Re: About having another child.

[Guest guest]

A HEALTH VISITOR IS NOT QUALIFIED TO GIVE YOU ADVICE ON THIS. She

should not be giving her advice on your risk of having another child

with a disability. In fact, your GP is not qualified to give you

advice on this. ONLY a geneticist can tell you what the current

medical opinion on this is after they have reviewed your family

history.

Since you have one child with a disability, you can request a

referral to a geneticist. They will take a detailed history of

yourself and your family, examine your child, and give you a rough

estimate of your chances of having another child with a disability.

Your GP or paediatrician can refer you. You may have a long wait.

There *is* a higher prevalence of ASD and other associated

disabilities (dyslexia, etc) among siblings but it is not

considered " HIGH " among geneticist. We were not willing to take the

risk, even though it was considered low. We simply would not be able

to give another child with a disability the opportunities that we

have been able to give and that would just kill us.

Best wishes as you make your decision,

Darla

>

>

>

> Dear Parents,I really need your opinion and of course hear your

> experience about the thought of having another child.Today had the

> visit of hte health visitor,had a very long chat and also told her

that

> having another child is in my thoughts.She really put me off saying

> that the chances of having another child with autism are very

high.What

> do you think?Thanks for your sharing your thoughts with me.

>

[Guest guest]

we saw a geneticist a couple of years ago who told us our chances were

about one in ten. BUT there are things you can do to minimise your

risk I am sure people would agree, in terms of your health. It's

irresponsible for a health visitor to say the chances are very high.

You are more likely than someone without an autistic child already but

you are still more likely to have a child without ASD (far more

likely). there is plenty of info out there and it's a huge decision

but " very high risk " - not that I've heard of from the geneticist.

Higher than average - yes.

>

>

>

> Dear Parents,I really need your opinion and of course hear your

> experience about the thought of having another child.Today had the

> visit of hte health visitor,had a very long chat and also told her that

> having another child is in my thoughts.She really put me off saying

> that the chances of having another child with autism are very high.What

> do you think?Thanks for your sharing your thoughts with me.

>

[Guest guest]

we saw a geneticist a couple of years ago who told us our chances were

about one in ten. BUT there are things you can do to minimise your

risk I am sure people would agree, in terms of your health. It's

irresponsible for a health visitor to say the chances are very high.

You are more likely than someone without an autistic child already but

you are still more likely to have a child without ASD (far more

likely). there is plenty of info out there and it's a huge decision

but " very high risk " - not that I've heard of from the geneticist.

Higher than average - yes.

>

>

>

> Dear Parents,I really need your opinion and of course hear your

> experience about the thought of having another child.Today had the

> visit of hte health visitor,had a very long chat and also told her that

> having another child is in my thoughts.She really put me off saying

> that the chances of having another child with autism are very high.What

> do you think?Thanks for your sharing your thoughts with me.

>

[Guest guest]

Hi

My daughter took this risk. She kept her daughter gluten free for 2

years, spread any vaccines - only 1 at a time. Her daughter has not

had MMR vaccine. Her daughter is fine.

But I believe her son was damaged by vaccination.

Jill

-- In Autism-Biomedical-Europe , " barby181075 "

wrote:

>

>

>

> Dear Parents,I really need your opinion and of course hear your

> experience about the thought of having another child.Today had the

> visit of hte health visitor,had a very long chat and also told her

that

> having another child is in my thoughts.She really put me off saying

> that the chances of having another child with autism are very

high.What

> do you think?Thanks for your sharing your thoughts with me.

>

[Guest guest]

Hi

My daughter took this risk. She kept her daughter gluten free for 2

years, spread any vaccines - only 1 at a time. Her daughter has not

had MMR vaccine. Her daughter is fine.

But I believe her son was damaged by vaccination.

Jill

-- In Autism-Biomedical-Europe , " barby181075 "

wrote:

>

>

>

> Dear Parents,I really need your opinion and of course hear your

> experience about the thought of having another child.Today had the

> visit of hte health visitor,had a very long chat and also told her

that

> having another child is in my thoughts.She really put me off saying

> that the chances of having another child with autism are very

high.What

> do you think?Thanks for your sharing your thoughts with me.

