken up by younger ASD son during the night (the

bedrooms

> are

> > > side by side) and I think a white noise machine would help the

> > > situation for older DS.

> > >

> > > There has been a study I think showing that white noise during

the

> > > day actually helps people with ADD/ADHD concentrate.

> > >

> > > Anita

> > >

> >

>

[Guest guest]

Hi Helen,

I can picture this but can't stop smiling (sorry! not funny when it

happens at the time) ....

Glad to hear the AC has helped . Thanks, you give me hope, I'll

also look at the lamps in Boots as well.

Merry Christmas,

emily x

> > >

> > >

> > >

> > > Hi Anita,

> > >

> > > Thanks, I'm desperate to sort it out, sometimes I think there is

> no

> > > point going to bed as when he is lying awake he is moving the

> whole

> > > night - restless legs, sitting up, trying to climb over me,

> kicking

> > me,

> > > though unintentional - I get really mad with him The only

> > upside

> > > to his lack of sleep which is very unusual is he will have no

> > seizures

> > > (maybe just some twitches), but when he sleeps he will certainly

> > have a

> > > grand mal seizure or two that day.

> > >

> > > Think I'll try the AC again, we only went up to 500mg so looks

> like

> > a

> > > higher dose is worth a try considering ds weight :-) I've got

> > the C,

> > > B's, E and high mag already in, but no chromium. I'll let you

> know

> > how

> > > we get on.

> > >

> > > If that is white noise, then the constant humming of the air

> > > conditioning in the room on holiday may have been helping!!

> > Please let

> > > me know if you come across white noise machines.

> > >

> > > Thanks very much,

> > >

> > > emily x

> > >

> > >

> > > >

> > > > ,

> > > >

> > > > I'm very sorry to hear that things are still this way. For

> dosing

> > > > AC, some kids need quite a large amount. My ds, who weighed

> only

> > 40

> > > > pounds at the time, used 750 mgs a day for quite a long time,

> > along

> > > > with really high amounts of C and lots of B, esp B2. I've also

> > been

> > > > reading since and have realized the importance of adding E. We

> > also

> > > > use lots of mag and a small amount of chromium each day. Both my

> > > > kids responded very quickly to adrenal support. Doing the same

> for

> > > > DH now, who I realize has completely shot adrenals, and the

> > results

> > > > are very slow in coming. It can take some time to repair the

> > damage.

> > > >

> > > > White noise is a continuous background noise. Kind of like the

> > noise

> > > > you would get while riding in a car at night or from a fan.

> Lots

> > of

> > > > poeple sleep better with white noise (I am one of them). When my

> > > > kids were babies and wouldn't sleep I would put them in the

> > laundry

> > > > room with the drier on and they'd be asleep in just a couple

> > > > minutes. You can actually buy white noise machines for sleep. I

> > > > don't know much about those but am looking into them. Older ds

> is

> > > > often woken up by younger ASD son during the night (the

> bedrooms

> > are

> > > > side by side) and I think a white noise machine would help the

> > > > situation for older DS.

> > > >

> > > > There has been a study I think showing that white noise during

> the

> > > > day actually helps people with ADD/ADHD concentrate.

> > > >

> > > > Anita

> > > >

> > >

> >

>

[Guest guest]

Hi Helen,

I can picture this but can't stop smiling (sorry! not funny when it

happens at the time) ....

Glad to hear the AC has helped . Thanks, you give me hope, I'll

also look at the lamps in Boots as well.

Merry Christmas,

emily x

> > >

> > >

> > >

> > > Hi Anita,

> > >

> > > Thanks, I'm desperate to sort it out, sometimes I think there is

> no

> > > point going to bed as when he is lying awake he is moving the

> whole

> > > night - restless legs, sitting up, trying to climb over me,

> kicking

> > me,

> > > though unintentional - I get really mad with him The only

> > upside

> > > to his lack of sleep which is very unusual is he will have no

> > seizures

> > > (maybe just some twitches), but when he sleeps he will certainly

> > have a

> > > grand mal seizure or two that day.

> > >

> > > Think I'll try the AC again, we only went up to 500mg so looks

> like

> > a

> > > higher dose is worth a try considering ds weight :-) I've got

> > the C,

> > > B's, E and high mag already in, but no chromium. I'll let you

> know

> > how

> > > we get on.

