New to Group - Been wearing helmet since Friday

[Guest guest]

I am thankful that I have found this group! I have been reading your

messages and relating to alot of them. My twin sons, Zachery and ,

were not even referred to a specialist until their 10 month check up. Their

Pediatrician was more concerned with Zachery, who has a flat spot on the

back of his head, than Matt who had a flat spot on the right side of his

head. We have always been more concerned about Matt. The Plastic Surgeon

who examined Matt also said his ears were out of alignment. And noticeable

so. I am a little concerned that their Pediatrician did not diagnosis the

right baby. The Plastic Surgeon in OKC didn't recommend a helmet for

Zachery's head which seems to be shaping up and his ears have always been

asymmetric. But thanks to the Pediatricians misdiagnosis, was

diagnosed by the Plastic Surgeon and quickly casted and is now wearing his

Cranial Molding Helmet with in two quick weeks. He has been wearing it

since Friday. I can sympathize with all of you who have to travel long

distances to the Orthonics Specialist every other week.

It seems like I have to travel 200 miles round-trip every week. This next

week both boys have appointments at the Oklahoma Eye Institute and the

Neurological Development Center for evaluation. Have any of you been

referred for this type of evaluation. What kind of tests should we expect?

Also, Matt has been wearing the helmet without any trouble, except for some

rubbing on his ears and eyes. He seems to be really uncomfortable then.

Have you noticed this in your child?

Thanks for your insight!

Matt and Zach's Mom (Virginia)