>

[Guest guest]

Maybe I'm deluding myself/foolishly optimistic,

but I believe that if I were to have another child (I won't, too old

and ds requires full-time care still) he/she would not become

autistic.

Yes, ds was more at risk genetically I suspect (dh was a wierd child,

to say the least), but a number of events really pushed him (chicken

pox, followed by MMR, followed by antibiotics, catch up vaccinations,

and then flu shots). Obviously, I would never let that happen to

another child.

Also, with the knowledge available to us now, I believe that even tho

parents on this board may have more genetic fragility, by doing the

right things we can negate that and have a greater chance of a

perfectly healthy baby than the remainder of the (ignorant) general

population.

If I were going to get pregnant, I would fix bacteria for both me and

dh, take methyl donors and good CLO, etc, for both me and dh starting

6 months prior to try to conceive, do all those things listed on a

previous thread about this. The agouti mouse study really showed to

me that diet is protective against many, many things, especially in

utero.

Dr. Leitchman on another board said that of the 900 or so families at

risk (autism, downs, or both) with proper supping, knowledge of

vaxes, etc, none had kids with autism or downs. Even at

the " normal " rate, at least some of those kids should have been

affected. At the high risk rate, many of those kids should have

been.

If a first child became autistic having had no vaxes, mom with no

fillings or vaxes, mom with perfectly healthy/clean diet, etc, then I

would be concerned. However, I don't know very many people with this

experience. It is very rare. The norm is people like me.

Your health care visitor is completely unaware of all this, I am

sure.

Anita

> >

> >

> >

> > Dear Parents,I really need your opinion and of course hear your

> > experience about the thought of having another child.Today had

the

> > visit of hte health visitor,had a very long chat and also told

her

> that

> > having another child is in my thoughts.She really put me off

saying

> > that the chances of having another child with autism are very

> high.What

> > do you think?Thanks for your sharing your thoughts with me.

> >

>

[Guest guest]

Maybe I'm deluding myself/foolishly optimistic,

but I believe that if I were to have another child (I won't, too old

and ds requires full-time care still) he/she would not become

autistic.

Yes, ds was more at risk genetically I suspect (dh was a wierd child,

to say the least), but a number of events really pushed him (chicken

pox, followed by MMR, followed by antibiotics, catch up vaccinations,

and then flu shots). Obviously, I would never let that happen to

another child.

Also, with the knowledge available to us now, I believe that even tho

parents on this board may have more genetic fragility, by doing the

right things we can negate that and have a greater chance of a

perfectly healthy baby than the remainder of the (ignorant) general

population.

If I were going to get pregnant, I would fix bacteria for both me and

dh, take methyl donors and good CLO, etc, for both me and dh starting

6 months prior to try to conceive, do all those things listed on a

previous thread about this. The agouti mouse study really showed to

me that diet is protective against many, many things, especially in

utero.

Dr. Leitchman on another board said that of the 900 or so families at

risk (autism, downs, or both) with proper supping, knowledge of

vaxes, etc, none had kids with autism or downs. Even at

the " normal " rate, at least some of those kids should have been

affected. At the high risk rate, many of those kids should have

been.

If a first child became autistic having had no vaxes, mom with no

fillings or vaxes, mom with perfectly healthy/clean diet, etc, then I

would be concerned. However, I don't know very many people with this

experience. It is very rare. The norm is people like me.

Your health care visitor is completely unaware of all this, I am

sure.

Anita

> >

> >

> >

> > Dear Parents,I really need your opinion and of course hear your

> > experience about the thought of having another child.Today had

the

> > visit of hte health visitor,had a very long chat and also told

her

> that

> > having another child is in my thoughts.She really put me off

saying

> > that the chances of having another child with autism are very

> high.What

> > do you think?Thanks for your sharing your thoughts with me.

> >

>

[Guest guest]

My eldest boy is autistic. We were heavily vaccinated for a 2 week

trip to Africa 12 months before conception. DS got all his vaccines

and regressed at 12-18 months.

His baby bro had no vaccines, breast fed, GF for first year and is

both NT and a wonderful child (even if I did come close to killing

him when he wouldn't eat dinner last night). I'd hate to think that

fear would have erased his chance to live.

