Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 thanks Natasa. He was back on the ward this afternoon - they don't know what's going on. Another consultant (our second consultant, after 5 normal doctors) will review again tomorrow morning. No temperature thank god, but other than that - scary. I'll try this on him, might be very therapeutic and he IS still somewhat loaded albeit we don't know if that's the symptom or the cause xx > > Steph, I sent the link and just watched the whole video some of the > techniques shown in it are the ones that have worked here > > > Natasa x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 thanks Natasa. He was back on the ward this afternoon - they don't know what's going on. Another consultant (our second consultant, after 5 normal doctors) will review again tomorrow morning. No temperature thank god, but other than that - scary. I'll try this on him, might be very therapeutic and he IS still somewhat loaded albeit we don't know if that's the symptom or the cause xx > > Steph, I sent the link and just watched the whole video some of the > techniques shown in it are the ones that have worked here > > > Natasa x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 what things did they rule out, if any? nx thanks Natasa. He was back on the ward this afternoon - they don't know what's going on. Another consultant (our second consultant, after 5 normal doctors) will review again tomorrow morning. No temperature thank god, but other than that - scary. I'll try this on him, might be very therapeutic and he IS still somewhat loaded albeit we don't know if that's the symptom or the cause xx > > Steph, I sent the link and just watched the whole video – some of the > techniques shown in it are the ones that have worked here > > > Natasa x > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Oh Steph, how awful this must all be. Thinking about you all. Still no massive explosions? Hoping you get some answers. Hugs Caroline xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 they think it's not appendicitis. er but it might be. I do know it's v hard to diagnose but blimey. They think loading is moderate in which case - something else? > >> > > >> > Steph, I sent the link and just watched the whole video some of the > >> > techniques shown in it are the ones that have worked here > >> > > >> > > >> > Natasa x > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 thanks - it helps!! think explosions actually might not help him, strangely. back in tomorrow - fifth review of x ray by now, he's a popular chap xxx > > Oh Steph, how awful this must all be. Thinking about you all. Still no > massive explosions? Hoping you get some answers. > Hugs > Caroline > xx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 ---Hi Steph, Do you think the hospital would test a stool sample for possible bacterial overgrowth? I have this from a study (pending publication though) and it might be worth looking into. Sophie Rosseneu is a GI in the UK, but she is private (works for BUPA) and has given talks about this subject. If they did it might mean antibiotics though, so you might not be too keen. Glynis GI Bacteria Sophie Rosseneu and collaborators evaluated GI bacteria in 69 children with regressive autism and constipation Result: 95% of children with autism had 10,000x normal level of E. coli 40% also had overgrowth of similar bacteria (Aerobic Gram Negative Bacteria) All AGNB create potent endotoxin that causes constipation and possibly affects brain function Treatment study of AGNB 11 children treated with special antibiotics for 3 months Eliminated AGNB Constipation cured or greatly improved Behavior improved greatly (3.7 -> 7.2/10) But, when antibiotics stopped, AGNB returned, constipation returned, behavior problems returned Similar temporary benefit when Vancomycin or oral Immunoglobulins used Planning treatment study at ASU this spring to determine why AGNB return In Autism-Biomedical-Europe , " stephaniesirr " wrote: > > thanks - it helps!! think explosions actually might not help him, > strangely. back in tomorrow - fifth review of x ray by now, he's a > popular chap xxx > > > > > > Oh Steph, how awful this must all be. Thinking about you all. Still no > > massive explosions? Hoping you get some answers. > > Hugs > > Caroline > > xx > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2008 Report Share Posted December 29, 2008 