> > >

> > > If that is white noise, then the constant humming of the air

> > > conditioning in the room on holiday may have been helping!!

> > Please let

> > > me know if you come across white noise machines.

> > >

> > > Thanks very much,

> > >

> > > emily x

> > >

> > >

> > > >

> > > > ,

> > > >

> > > > I'm very sorry to hear that things are still this way. For

> dosing

> > > > AC, some kids need quite a large amount. My ds, who weighed

> only

> > 40

> > > > pounds at the time, used 750 mgs a day for quite a long time,

> > along

> > > > with really high amounts of C and lots of B, esp B2. I've also

> > been

> > > > reading since and have realized the importance of adding E. We

> > also

> > > > use lots of mag and a small amount of chromium each day. Both my

> > > > kids responded very quickly to adrenal support. Doing the same

> for

> > > > DH now, who I realize has completely shot adrenals, and the

> > results

> > > > are very slow in coming. It can take some time to repair the

> > damage.

> > > >

> > > > White noise is a continuous background noise. Kind of like the

> > noise

> > > > you would get while riding in a car at night or from a fan.

> Lots

> > of

> > > > poeple sleep better with white noise (I am one of them). When my

> > > > kids were babies and wouldn't sleep I would put them in the

> > laundry

> > > > room with the drier on and they'd be asleep in just a couple

> > > > minutes. You can actually buy white noise machines for sleep. I

> > > > don't know much about those but am looking into them. Older ds

> is

> > > > often woken up by younger ASD son during the night (the

> bedrooms

> > are

> > > > side by side) and I think a white noise machine would help the

> > > > situation for older DS.

> > > >

> > > > There has been a study I think showing that white noise during

> the

> > > > day actually helps people with ADD/ADHD concentrate.

> > > >

> > > > Anita

> > > >

> > >

> >

>

[Guest guest]

Hi Helen,

I can picture this but can't stop smiling (sorry! not funny when it

happens at the time) ....

Glad to hear the AC has helped . Thanks, you give me hope, I'll

also look at the lamps in Boots as well.

Merry Christmas,

emily x

> > >

> > >

> > >

> > > Hi Anita,

> > >

> > > Thanks, I'm desperate to sort it out, sometimes I think there is

> no

> > > point going to bed as when he is lying awake he is moving the

> whole

> > > night - restless legs, sitting up, trying to climb over me,

> kicking

> > me,

> > > though unintentional - I get really mad with him The only

> > upside

> > > to his lack of sleep which is very unusual is he will have no

> > seizures

> > > (maybe just some twitches), but when he sleeps he will certainly

> > have a

> > > grand mal seizure or two that day.

> > >

> > > Think I'll try the AC again, we only went up to 500mg so looks

> like

> > a

> > > higher dose is worth a try considering ds weight :-) I've got

> > the C,

> > > B's, E and high mag already in, but no chromium. I'll let you

> know

> > how

> > > we get on.

> > >

> > > If that is white noise, then the constant humming of the air

> > > conditioning in the room on holiday may have been helping!!

> > Please let

> > > me know if you come across white noise machines.

> > >

> > > Thanks very much,

> > >

> > > emily x

> > >

> > >

> > > >

> > > > ,

> > > >

> > > > I'm very sorry to hear that things are still this way. For

> dosing

> > > > AC, some kids need quite a large amount. My ds, who weighed

> only

> > 40

> > > > pounds at the time, used 750 mgs a day for quite a long time,

> > along

> > > > with really high amounts of C and lots of B, esp B2. I've also

> > been

> > > > reading since and have realized the importance of adding E. We

> > also

> > > > use lots of mag and a small amount of chromium each day. Both my

> > > > kids responded very quickly to adrenal support. Doing the same

> for

> > > > DH now, who I realize has completely shot adrenals, and the

> > results

> > > > are very slow in coming. It can take some time to repair the

> > damage.

> > > >

> > > > White noise is a continuous background noise. Kind of like the

> > noise

> > > > you would get while riding in a car at night or from a fan.