Baby number 3 on the way. DW is GF, taking folic acid, no alcohol,

etc. And I'm glad we did this. Chances of this child having ASD are

tiny. We probably have a higher chance of having a child with cystic

fibrosis, as dw is a carrier and I haven't been tested. Both our sons

are carriers.

I can't live in fear. Have to look forward.

My eldest boy is severe ASD and he's going to need someone to mind

him when we're gone. For that reason alone, I think it's worth the

risk.

Anyway, even it the next baby is on the spectrum, I'll still love

him/her. And life can't get much weirder!

Liam

> > >

> > >

> > >

> > > Dear Parents,I really need your opinion and of course hear your

> > > experience about the thought of having another child.Today had

> the

> > > visit of hte health visitor,had a very long chat and also told

> her

> > that

> > > having another child is in my thoughts.She really put me off

> saying

> > > that the chances of having another child with autism are very

> > high.What

> > > do you think?Thanks for your sharing your thoughts with me.

> > >

> >

>

[Guest guest]

I came across a blog whose owner is the father of 13 children. Their

third child had autism and epilepsy and died a year ago, as a

teenager. It seems the other 12 children do not have autism or

epilepsy. Their 14th child is due in about 6 weeks. (Yes, the family

is Catholic, and yes, they live in the States. The father is an

anaesthetist.)

Margaret

> > > >

> > > >

> > > >

> > > > Dear Parents,I really need your opinion and of course hear

your

> > > > experience about the thought of having another child.Today

had

> > the

> > > > visit of hte health visitor,had a very long chat and also

told

> > her

> > > that

> > > > having another child is in my thoughts.She really put me off

> > saying

> > > > that the chances of having another child with autism are very

> > > high.What

> > > > do you think?Thanks for your sharing your thoughts with me.

> > > >

> > >

> >

>

[Guest guest]

Yeah, your post reminded me of Tammet (autistic savant who

memorised pi) - his family had 9 children, two on the spectrum. Not

particularly bad odds. But then there is a family in the US with six

biological children, five of whom are on the spectrum.

There was also the former Guardian columnist who had two severely

affected boys and had a third child who was unaffected.

As for reducing the risk, as I have stated numerous times before I

did all the detox, saintly stuff for several years before conception

and was still BORN with ASD, apparent from the day of birth in

his uncoordinated sucking ability,uncoordinated swallow and extensive

retained primitive reflexes. The onset had little to do with his

vax's although they tipped him over the edge.

I don't think anyone can predict much of anything. ;-)

Darla

> > > > >

> > > > >

> > > > >

> > > > > Dear Parents,I really need your opinion and of course hear

> your

> > > > > experience about the thought of having another child.Today

> had

> > > the

> > > > > visit of hte health visitor,had a very long chat and also

> told

> > > her

> > > > that

> > > > > having another child is in my thoughts.She really put me

off

> > > saying

> > > > > that the chances of having another child with autism are

very

> > > > high.What

> > > > > do you think?Thanks for your sharing your thoughts with me.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

hi

we have a second child (girl) she is very different baby from day one.

christopher was born and straightaway on antibiotic with lots of ear

infections. when we did try for second baby we didnt know christopher

was autistic, we only started searching google for clues, when we find

out baby no 2 was 1 month old. we did lots of tests for all of us and

i did had candida is well as christopher, baby zofia had none, we do

retest and she still fine .we give her vit c, probiotic and she is

breastfed. she only had some vaccination, and she want have any more

for now she is 9 months and 2 weeks old now ,happy baby i just dont

give her any bad foods and always watch her for anything ( red chicks,

ears its)

good luck

teresa

> > > > > >

> > > > > >

> > > > > >

> > > > > > Dear Parents,I really need your opinion and of course hear

> > your

> > > > > > experience about the thought of having another child.Today

> > had

> > > > the

> > > > > > visit of hte health visitor,had a very long chat and also

> > told

> > > > her

> > > > > that

> > > > > > having another child is in my thoughts.She really put me

> off

> > > > saying

> > > > > > that the chances of having another child with autism are

> very

> > > > > high.What

> > > > > > do you think?Thanks for your sharing your thoughts with me.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Barbara,

Can't offer any help really, It's your choice, but at least it will

be an informed one. And you can do all you can to minimise the risks.