Steph, Sorry that things are not going well with Tom. Hope you get some answers very soon. emily x > > > > Steph, I sent the link and just watched the whole video some of the > > techniques shown in it are the ones that have worked here > > > > > > Natasa x > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 They didn’t rule out ulcer?? Acute pancreatitis? Or are they sure it is not peritonitis of some sort???? Maybe you could bring these up? they think it's not appendicitis. er but it might be. I do know it's v hard to diagnose but blimey. They think loading is moderate in which case - something else? > >> > > >> > Steph, I sent the link and just watched the whole video – some of the > >> > techniques shown in it are the ones that have worked here > >> > > >> > > >> > Natasa x > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Gall stones also. I had appendicitis and I remember it was diagnosed with a high white blood count and a finger up the backside, both of which are not the best tools. There's also the McBurneys point (some position north,. south, east or west ( can't remember which direction) of the belly button. If he's sore ONLY there, that's quite a telltale sign but not infallible either. Don't prod too much though :-)) If he hasn't got a temp, I think though you can rule out the appendicitis as I believe it comes with a temp. Why can't the professionals get the poop out?? Once they do, either it resolves the problem or they can then proceed down their differential checklist. Has there been a gastroenterological consult? Neno/Natasa schrieb: > > They didn’t rule out ulcer?? Acute pancreatitis? Or are they sure > it is not peritonitis of some sort???? > > Maybe you could bring these up? > > > > > > > they think it's not appendicitis. er but it might be. I do know it's > v hard to diagnose but blimey. > > They think loading is moderate in which case - something else? > > > >> > > > >> > Steph, I sent the link and just watched the whole video – some > of the > > >> > techniques shown in it are the ones that have worked here > > >> > > > >> > > > >> > Natasa x > > >> > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG. > Version: 7.5.552 / Virus Database: 270.10.0/1866 - Release Date: 27/12/2008 20:49 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 We've had 2 episodes of ruptured appendix over the years - both without any fever! In one it took 4 days for the white count to rise and by then an ultrasound showed the area 'fermenting' with bowel contents all over the lower abd -10y ago this Christmas. He was one sick puppy. The other was a retrocecal appy that ruptured onto liver bed. White count actually went down-3000 range. After months of interfacing w the unbelieving docs, the abcess was discovered during surgery to remove the gallbladder. Another extended family member kept c/o that his 'heart hurt' - he functions marginally so could give no good feedback. Same unbelieving response from docs but w family history of gall bladder trouble, he had surgery scheduled to remove it. Once again, a big abcessed, stone filled area was found. Mc Burney's point - midway betwee belly button and side hip bone. It was VERY tender in both of our appy experiences. I hope you get some answers for his distress. Prayers, > > > >> > > > > >> > Steph, I sent the link and just watched the whole video – some > > of the > > > >> > techniques shown in it are the ones that have worked here > > > >> > > > > >> > > > > >> > Natasa x > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------ ------ > > > > No virus found in this incoming message. > > Checked by AVG. > > Version: 7.5.552 / Virus Database: 270.10.0/1866 - Release Date: 27/12/2008 20:49 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 We've had 2 episodes of ruptured appendix over the years - both without any fever! In one it took 4 days for the white count to rise and by then an ultrasound showed the area 'fermenting' with bowel contents all over the lower abd -10y ago this Christmas. He was one sick puppy. The other was a retrocecal appy that ruptured onto liver bed. White count actually went down-3000 range. After months of interfacing w the unbelieving docs, the abcess was discovered during surgery to remove the gallbladder. Another extended family member kept c/o that his 'heart hurt' - he functions marginally so could give no good feedback. Same unbelieving response from docs but