Guest guest Posted May 20, 1999 Report Share Posted May 20, 1999 RE: CD I'm sure I can bill Knight Ridder for any reasonable cost for a copy. Let me know when you've got it together. Rod -- Rod Hafemeister Belleville (Ill.) News-Democrat Phone: 618-239-2563 Fax: 618-234-9597 Email: rodhafemeister@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 1999 Report Share Posted June 3, 1999 Hello Dr. Nass, Thank you for the help and information you provided me for my articles. Also, I'm sorry I'm just getting around to responding now, but I'm interested in any progress you've made regarding the CD ROMS. I will be following the anthrax vaccine issue, and perhaps attending the next hearing, so I would be interested in getting the information and documents you are making available. Let me know if you still intend to make the CDs, and what they'll cost. Thanks again. Best regards, Ruddy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi, it is good that the ATD is working for you. I guess your hyperthyroidism is quite mild. There are many people with active hyperthyroidism do not have ATD working for them. It does not matter how well they communicate with their endos, the final choice they are facing will be RAI or surgery if ATD does not work. I am the one who is taking Methimazole for more than three months and still do not see any improvement. My Dr. suggested me to take RAI three times and I rejected her suggestions. Chinese medicine lacks of the meaningfully scientific indication but it does offer experiences that are cumulated over three thousands years and it does offer an alternative choice for hyerthyroidism when scientific indication here does not provide a effective way to treat hyperthyroidism. If herbs are not toxic, taking them is no worse than taking RAI. BTW, I am orignally from mainland China too. And BTW, herbs and Acupuncture are commonly used in Germany and UK. I am turning to Chinese medicine since i have no other choice here but RAI or surgery. Good luck on recovering from hyperthyroidism. > Hi All, > > I would share my short story below for your reference. Hopefully > someone will benifit from my personal experience. > > Previously, I took Tapazole and got serious liver alergy after 30 > days with proof from blood test. Then my endo told me it's very > possible I am alergy to another choice PTU. But she still allowed me > to give a shot even not very encouraging (She wants me to pursue RAI > immediately as an ultimate solution). So I wait for another monthe to > sooth my liver. Then I switch to PTU, looks like my liver this time > is not sensitive to it ATD again by the blood test in the end of the > last month. And T4 dropped very quickly from 3.3 to 2.3, 0.8-1.8 > normal. > > The above story is not anti-endo at all. IHMO, I think they are the > reliable source to work with. I don't like much about chinese > medicine which lacks of the meaningfully scintific indication. BTW, I > am orignally from mainland China. I occassionally took some Vitamin > B, Calcium (500mg) and multiple Vitamin. What I said here is > encourage people to communicate with their endos and look for better > solution. > > Best wishes, > > Remote Light Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi , From my personal experience I think you may try PTU to see the effect. Previously, Tapazole didn't work well for me either, and with huge side effects. Anyway it's case by case, I believe. BTW, My endo thought my symptom is pretty strong so I was allowed to take a sick leave then. Chinese herb may works sometime due to unclear reason. RAI is currently the best solution through the US medical practice. Good luck and wish you recover soon! Remote Light > > Hi All, > > > > I would share my short story below for your reference. Hopefully > > someone will benifit from my personal experience. > > > > Previously, I took Tapazole and got serious liver alergy after 30 > > days with proof from blood test. Then my endo told me it's very > > possible I am alergy to another choice PTU. But she still allowed > me > > to give a shot even not very encouraging (She wants me to pursue > RAI > > immediately as an ultimate solution). So I wait for another monthe > to > > sooth my liver. Then I switch to PTU, looks like my liver this time > > is not sensitive to it ATD again by the blood test in the end of > the > > last month. And T4 dropped very quickly from 3.3 to 2.3, 0.8-1.8 > > normal. > > > > The above story is not anti-endo at all. IHMO, I think they are the > > reliable source to work with. I don't like much about chinese > > medicine which lacks of the meaningfully scintific indication. BTW, > I > > am orignally from mainland China. I occassionally took some Vitamin > > B, Calcium (500mg) and multiple Vitamin. What I said here is > > encourage people to communicate with their endos and look for > better > > solution. > > > > Best wishes, > > > > Remote Light Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Hi , Have to say I agree, and with your high FT4 you would have an extremely high risk for thyroid storm if you had RAI. RAI is only used the most in the United States because it is by far the cheapest therapy, and it's an effective way to dispose of nuclear waste. This was the original motivation for its use. Things are changing though and patients are becoming more proactive and refusing RAI. The number of people using ATDs has increased considerably with good reason. Glad to hear you're well informed. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 My TSH was close to 0 , normal is 0.38 - 5.5 My Free T4 was > 120, normal is 10.5 - 20.0. I think your Endo will consider my symptom as fatal then. I do not have allergy with Tapazole. PTU and tapazole are having the same function, both are blocking thyroid from producing hormone by blocking thyroid taking from iodine to produce thyroid hormone. If Tapazole did not work for me, there is little chance for PTU working for me. thanks for the suggestion anyway. RAI is the worst solution in medical practice, much worse than ATD and worse than surgery. It introduces hypothyroidism for which a patient has to take pills for the rest of his life. It also increases the chance of have thyroid eyes disease which is terrible. It has been used for more than 40 years and is proven to not increase the chance of having cancer nor harming any of your body cell. I think 40 years is too short to make that kind of prove. Maybe your next generation has problems just because RAI affects your gene. who knows. there is no study on that yet. Remember, you let the radioactive stuff running in your blood for about 8 days. Nobody knows what it actually does to your body. If i take RAI and die because of it, that is fine since it is my own choice. But, if my kids have problems because i take RAI, I won't forgive myself. Sorry for the yelling, GD people are easy to yell. forgive me. alex > > > Hi All, > > > > > > I would share my short story below for your reference. Hopefully > > > someone will benifit from my personal experience. > > > > > > Previously, I took Tapazole and got serious liver alergy after 30 > > > days with proof from blood test. Then my endo told me it's very > > > possible I am alergy to another choice PTU. But she still allowed > > me > > > to give a shot even not very encouraging (She wants me to pursue > > RAI > > > immediately as an ultimate solution). So I wait for another > monthe > > to > > > sooth my liver. Then I switch to PTU, looks like my liver this > time > > > is not sensitive to it ATD again by the blood test in the end of > > the > > > last month. And T4 dropped very quickly from 3.3 to 2.3, 0.8- 1.8 > > > normal. > > > > > > The above story is not anti-endo at all. IHMO, I think they are > the > > > reliable source to work with. I don't like much about chinese > > > medicine which lacks of the meaningfully scintific indication. > BTW, > > I > > > am orignally from mainland China. I occassionally took some > Vitamin > > > B, Calcium (500mg) and multiple Vitamin. What I said here is > > > encourage people to communicate with their endos and look for > > better > > > solution. > > > > > > Best wishes, > > > > > > Remote Light Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 In a message dated 7/21/2003 8:01:07 PM Eastern Daylight Time, alexying2000@... writes: > I am turning to Chinese medicine since i have no other choice here > but RAI or surgery Dear , Have you gone to iThyroid.com yet to find nutrition and supplements that can cure or manage hyperT? Many of us have had great success with this approach. AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Hi everyone, I started out on tapazole and was allergic within a week and tried PTU next. It worked for about a years and then I had bad side effect with extremely elevated liver enzymes. I do not have an endo now because she was giving me ultimatum of surgery or RAI. She recommended surgery due to eye problems with RAI. I have not sought another endo because I feel its a waste of time. I know the choices and I don't think any endo I could find (after waiting 6 months to get an appointment due to shortage) would support correcting the malfunction which is my ultimate goal. Currently I am not on any medications just taking supplements I gathered from ithyroid.com and other sources. Cal/mag 2:1 ratio, copper, zinc, biotin and B complex and a liver and kidney herb from chinese herbalist, and I've had one treatment of acupunture with more scheduled. These have greatly controlled my symptoms although I am not sure which ones, maybe all. I am anxious to be feeling better but to tell you the truth I feel somewhat better since I got off of the PTU as long as my symptoms are controlled with the supplements. The only other problem I have is being emotional for no reason. It drives me nuts. I start crying for nothing really and I try to stop but I cannot and its embarrassing. I have never been emotional so I figured it must be hormonal and wonder if anyone knows if this could be symptom of something else or associated with Graves. I hate going to doctors because I've never gotten any encouragement from doctors only bad news and surgery options. I do plan to go for a regular checkup though. I am 46 so I was thinking maybe it could be menopause. When you have so much going on its hard to tell what's causing what. Thanks for listening. Janice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2003 Report Share Posted July 23, 2003 Hi , When you mention methimazole isn't working, I have to wonder if your doctor is looking at the TSH results when she says this. It can take as long as 2 years for TSH to rise in people who have been hyperthyroid, but in most cases it takes several months. If you were on the recommended starting dose of 30 mg, taken in divided doses, your FT4 and FT3 should have dropped after the first 6-8 weeks. Be sure to get copies of your lab reports. take care, elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 Hi Janice, Elevated liver enzymes are nearly always associated with an inappropriately high PTU dose. If your doctor was focusing on your TSH (which can take as long as 2 years to rise), he may have had you on a dose that was too high. If you're not using meds at all, be sure you're avoiding iodine and adding goitrogens. PTU works by blocking iodine absorption, and you may be able to have the same results with dietary changes. Thyroid hormone does affect emotions especially if you have sudden changes, like if you were hypo on the PTU and have now moved into normal and are headed hyper. Many of us with GD are also extremely sensitive. To be on the safe side, be sure you're checking your pulse and blood pressure to make sure you don't move into severe hyperthyroidism. There are also herbs, like bugleweed that have the same effect as PTU. You can manage symptoms and achieve remission through natural means but it's important that you be monitored and have occasional thryoid hormone levels. Your GP can order those. Take care, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2003 Report Share Posted July 25, 2003 How do you take the bugleweed and in what amounts? Thanks, Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2004 Report Share Posted May 13, 2004 Just a reminder to think twice before publicly sharing names and phone numbers of farms operating cow shares and selling milk on an open message board. Some people work too hard to get this up and running so have it destroyed in one quick e-mail. Thanks - Quote Link to comment Share on other sites More sharing options...
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