Like Anita I'm Waaay too old (Or so my teenage girls tell me) so it's

not a dilemma for me.

I think I've said before that in our family of 9 grandchildren, 3

have severe autism, 1 is being diagnosed at the mo (prob high

functioning asd) 1 has bowel disease and 1 has allergies and asthma

(and ODD I think!)

Jane

P.S Are you the Barbara that mailed me a while ago? I had trouble

with my P.C and lost all my mail? If it was you mail me again for

more up to date info about what we discussed

> > > > > > -- In Autism-Biomedical-

Europe , " barby181075 "

> > > > > > <barbaracanepa86@> wrote:

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > Dear Parents,I really need your opinion and of course

hear

> > > your

> > > > > > > experience about the thought of having another

child.Today

> > > had

> > > > > the

> > > > > > > visit of hte health visitor,had a very long chat and

also

> > > told

> > > > > her

> > > > > > that

> > > > > > > having another child is in my thoughts.She really put

me

> > off

> > > > > saying

> > > > > > > that the chances of having another child with autism

are

> > very

> > > > > > high.What

> > > > > > > do you think?Thanks for your sharing your thoughts with

me.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

20y ago when I was clueless about what was going on w my 3y old, her

younger brother was born. He was a healthy little guy exc for lots of

ear infections, minimally vaccinated[as were all my kids] and was a

Godsend for the mentoring and tutoring he unknowingly offered his big

sister. She adored him and was willing to 'teach' and learn many

skills that she had missed as he progresed through normal

developmental stages. He was early allergic to milk so had none until

school age when he modeled peers for what to drink. This story

repeats itself somewhat in the next geheration for our family. My now

8y grandson was a lead and mercury mess at age 3y. His mom, my

oldest, had watched her younger sister go down the tubes and was

willing to implement biomedical interventions early on for her son.

Thankfully, he had missed many of the scheduled vaccines as he was

always sick. He's had none since. He entered Kindergarten w no

supportts and no one even aware of his toddler distress. He's funny,

smart, social[and VERY fortunate!]. His younger brother, 6y now, has

had no vaccines and is the healthiest of our grandchildren. This

oldest daughter is very attentive to her children's diet. Neither

have cow's milk to drink, not much other dairy and eat as arganic as

possible w very little sugar. Lots of good responses about good diet,

NO vaccines and supplements to use. If your heart is longing for

another child, I say go for it!

> > > > >

> > > > >

> > > > >

> > > > > Dear Parents,I really need your opinion and of course hear

> your

> > > > > experience about the thought of having another child.Today

> had

> > > the

> > > > > visit of hte health visitor,had a very long chat and also

> told

> > > her

> > > > that

> > > > > having another child is in my thoughts.She really put me

off

> > > saying

> > > > > that the chances of having another child with autism are

very

> > > > high.What

> > > > > do you think?Thanks for your sharing your thoughts with me.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Jane,

Was it about DLA?Unfortunately have no longer your mail,can you pls

forward to me?my mail is barbaracanepa86@... thanks

again.Barbara

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > Dear Parents,I really need your opinion and of course

> hear

> > > > your

> > > > > > > > experience about the thought of having another

> child.Today

> > > > had

> > > > > > the

> > > > > > > > visit of hte health visitor,had a very long chat and

> also

> > > > told

> > > > > > her

> > > > > > > that

> > > > > > > > having another child is in my thoughts.She really put

> me

> > > off

> > > > > > saying

> > > > > > > > that the chances of having another child with autism

> are

> > > very

> > > > > > > high.What

> > > > > > > > do you think?Thanks for your sharing your thoughts

with

> me.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Yes it was!

Just to let you all know we won our case for the higher rate mobility

component of DLA. It took 7 mos and we had award backdated to when ds

3rd birthday.

Our paed backed us up in the end and agreed with us that ds decision

to walk or not (dependant on external conditions)was not under his

conscious control but was a behaviour which is part and parcel of his

autism

It was a sweet victory, and stopped being about the paltry 47 quid a

week. It was a battle about gp's who'd never met my son or read his

notes making assumptions and decisions about him. It was about drones

on the end of the phone telling me I couldn't claim cos he wasn't 5.