> Lots

> > of

> > > > poeple sleep better with white noise (I am one of them). When my

> > > > kids were babies and wouldn't sleep I would put them in the

> > laundry

> > > > room with the drier on and they'd be asleep in just a couple

> > > > minutes. You can actually buy white noise machines for sleep. I

> > > > don't know much about those but am looking into them. Older ds

> is

> > > > often woken up by younger ASD son during the night (the

> bedrooms

> > are

> > > > side by side) and I think a white noise machine would help the

> > > > situation for older DS.

> > > >

> > > > There has been a study I think showing that white noise during

> the

> > > > day actually helps people with ADD/ADHD concentrate.

> > > >

> > > > Anita

> > > >

> > >

> >

>

[Guest guest]

Hi Anita,

Thanks very much for all the advice and ideas, now feeling positive and

confident ;-) to get this problem sorted. Here is to better sleep

for 2009!!!!

Merry Christmas,

emily x

ism-Biomedical-Europe , " Anita " wrote:

>

> Hi ,

>

> This is the one I'm thinking of getting when I have the money

> (although the price is pretty good).

> http://www.whitenoisemachine.co.uk/

>

> The white noise may very well have helped while you were on

> vacation. It may also have been the sun. I sound like a gadget-

> crazy woman (which I'm not) but I wonder if a sun lamp of some sort

> would help your son? We need UVB rays to produce Vitamin D and

> natural light is a huge part of the circadian cycle and health in

> general. Not sure if any lamp would be considered the same as

> natural light, but here in the UK there aren't too many options for

> natural sun.

>

> It might be worth checking into. My sister bought one for her son in

> Canada (where I come from it isn't possible to make D from the sun

> for 6 months of the year. I think the same is true for here

> probably). She thought it was helping but I'm not sure they're very

> committed to using it often enough.

>

> Anyway, I don't want to sound like I'm endorsing this, cause I don't

> have enough info, but it would be worth looking into if your son was

> actually sleeping on holidays.

>

> I know that feeling of being hit, kicked, rolled over, poked in the

> eye, etc. No matter how much you know it's not their fault, it is

> impossible not to feel frustrated :-(

>

> I hope you get to the bottom of this soon, .

>

> Anita

>

>

>

>

> >

> >

> >

> > Hi Anita,

> >

> > Thanks, I'm desperate to sort it out, sometimes I think there is no

> > point going to bed as when he is lying awake he is moving the whole

> > night - restless legs, sitting up, trying to climb over me, kicking

> me,

> > though unintentional - I get really mad with him The only

> upside

> > to his lack of sleep which is very unusual is he will have no

> seizures

> > (maybe just some twitches), but when he sleeps he will certainly

> have a

> > grand mal seizure or two that day.

> >

> > Think I'll try the AC again, we only went up to 500mg so looks like

> a

> > higher dose is worth a try considering ds weight :-) I've got

> the C,

> > B's, E and high mag already in, but no chromium. I'll let you know

> how

> > we get on.

> >

> > If that is white noise, then the constant humming of the air

> > conditioning in the room on holiday may have been helping!!

> Please let

> > me know if you come across white noise machines.

> >

> > Thanks very much,

> >

> > emily x

> >

> >

> > >

> > > ,

> > >

> > > I'm very sorry to hear that things are still this way. For dosing

> > > AC, some kids need quite a large amount. My ds, who weighed only

> 40

> > > pounds at the time, used 750 mgs a day for quite a long time,

> along

> > > with really high amounts of C and lots of B, esp B2. I've also

> been

> > > reading since and have realized the importance of adding E. We

> also

> > > use lots of mag and a small amount of chromium each day. Both my

> > > kids responded very quickly to adrenal support. Doing the same for

> > > DH now, who I realize has completely shot adrenals, and the

> results

> > > are very slow in coming. It can take some time to repair the

> damage.

> > >

> > > White noise is a continuous background noise. Kind of like the

> noise

> > > you would get while riding in a car at night or from a fan. Lots

> of

> > > poeple sleep better with white noise (I am one of them). When my

> > > kids were babies and wouldn't sleep I would put them in the

> laundry

> > > room with the drier on and they'd be asleep in just a couple

> > > minutes. You can actually buy white noise machines for sleep. I

> > > don't know much about those but am looking into them. Older ds is

> > > often woken up by younger ASD son during the night (the bedrooms

> are

> > > side by side) and I think a white noise machine would help the

> > > situation for older DS.

