Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 I`m on prednisolone for aih, but this hasn`t helped my symptoms much at all.Any advise would be greatly appreciated. love, light and peace. jackie What are your symptoms? Harper Message: 8 Date: Sat, 09 Nov 2002 19:33:47 -0000 From: "MCL" <TrueColorz01@...> Subject: Hi everyone Hope you are all doing well I have a question for you. Since I started the Prednisone, my face has been breaking out pretty bad. I mean bad enough to look like I'm going thru puberty again and that was many, many moons ago. I know this is one of the side effects but was wondering if any of you have had this happen and if so how did you get it to clear up? I've been using Sea Breeze astringent on my face nightly and it's cleared up a little but not much. Thanks for any help Best wishes, Acne with Prednisone seems to be a common occurence, as you know. It goes away as the dosage decreases. Remember that you are susceptible to infection and be very, very careful about irritating your skin and introducing bacteria. (Even at a low dosage of Prednisone, with the acne gone, I'm more prone to transient little pimple-like problems that seem to be minor skin infections.) I didn't find anything that really helped the acne itself. However, to keep my skin from being irritated, my doctor recommended a liquid soap called Aquanil or Aquinil -- I'm not sure of the spelling. It's about $6 for a bottle that lasts me a year. (One version, which you want to avoid, includes a type of cortisone. It will be boldly labeled so.) I buy Aquanil at pharmacies, OTC. You may have to ask the pharmacist to order it. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 Dear Kat, Welcome to the group. I'm sorry your mom is having so many problems. I'm not an expert, but I doubt that one month would have made much difference in her current problems. Cirrhosis takes awhile to develop and she truly may not have had lots of obvious symptoms before. I had no idea I had liver problems, just slightly elevated enzymes which came down while treating another autoimmune illness. It was during a gall bladder removal that it was discovered that I had cirrhosis, thus the major cause of my fatigue. Even after that I was able to carry on with work (teaching first grade), working as a bargainer for our association and getting a master's degree! Everybody comes to find out about their illness in different ways and with different symptoms. I'm sure she can be difficult when she doesn't want help but I'm also sure, like you, that she is scared and feeling miserable. Be gentle with yourself and with her. We'll be here when you have questions or need to vent! Take care, Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 MSN 8 with e-mail virus protection service: 2 months FREE* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 Amy, Thanks for the info, it turns out she has hemochromatosis along with her AIH, and they now think this has been happening for years with severe cirrhosis at this time. The kicker is some ischemic event likely triggered her latest acute flair (she had one 6 years ago which resolved w/out treatment, and no biopsy was done then.) See other postings for her current event with the anemia. My frustration partially comes from placing my life on hold again (she's had other health issues too), and feeling trapped in being her only caretaker. Sadly, she has no supplemental insurance for hospice care. :-( I'm looking into other avenues for caretakers etc. I'd be interested if anyone in the group has suggestions, support for those of us who after nearly 10 years of being the caregiver need a break! By the way Amy, her doc has figured out how calm she becomes with me around and has finally enlisted me as part of the team effort in getting her better, so yes I appreciate her needs and understand the fatigue, the frustration she experiences when her body betray's what she used to do with ease, etc. Kat Re: [ ] Digest Number 2589 Dear Kat, Welcome to the group. I'm sorry your mom is having so many problems. I'm not an expert, but I doubt that one month would have made much difference in her current problems. Cirrhosis takes awhile to develop and she truly may not have had lots of obvious symptoms before. I had no idea I had liver problems, just slightly elevated enzymes which came down while treating another autoimmune illness. It was during a gall bladder removal that it was discovered that I had cirrhosis, thus the major cause of my fatigue. Even after that I was able to carry on with work (teaching first grade), working as a bargainer for our association and getting a master's degree! Everybody comes to find out about their illness in different ways and with different symptoms. I'm sure she can be difficult when she doesn't want help but I'm also sure, like you, that she is scared and feeling miserable. Be gentle with yourself and with her. We'll be here when you have questions or need to vent!Take care,Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2004 Report Share Posted April 30, 2004 In a message dated 4/29/2004 3:36:05 PM Eastern Daylight Time, writes: Elaine, Raspberries? Seeds or natural sweetness, maybe? Wish I could remember what it is I read recently that is rare and great about raspberries. Haven't read the No Grain Diet. My impression from reading mercola.com is that Dr. Mercola is a mixed metabolic type who can eat from the carb type. Don't know wheather impression is so but could be transferred to the book. You're a protein type like me and Elainie so your choices from No Grain should reflect higher protein, fat and protein type carbs which is " all " berries. If sweetness is the issue, eat them with a fat like I do all carbs to cut the GI down. Wanita .. ..>>>>> Wanita and all Here http://www.lef.org/abstracts/codex/ellagic_acid_index.htm http://www.red-raspberry.org/ellagicacid.htm http://www.ars.usda.gov/is/pr/1997/970811.htm mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 In a message dated 8/22/2004 8:05:22 AM Eastern Standard Time, rheumatic writes: Should Carmen totally avoid milk and dairy products...?? Hi..in my opinion just put 2hrs bewteen dairy and antibiotics! as it stands now ...she takes her prednisone with a glass of milk..... than 1 hr later minocin with food Minocin is best taken on an empty stomach for rheumatic disease and the brand works best with less fillers. when should wean off of the methotraxate...?? I took 200 aday when I began.I was told not to wean for 4months! That was me and I had NO probelms as I weaned very clowly but I got off the pred and the mtx. I canhelp with a schedule as I said it was slower than most docs go but it helped me immensely! I never flared or rebounded! As you reduce mtx, the herx happens as you automatically absorb more antibiotic so best to go slow...same reaction with the pred drop. prednisone....?? After 4months I waas told to drop 2mg( started at 10) 4 weeks later I dropped 1mg and every 4-6 weeks dropped 1 until 5 mg and then it went to 6-8 weeks as it is harder on the system. celebrex....?? Clebrex..caused me swelling. It is an nsaid and the last to worry about. Concentrate on the heavy hitters first. Email me if you wish. Been there done that! Off pred since 1997 and mtx since 1998. I realize as symptoms allow.... but is there a rough guesstimate as to when the metho can be weaned.... she is currently on 20 mg of metho a day. she takes minocin 100 mg twice a day mike Quote Link to comment Share on other sites More sharing options...
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