Or that autism doesn't get mobility component.

J

x

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > > Dear Parents,I really need your opinion and of

course

> > hear

> > > > > your

> > > > > > > > > experience about the thought of having another

> > child.Today

> > > > > had

> > > > > > > the

> > > > > > > > > visit of hte health visitor,had a very long chat

and

> > also

> > > > > told

> > > > > > > her

> > > > > > > > that

> > > > > > > > > having another child is in my thoughts.She really

put

> > me

> > > > off

> > > > > > > saying

> > > > > > > > > that the chances of having another child with

autism

> > are

> > > > very

> > > > > > > > high.What

> > > > > > > > > do you think?Thanks for your sharing your thoughts

> with

> > me.

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Jane, that fantastic!!! oh yeah, sweet victory

nx

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > Dear Parents,I really need your opinion and of

> course

> > > hear

> > > > > > your

> > > > > > > > > > experience about the thought of having another

> > > child.Today

> > > > > > had

> > > > > > > > the

> > > > > > > > > > visit of hte health visitor,had a very long chat

> and

> > > also

> > > > > > told

> > > > > > > > her

> > > > > > > > > that

> > > > > > > > > > having another child is in my thoughts.She really

> put

> > > me

> > > > > off

> > > > > > > > saying

> > > > > > > > > > that the chances of having another child with

> autism

> > > are

> > > > > very

> > > > > > > > > high.What

> > > > > > > > > > do you think?Thanks for your sharing your thoughts

> > with

> > > me.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

You get a virtually free car with the top level of mobility. It's not

£47 a week. That's why they fight it so much. You are entitled to

Motorbility (I think that's what it's called). A car of your choice

maintained by them for a £300 deposit.

Sally

brownsauce66 wrote:

>

> Yes it was!

>

> Just to let you all know we won our case for the higher rate mobility

> component of DLA. It took 7 mos and we had award backdated to when ds

> 3rd birthday.

> Our paed backed us up in the end and agreed with us that ds decision

> to walk or not (dependant on external conditions)was not under his

> conscious control but was a behaviour which is part and parcel of his

> autism

> It was a sweet victory, and stopped being about the paltry 47 quid a

> week. It was a battle about gp's who'd never met my son or read his

> notes making assumptions and decisions about him. It was about drones

> on the end of the phone telling me I couldn't claim cos he wasn't 5.

> Or that autism doesn't get mobility component.

>

> J

> x

>

>

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > >

> > > > > > > > > > Dear Parents,I really need your opinion and of

> course

> > > hear

> > > > > > your

> > > > > > > > > > experience about the thought of having another

> > > child.Today

> > > > > > had

> > > > > > > > the

> > > > > > > > > > visit of hte health visitor,had a very long chat

> and

> > > also

> > > > > > told

> > > > > > > > her

> > > > > > > > > that

> > > > > > > > > > having another child is in my thoughts.She really

> put

> > > me

> > > > > off

> > > > > > > > saying

> > > > > > > > > > that the chances of having another child with

> autism

> > > are

> > > > > very

> > > > > > > > > high.What

> > > > > > > > > > do you think?Thanks for your sharing your thoughts

> > with

> > > me.

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

>

> ------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.9.13/1827 - Release Date: 03/12/2008

17:41

>

>

[Guest guest]

That's right,

We have a motability car on order. It'll be taxed, insured and have

servicing all covered.

j

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > Dear Parents,I really need your opinion and of

> > course

> > > > hear

> > > > > > > your

> > > > > > > > > > > experience about the thought of having another

> > > > child.Today

> > > > > > > had

> > > > > > > > > the

> > > > > > > > > > > visit of hte health visitor,had a very long chat

> > and

> > > > also

> > > > > > > told

> > > > > > > > > her

> > > > > > > > > > that

> > > > > > > > > > > having another child is in my thoughts.She

really

> > put

> > > > me

> > > > > > off

> > > > > > > > > saying

> > > > > > > > > > > that the chances of having another child with

> > autism

> > > > are

> > > > > > very

> > > > > > > > > > high.What

> > > > > > > > > > > do you think?Thanks for your sharing your

thoughts

> > > with

> > > > me.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> > ------------------------------------------------------------------