> > >

> > > There has been a study I think showing that white noise during the

> > > day actually helps people with ADD/ADHD concentrate.

> > >

> > > Anita

> > >

> >

>

[Guest guest]

Hi Anita,

Thanks very much for all the advice and ideas, now feeling positive and

confident ;-) to get this problem sorted. Here is to better sleep

for 2009!!!!

Merry Christmas,

emily x

ism-Biomedical-Europe , " Anita " wrote:

>

> Hi ,

>

> This is the one I'm thinking of getting when I have the money

> (although the price is pretty good).

> http://www.whitenoisemachine.co.uk/

>

> The white noise may very well have helped while you were on

> vacation. It may also have been the sun. I sound like a gadget-

> crazy woman (which I'm not) but I wonder if a sun lamp of some sort

> would help your son? We need UVB rays to produce Vitamin D and

> natural light is a huge part of the circadian cycle and health in

> general. Not sure if any lamp would be considered the same as

> natural light, but here in the UK there aren't too many options for

> natural sun.

>

> It might be worth checking into. My sister bought one for her son in

> Canada (where I come from it isn't possible to make D from the sun

> for 6 months of the year. I think the same is true for here

> probably). She thought it was helping but I'm not sure they're very

> committed to using it often enough.

>

> Anyway, I don't want to sound like I'm endorsing this, cause I don't

> have enough info, but it would be worth looking into if your son was

> actually sleeping on holidays.

>

> I know that feeling of being hit, kicked, rolled over, poked in the

> eye, etc. No matter how much you know it's not their fault, it is

> impossible not to feel frustrated :-(

>

> I hope you get to the bottom of this soon, .

>

> Anita

>

>

>

>

> >

> >

> >

> > Hi Anita,

> >

> > Thanks, I'm desperate to sort it out, sometimes I think there is no

> > point going to bed as when he is lying awake he is moving the whole

> > night - restless legs, sitting up, trying to climb over me, kicking

> me,

> > though unintentional - I get really mad with him The only

> upside

> > to his lack of sleep which is very unusual is he will have no

> seizures

> > (maybe just some twitches), but when he sleeps he will certainly

> have a

> > grand mal seizure or two that day.

> >

> > Think I'll try the AC again, we only went up to 500mg so looks like

> a

> > higher dose is worth a try considering ds weight :-) I've got

> the C,

> > B's, E and high mag already in, but no chromium. I'll let you know

> how

> > we get on.

> >

> > If that is white noise, then the constant humming of the air

> > conditioning in the room on holiday may have been helping!!

> Please let

> > me know if you come across white noise machines.

> >

> > Thanks very much,

> >

> > emily x

> >

> >

> > >

> > > ,

> > >

> > > I'm very sorry to hear that things are still this way. For dosing

> > > AC, some kids need quite a large amount. My ds, who weighed only

> 40

> > > pounds at the time, used 750 mgs a day for quite a long time,

> along

> > > with really high amounts of C and lots of B, esp B2. I've also

> been

> > > reading since and have realized the importance of adding E. We

> also

> > > use lots of mag and a small amount of chromium each day. Both my

> > > kids responded very quickly to adrenal support. Doing the same for

> > > DH now, who I realize has completely shot adrenals, and the

> results

> > > are very slow in coming. It can take some time to repair the

> damage.

> > >

> > > White noise is a continuous background noise. Kind of like the

> noise

> > > you would get while riding in a car at night or from a fan. Lots

> of

> > > poeple sleep better with white noise (I am one of them). When my

> > > kids were babies and wouldn't sleep I would put them in the

> laundry

> > > room with the drier on and they'd be asleep in just a couple

> > > minutes. You can actually buy white noise machines for sleep. I

> > > don't know much about those but am looking into them. Older ds is

> > > often woken up by younger ASD son during the night (the bedrooms

> are

> > > side by side) and I think a white noise machine would help the

> > > situation for older DS.

> > >

> > > There has been a study I think showing that white noise during the

> > > day actually helps people with ADD/ADHD concentrate.

> > >

> > > Anita

> > >

> >

>