w family history of gall bladder trouble, he had surgery scheduled to remove it. Once again, a big abcessed, stone filled area was found. Mc Burney's point - midway betwee belly button and side hip bone. It was VERY tender in both of our appy experiences. I hope you get some answers for his distress. Prayers, > > > >> > > > > >> > Steph, I sent the link and just watched the whole video – some > > of the > > > >> > techniques shown in it are the ones that have worked here > > > >> > > > > >> > > > > >> > Natasa x > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------ ------ > > > > No virus found in this incoming message. > > Checked by AVG. > > Version: 7.5.552 / Virus Database: 270.10.0/1866 - Release Date: 27/12/2008 20:49 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 We've had 2 episodes of ruptured appendix over the years - both without any fever! In one it took 4 days for the white count to rise and by then an ultrasound showed the area 'fermenting' with bowel contents all over the lower abd -10y ago this Christmas. He was one sick puppy. The other was a retrocecal appy that ruptured onto liver bed. White count actually went down-3000 range. After months of interfacing w the unbelieving docs, the abcess was discovered during surgery to remove the gallbladder. Another extended family member kept c/o that his 'heart hurt' - he functions marginally so could give no good feedback. Same unbelieving response from docs but w family history of gall bladder trouble, he had surgery scheduled to remove it. Once again, a big abcessed, stone filled area was found. Mc Burney's point - midway betwee belly button and side hip bone. It was VERY tender in both of our appy experiences. I hope you get some answers for his distress. Prayers, > > > >> > > > > >> > Steph, I sent the link and just watched the whole video – some > > of the > > > >> > techniques shown in it are the ones that have worked here > > > >> > > > > >> > > > > >> > Natasa x > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------ ------ > > > > No virus found in this incoming message. > > Checked by AVG. > > Version: 7.5.552 / Virus Database: 270.10.0/1866 - Release Date: 27/12/2008 20:49 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Glynis, do you have a link to where i can find this study online please if possible? TIA Nikki x In Autism-Biomedical-Europe , " Glynis Steele " wrote: > > ---Hi Steph, > > Do you think the hospital would test a stool sample for possible > bacterial overgrowth? I have this from a study (pending publication > though) and it might be worth looking into. Sophie Rosseneu is a GI > in the UK, but she is private (works for BUPA) and has given talks > about this subject. If they did it might mean antibiotics though, so > you might not be too keen. > > Glynis > > > GI Bacteria > > > Sophie Rosseneu and collaborators evaluated GI bacteria in 69 > children with regressive autism and constipation > Result: 95% of children with autism had 10,000x normal level of E. > coli > 40% also had overgrowth of similar bacteria (Aerobic Gram Negative > Bacteria) > All AGNB create potent endotoxin that causes constipation and > possibly affects brain function > > > > Treatment study of AGNB > > > 11 children treated with special antibiotics for 3 months > > Eliminated AGNB > > Constipation cured or greatly improved > Behavior improved greatly (3.7 -> 7.2/10) > But, when antibiotics stopped, AGNB returned, constipation returned, > behavior problems returned > > Similar temporary benefit when Vancomycin or oral Immunoglobulins used > > Planning treatment study at ASU this spring to determine why AGNB > return > > > > > > > > In Autism-Biomedical-Europe , " stephaniesirr " > <mark.grabiec@> wrote: > > > > thanks - it helps!! think explosions actually might not help him, > > strangely. back in tomorrow - fifth review of x ray by now, he's a > > popular chap xxx > > > > > > > > > > Oh Steph, how awful this must all be. Thinking about you all. > Still no > > > massive explosions? Hoping you get some answers. > > > Hugs > > > Caroline > > > xx > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Glynis, do you have a link to where i can find this study online please if possible? TIA Nikki x In Autism-Biomedical-Europe , " Glynis Steele " wrote: > > ---Hi Steph, > > Do you think the hospital would test a stool sample for possible > bacterial overgrowth? I have this from a study (pending publication > though) and it might be worth looking into. Sophie Rosseneu is a GI > in the UK, but she is private (works for BUPA) and has given talks > about this subject. If they did it might mean antibiotics though, so > you might not be too keen. > > Glynis > > > GI Bacteria > > > Sophie Rosseneu and collaborators evaluated GI bacteria in 69 > children with regressive autism and constipation > Result: 95% of children with autism had 10,000x normal level of E. > coli > 40% also had overgrowth of similar bacteria (Aerobic Gram Negative > Bacteria) > All AGNB create potent endotoxin that causes constipation and > possibly affects brain function > > > > Treatment study of AGNB > > > 11 children treated with special antibiotics for 3 months > > Eliminated AGNB > > Constipation cured or greatly improved > Behavior improved greatly (3.7 -> 7.2/10) > But, when antibiotics stopped, AGNB returned, constipation returned, > behavior problems returned > > Similar temporary benefit when Vancomycin or oral Immunoglobulins used > > Planning treatment study at ASU this spring to determine why AGNB > return > > > > > > > > In Autism-Biomedical-Europe , " stephaniesirr " > <mark.grabiec@> wrote: > > > > thanks - it helps!! think explosions actually might not help him, > > strangely. back in tomorrow - fifth review of x ray by now, he's a > > popular chap xxx > > > > > > > > > > Oh Steph, how awful this must all be. Thinking about you all. > Still no > > > massive explosions? Hoping you get some answers. > > > Hugs > > > Caroline > > > xx > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 --- Hi Nikki, Unfortunately not, I got the info from these sites It' on page 3 on this site: http://www.integrativepeds.org/pdf2005/snewmark.pdf and near the bottom for this one http://www.springboard4health.com/notebook/health_autism2.html Glynis In Autism-Biomedical-Europe , " Nikki " <nikki- mills@...> wrote: > > > Glynis, > > do you have a link to where i can find this study online please if > possible? > > TIA > > Nikki x > > > > > > In Autism-Biomedical-Europe , " Glynis Steele " > <pyn1pyn1@> wrote: > > > > ---Hi Steph, > > > > Do you think the hospital would test a stool sample for possible > > bacterial overgrowth? I have this from a study (pending > publication > > though) and it might be worth looking into. Sophie Rosseneu is a > GI > > in the UK, but she is private (works for BUPA) and has given talks > > about this subject. If they did it might mean antibiotics though, > so > > you might not be too keen. > > > > Glynis > > > > > > GI Bacteria > > > > > > Sophie Rosseneu and collaborators evaluated GI bacteria in 69 > > children with regressive autism and constipation > > Result: 95% of children with autism had 10,000x normal level of E. > > coli > > 40% also had overgrowth of similar bacteria (Aerobic Gram Negative > > Bacteria) > > All AGNB create potent endotoxin that causes constipation and > > possibly affects brain function > > > > > > > > Treatment study of AGNB > > > > > > 11 children treated with special antibiotics for 3 months > > > > Eliminated AGNB > > > > Constipation cured or greatly improved > > Behavior improved greatly (3.7 -> 7.2/10) > > But, when antibiotics stopped, AGNB returned, constipation > returned, > > behavior problems returned > > > > Similar temporary benefit when Vancomycin or oral Immunoglobulins > used > > > > Planning treatment study at ASU this spring to determine why AGNB > > return > > > > > > > > > > > > > > > > In Autism-Biomedical-Europe , " stephaniesirr " > > <mark.grabiec@> wrote: > > > > > > thanks - it helps!! think explosions actually might not help him, > > > strangely. back in tomorrow - fifth review of x ray by now, he's > a > > > popular chap xxx > > > > > > > > > > > > > > Oh Steph, how awful this must all be. Thinking about you all. > > Still no > > > > massive explosions? Hoping you get some answers. > > > > Hugs > > > > Caroline > > > > xx > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 --- Hi Nikki, Unfortunately not, I got the info from these sites It' on page 3 on this site: http://www.integrativepeds.org/pdf2005/snewmark.pdf and near the bottom for this one http://www.springboard4health.com/notebook/health_autism2.html Glynis In Autism-Biomedical-Europe , " Nikki " <nikki- mills@...