------

> >

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com

> > Version: 8.0.176 / Virus Database: 270.9.13/1827 - Release Date:

03/12/2008 17:41

> >

> >

>

[Guest guest]

For a private speech therapist try doing a search on the following:

http://www.helpwithtalking.com/

Personally, my son didn't make any progess with his speech until we started seeing a specialist speech therapist (in our case for dyspraxia). We had both private and local authority speech therapy for about 18 months without any progress. Make sure you don't end up spending a fortune in private speech therapy unless the therapist has extensive experience with autism. So yes more speech therapy can make a difference but only if you can find the right therapist.

To: autism-biomedical-europe From: barbaracanepa86@...Date: Thu, 4 Dec 2008 12:31:31 +0000Subject: RE: Re: About having another child.

Hi again, Thanks again for your replies and all your support. I dont really mind having a car because i dont even drive so its not want i want.Have to fight for higher care allowence because my son needs care 24/7. Actually his care needs has increased so shouls be eligible for higher rateso have to re apply and now that he has just turned 3 can also apply for mobility.Who can help me to fill out the forms?Somebody who is in the autism field?.Shall I put in the form the diagnosis i got in Italy or this might upset somebody?Thanks again for your replies.Have one more question.Where can I find a private speech language therapist?I thing what hes doin at nursery is not enough i mean in terms of speeche therapy.Do you thing that having more hours of speech therapy can help me to develop speech or it depends more on my child skills?Thanks again.Barbara

To: Autism-Biomedical-Europe From: bobsallyevantlworldDate: Thu, 4 Dec 2008 11:51:28 +0000Subject: Re: Re: About having another child.

You get a virtually free car with the top level of mobility. It's not £47 a week. That's why they fight it so much. You are entitled to Motorbility (I think that's what it's called). A car of your choice maintained by them for a £300 deposit.Sallybrownsauce66 wrote:>> Yes it was!>> Just to let you all know we won our case for the higher rate mobility> component of DLA. It took 7 mos and we had award backdated to when ds> 3rd birthday.> Our paed backed us up in the end and agreed with us that ds decision> to walk or not (dependant on external conditions)was not under his> conscious control but was a behaviour which is part and parcel of his> autism> It was a sweet victory, and stopped being about the paltry 47 quid a> week. It was a battle about gp's who'd never met my son or read his> notes making assumptions and decisions about him. It was about drones> on the end of the phone telling me I couldn't claim cos he wasn't 5.> Or that autism doesn't get mobility component.>> J> x>> > > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > > > Dear Parents,I really need your opinion and of> course> > > hear> > > > > > your> > > > > > > > > > experience about the thought of having another> > > child.Today> > > > > > had> > > > > > > > the> > > > > > > > > > visit of hte health visitor,had a very long chat> and> > > also> > > > > > told> > > > > > > > her> > > > > > > > > that> > > > > > > > > > having another child is in my thoughts.She really> put> > > me> > > > > off> > > > > > > > saying> > > > > > > > > > that the chances of having another child with> autism> > > are> > > > > very> > > > > > > > > high.What> > > > > > > > > > do you think?Thanks for your sharing your thoughts> > with> > > me.> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>> > ---------------------------------------------------------->>> No virus found in this incoming message.> Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.9.13/1827 - Release Date: 03/12/2008 17:41>>

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hi just thought i would mention you could apply to the family fund for help they help family of serveley disabled children, they give advice re filling out forms plus benefits check to make sure you have applied for everything you should but mainly do grants for holidays,clothes,bedding, electrical items plus free driving lessons and tests for the main carer they are online www.familyfund.org i think

melissa>> Yes it was!>> Just to let you all know we won our case for the higher rate mobility> component of DLA. It took 7 mos and we had award backdated to when ds> 3rd birthday.> Our paed backed us up in the end and agreed with us that ds decision> to walk or not (dependant on external conditions)was not under his> conscious control but was a behaviour which is part and parcel of his> autism> It was a sweet victory, and stopped being about the paltry 47 quid a> week. It was a battle about gp's who'd never met my son or read his> notes making assumptions and

decisions about him. It was about drones> on the end of the phone telling me I couldn't claim cos he wasn't 5.> Or that autism doesn't get mobility component.>> J> x>> > > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > > > Dear Parents,I really need your opinion and of> course> > > hear> > > > > > your> > > > > > > > > > experience about the thought of having another> > > child.Today> > > > > > had> > > > > > > > the>

