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Not Sleeping, Melatonin NBG, Adrenals? /Anita, Anyone?

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Hi Troops

Spoke to a chap today with severely affected lad of 9 years.

Consultant Rx Melatonin syrup, 5mg used to work, for over a year now 20mg is doing nothing.

Child can go 48 hours with NO sleep at all. Sometimes he will go one night sleep, next night none. He is SCD & GFCF.

Ideas anyone?

I felt that Adrenals are likely shot to bits, his and his parents - do you think ACE might help on the sleep side too?

Anyone done neurotransmitter testing for this issue? Did it help? (I always remember AC posting you don't pee your brains out so how accurate can it be ROFL)

All thoughts gratefully received, this family is desperate

TIA

Mandi x

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