> wrote: > > > Glynis, > > do you have a link to where i can find this study online please if > possible? > > TIA > > Nikki x > > > > > > In Autism-Biomedical-Europe , " Glynis Steele " > <pyn1pyn1@> wrote: > > > > ---Hi Steph, > > > > Do you think the hospital would test a stool sample for possible > > bacterial overgrowth? I have this from a study (pending > publication > > though) and it might be worth looking into. Sophie Rosseneu is a > GI > > in the UK, but she is private (works for BUPA) and has given talks > > about this subject. If they did it might mean antibiotics though, > so > > you might not be too keen. > > > > Glynis > > > > > > GI Bacteria > > > > > > Sophie Rosseneu and collaborators evaluated GI bacteria in 69 > > children with regressive autism and constipation > > Result: 95% of children with autism had 10,000x normal level of E. > > coli > > 40% also had overgrowth of similar bacteria (Aerobic Gram Negative > > Bacteria) > > All AGNB create potent endotoxin that causes constipation and > > possibly affects brain function > > > > > > > > Treatment study of AGNB > > > > > > 11 children treated with special antibiotics for 3 months > > > > Eliminated AGNB > > > > Constipation cured or greatly improved > > Behavior improved greatly (3.7 -> 7.2/10) > > But, when antibiotics stopped, AGNB returned, constipation > returned, > > behavior problems returned > > > > Similar temporary benefit when Vancomycin or oral Immunoglobulins > used > > > > Planning treatment study at ASU this spring to determine why AGNB > > return > > > > > > > > > > > > > > > > In Autism-Biomedical-Europe , " stephaniesirr " > > <mark.grabiec@> wrote: > > > > > > thanks - it helps!! think explosions actually might not help him, > > > strangely. back in tomorrow - fifth review of x ray by now, he's > a > > > popular chap xxx > > > > > > > > > > > > > > Oh Steph, how awful this must all be. Thinking about you all. > > Still no > > > > massive explosions? Hoping you get some answers. > > > > Hugs > > > > Caroline > > > > xx > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 --- Hi Nikki, Unfortunately not, I got the info from these sites It' on page 3 on this site: http://www.integrativepeds.org/pdf2005/snewmark.pdf and near the bottom for this one http://www.springboard4health.com/notebook/health_autism2.html Glynis In Autism-Biomedical-Europe , " Nikki " <nikki- mills@...> wrote: > > > Glynis, > > do you have a link to where i can find this study online please if > possible? > > TIA > > Nikki x > > > > > > In Autism-Biomedical-Europe , " Glynis Steele " > <pyn1pyn1@> wrote: > > > > ---Hi Steph, > > > > Do you think the hospital would test a stool sample for possible > > bacterial overgrowth? I have this from a study (pending > publication > > though) and it might be worth looking into. Sophie Rosseneu is a > GI > > in the UK, but she is private (works for BUPA) and has given talks > > about this subject. If they did it might mean antibiotics though, > so > > you might not be too keen. > > > > Glynis > > > > > > GI Bacteria > > > > > > Sophie Rosseneu and collaborators evaluated GI bacteria in 69 > > children with regressive autism and constipation > > Result: 95% of children with autism had 10,000x normal level of E. > > coli > > 40% also had overgrowth of similar bacteria (Aerobic Gram Negative > > Bacteria) > > All AGNB create potent endotoxin that causes constipation and > > possibly affects brain function > > > > > > > > Treatment study of AGNB > > > > > > 11 children treated with special antibiotics for 3 months > > > > Eliminated AGNB > > > > Constipation cured or greatly improved > > Behavior improved greatly (3.7 -> 7.2/10) > > But, when antibiotics stopped, AGNB returned, constipation > returned, > > behavior problems returned > > > > Similar temporary benefit when Vancomycin or oral Immunoglobulins > used > > > > Planning treatment study at ASU this spring to determine why AGNB > > return > > > > > > > > > > > > > > > > In Autism-Biomedical-Europe , " stephaniesirr " > > <mark.grabiec@> wrote: > > > > > > thanks - it helps!! think explosions actually might not help him, > > > strangely. back in tomorrow - fifth review of x ray by now, he's > a > > > popular chap xxx > > > > > > > > > > > > > > Oh Steph, how awful this must all be. Thinking about you all. > > Still no > > > > massive explosions? Hoping you get some answers. > > > > Hugs > > > > Caroline > > > > xx > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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