> > > > > > > > > visit of hte health visitor,had a very long chat> and> > > also> > > > > > told> > > > > > > > her> > > > > > > > > that> > > > > > > > > > having another child is in my thoughts.She really> put> > > me> > > > > off> > > > > > > > saying> > > > > > > > > > that the chances of having another child with> autism> > > are> > > > > very> > > > > > > > > high.What> > > > > > > > > > do you think?Thanks for your sharing your thoughts> > with> > > me.> > > > > > > > > >> > > > > > > > >>

> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>> > ------------ --------- --------- --------- --------- --------- ->>> No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.176 / Virus Database: 270.9.13/1827 - Release Date: 03/12/2008 17:41>>

Visita il suo Spaces! Scopri le novità di Doretta.

[Guest guest]

hi just thought i would mention you could apply to the family fund for help they help family of serveley disabled children, they give advice re filling out forms plus benefits check to make sure you have applied for everything you should but mainly do grants for holidays,clothes,bedding, electrical items plus free driving lessons and tests for the main carer they are online www.familyfund.org i think

melissa>> Yes it was!>> Just to let you all know we won our case for the higher rate mobility> component of DLA. It took 7 mos and we had award backdated to when ds> 3rd birthday.> Our paed backed us up in the end and agreed with us that ds decision> to walk or not (dependant on external conditions)was not under his> conscious control but was a behaviour which is part and parcel of his> autism> It was a sweet victory, and stopped being about the paltry 47 quid a> week. It was a battle about gp's who'd never met my son or read his> notes making assumptions and

decisions about him. It was about drones> on the end of the phone telling me I couldn't claim cos he wasn't 5.> Or that autism doesn't get mobility component.>> J> x>> > > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > > > Dear Parents,I really need your opinion and of> course> > > hear> > > > > > your> > > > > > > > > > experience about the thought of having another> > > child.Today> > > > > > had> > > > > > > > the>

> > > > > > > > > visit of hte health visitor,had a very long chat> and> > > also> > > > > > told> > > > > > > > her> > > > > > > > > that> > > > > > > > > > having another child is in my thoughts.She really> put> > > me> > > > > off> > > > > > > > saying> > > > > > > > > > that the chances of having another child with> autism> > > are> > > > > very> > > > > > > > > high.What> > > > > > > > > > do you think?Thanks for your sharing your thoughts> > with> > > me.> > > > > > > > > >> > > > > > > > >>

> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>> > ------------ --------- --------- --------- --------- --------- ->>> No virus found in this incoming message.> Checked by AVG - http://www.avg. com > Version: 8.0.176 / Virus Database: 270.9.13/1827 - Release Date: 03/12/2008 17:41>>

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[Guest guest]

Yeah! Well done, Jane. I remember when you were posting about the

docs letters, etc so it's great to hear that you persisted and won.

Woo Hoo.

Darla

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > > > Dear Parents,I really need your opinion and of

> > course

> > > > hear

> > > > > > > your

> > > > > > > > > > > experience about the thought of having another

> > > > child.Today

> > > > > > > had

> > > > > > > > > the

> > > > > > > > > > > visit of hte health visitor,had a very long chat

> > and

> > > > also

> > > > > > > told

> > > > > > > > > her

> > > > > > > > > > that

> > > > > > > > > > > having another child is in my thoughts.She

really

> > put

> > > > me

> > > > > > off

> > > > > > > > > saying

> > > > > > > > > > > that the chances of having another child with

> > autism

> > > > are

> > > > > > very

> > > > > > > > > > high.What

> > > > > > > > > > > do you think?Thanks for your sharing your

thoughts

> > > with

> > > > me.

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>