Re: lyme testing at breakspear, etc - did i waste my money?

[Guest guest]

got this off of a lyme forum - interesting:

The bottom line is that Lyme is a CLINICAL DIAGNOSIS and not a

LABORAORY DIAGNOSIS. Laboratory testing is used as an adjunct to see

specifically how a lyme patient is progressing through treatment, but

it cannot be reliably used for diagnosis.

Most doctors don't understand this and treat lyme like they would an

e-coli, or salmonella, or staph infection -- their testing diagnoses

the disease. In lyme, the same kind of testing will reveal no

infection whatsoever. In fact, in such patients, beginning antibiotic

treatment, looking for appropriately timed " herxes " may be the best

diagnostic tool. After a few herxes, the body will produce antibodies

to the killed or dead borrelia, and there will not be enough

infection left for the bacteria to immunosuppress-away the bodies

reaction to the infection. This is why in chronic lyme, patients will

often test negative at first, and then develop more and more bands of

reactivity to the disease as the immune system heals and relearns how

to correctly eliminate the bacteria. Some people will only develop a

positive test result after their treatment is nearly complete! (that

alone should indicate the level of bogosity involved in lyme testing.)

The bottom line is that your regular doctor will not help diagnose

you for Lyme. In fact they're guaranteed to NOT diagnose it

correctly, and misdiagnose the symptoms of the disease as a variety

of other bogus diseases that don't actually exist (e.g. Restless Leg

Syndrome, MS, ALS, depression, mania, autism, alzheimer's, lupus,

sjogren's etc).

That's why it's imperative that Morgellons patients go to an LLMD and

get a correct diagnosis and treatment for their lyme disease.

Alternately, start taking antibiotics on your own for a few months

(oxytetracycline for cows available w/o prescription) and then go to

your dumb-ass regular doctor and ask for an igenex Lyme test. (This

is called " challenge testing " ). Chances are that after a few months

of antibiotics, your lyme test will show evidence of infection, if

you actually have lyme.

Finally, when you get your lyme test... it must be read correctly.

The " CDC test result " at the bottom of your test will always say

negative because the CDC has restricted lymetesting and diagnoses to

the extent that nobody will ever get a positive CDC result. For one,

that requires that you got bit by the exact same genetic variant of

borrelia that the tests are based on, which is an increasingly rare

variant of " east coast lyme. " Instead, test results must be

interpreted based on the exact bands of reactivity seen.

Again a regular doctor won't know this and will look at the CDC

negative at the bottom of the test and say " you don't have lyme. " A

lyme doctor will correlate your SYMPTOMS and not test results and

conclude Lyme, and then will look for specific bands of reactivity in

the igenex test to definitely indicate presense of infection.

http://lindaslymediseasejournal.blogspot....y-dr-james.html is a good

summary of these issues. The original article is

http://www.publichealthalert.org/Article....ade%20easy.html

(other interesting facts are here

http://www.personalconsult.com/schallerarticles.html )

One of the biggest problems w/ Lyme is that for the last 30+ years,

doctors have been fed lie after lie by agencies like the CDC and

medical groups like the Infectious Diseases Society of America. These

lies have made lyme testing totally inaccurate, and have eliminated

the detailed clinical diagnosis that doctors have relied on to

diagnose lyme.

Since the HMO's the CDC makes it's medical guidelines for wants to

have a low-cost, low-labor, and " foolproof " way of running patietns

through the assembly line without having doctors do any thinking or

diagnosis whatsoever. They want it all to be in the test result, and

that's exactly what the IDSA has recommended back in 2006 -- that

lyme diagnosis be a laboratgory-only diagnosis and that symptoms and

patient history should be ignored. Proper symptom correlation and

diagnosis cannot take place in the 5 minute visit the HMO business

model is predicated on.

The end result is that Lyme disease is nearly completely ignored

while we have a " health crisis " caused by treating symptoms as

diseases, and not curing diseases but suppressing symptoms. This is

why you hear statistics like 80% of healthcare costs come from

treatment of chronic diseases (e.g. arthritis, a lyme symptom). It's

why just about every commercial for a medicine you see on TV is a

medicine that suppresses a specific set of lyme symptoms,

e.g. " Restless leg syndrome " or " arthritis " or " depression "

or " alzheimer's " , etc.

>

> Been reading a lot about lyme and most of it goes undetected. So

for

> practitioners who are relying on these labs to tell us if we do or

dont

> have lyme, they could be putting us in jeapardy.

>

> anyone know where i could get a proper lyme test done? My boys came

> back negative 2 years ago as part of the autism premier panel

test. We

> were in Northern Canada and he got bit at the age of 12 months. Had

> mark on his back, etc etc. always worried about it.

>

[Guest guest]

www.igenex.comThey are supposed to be the most accurate.Or by testing with a good quality Colloidal Silver. If you get a die-off reaction there is a good chance you have Lyme. Can't get in Canada and don't ship in the winter because it will go bad. Your best bet is to go with Igenex.HeidiTo:

Autism-Biomedical-Europe Sent: Sunday, December 7, 2008 7:29:46 PMSubject: lyme testing at breakspear, etc - did i waste my money?

Been reading a lot about lyme and most of it goes undetected. So for

practitioners who are relying on these labs to tell us if we do or dont

have lyme, they could be putting us in jeapardy.

anyone know where i could get a proper lyme test done? My boys came

back negative 2 years ago as part of the autism premier panel test. We

were in Northern Canada and he got bit at the age of 12 months. Had

mark on his back, etc etc. always worried about it.

[Guest guest]

Heidi,

how much CS would you use and how often and for how long???

Tia, Nikki

> Or by testing with a good quality Colloidal Silver. If you get a die-

off reaction there is a good chance you have Lyme. Can't get in Canada

and don't ship in the winter because it will go bad. Your best bet is

to go with Igenex.

>

> Heidi

>

>

>

>

[Guest guest]

Heidi,

how much CS would you use and how often and for how long???

Tia, Nikki

> Or by testing with a good quality Colloidal Silver. If you get a die-

off reaction there is a good chance you have Lyme. Can't get in Canada

and don't ship in the winter because it will go bad. Your best bet is

to go with Igenex.

>

> Heidi

>

>

>

>