Guest guest Posted April 25, 2005 Report Share Posted April 25, 2005 I'd like to know if anyone has experienced seizures while sleeping? As an epileptic, it might be hard to answer that if you live alone. You might not know you are going into a seizure even if you're awake and you're disoriented when you come out of one. I've had a seizure during my sleep but was unaware of it when I woke. Fortunately my boyfriend had spent the night and told me about it the next day. Raddj2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 , I'm so sorry to hear, how frightening. I had a boyfriend who had epilepsy, caused by a kick in the head from a cow!!! years before. He sensed when he was about to have a seizure, so he would try hard to create very clear pictures in his mind that he could concentrate on in order to, I guess, put his brain in a different way - he asked me once to do that, (tell him a story with clear details that he could concentrate on) wasn't easy, but a very interesting way of dealing with it. Is your boyfriend open to the idea of going gung ho on the diet? (no more cookies??) - that's the big part of the battle. I don't know if I already mentioned it, but my husband did go through the operation of having his gall bladder removed. The doctor was even so kind as to give him a small test tube full of the stones that were created in his gall bladder - I looked at it and thought, yuk, just from eating how he does. He looked at it, and I'm not sure what he thought, maybe how cute??? (the stones were smaller than he expected) But it sure hasn't had a big effect on how he eats - he figures as long as he doesn't feel anything, he could continue as before, well, not quite as heavy on oils, but still had already meat and cheese meals - he believes without the gall bladder he would feel immediately if he ate something not right - I tried to ask maybe something could develop without him realizing it, he didn't buy it. oh well. Good luck to you and bf - hope you can find doctor open to other ideas - what about the one who made the movie with Verne Varona?? Klaraleslieanneashburn wrote: hello everyone,i had an interesting weekend tending to my boyfriend who had a sudden and unexpected seizure on sunday night. He had been traveling extensively and was very fatigued. He took a sleeping pill and about 10 minutes later went onto his computer. he told me he was hallucinating, and to come into the room. The next thing I knew he was on the floor for about two minutes having this series of seizures. I've never seen him have anything like this before (no family history or anything), so it was quite freaky. The doctors don't think it was related to the sleeping pill, but we definitely do (extreme yin).What's the macro point of view on this? What is recommended? I haven't found out yet what part of his brain it was, except that it's the right side that, based on an EEG, does show hyperactivity (no tumor, thankfully). They're concerned, based on the description of his onset, and the area of abnormal activity in the brain that it will happen again. Of course, I believe changing his diet will definitely help. I'm guessing the usual -- avoid sugar, refined flour, more miso soup, umeboshi. Anything anyone else could let me know would be great.Thanks, How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 , I'm so sorry to hear, how frightening. I had a boyfriend who had epilepsy, caused by a kick in the head from a cow!!! years before. He sensed when he was about to have a seizure, so he would try hard to create very clear pictures in his mind that he could concentrate on in order to, I guess, put his brain in a different way - he asked me once to do that, (tell him a story with clear details that he could concentrate on) wasn't easy, but a very interesting way of dealing with it. Is your boyfriend open to the idea of going gung ho on the diet? (no more cookies??) - that's the big part of the battle. I don't know if I already mentioned it, but my husband did go through the operation of having his gall bladder removed. The doctor was even so kind as to give him a small test tube full of the stones that were created in his gall bladder - I looked at it and thought, yuk, just from eating how he does. He looked at it, and I'm not sure what he thought, maybe how cute??? (the stones were smaller than he expected) But it sure hasn't had a big effect on how he eats - he figures as long as he doesn't feel anything, he could continue as before, well, not quite as heavy on oils, but still had already meat and cheese meals - he believes without the gall bladder he would feel immediately if he ate something not right - I tried to ask maybe something could develop without him realizing it, he didn't buy it. oh well. Good luck to you and bf - hope you can find doctor open to other ideas - what about the one who made the movie with Verne Varona?? Klaraleslieanneashburn wrote: hello everyone,i had an interesting weekend tending to my boyfriend who had a sudden and unexpected seizure on sunday night. He had been traveling extensively and was very fatigued. He took a sleeping pill and about 10 minutes later went onto his computer. he told me he was hallucinating, and to come into the room. The next thing I knew he was on the floor for about two minutes having this series of seizures. I've never seen him have anything like this before (no family history or anything), so it was quite freaky. The doctors don't think it was related to the sleeping pill, but we definitely do (extreme yin).What's the macro point of view on this? What is recommended? I haven't found out yet what part of his brain it was, except that it's the right side that, based on an EEG, does show hyperactivity (no tumor, thankfully). They're concerned, based on the description of his onset, and the area of abnormal activity in the brain that it will happen again. Of course, I believe changing his diet will definitely help. I'm guessing the usual -- avoid sugar, refined flour, more miso soup, umeboshi. Anything anyone else could let me know would be great.Thanks, How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 hi leslie that must have been kinda scarey. There was a good chapter on seizures - epilepsy more so in Natural healing though macrobiotics by michio. I dont have it handy but I think there is similar info in the MB path book extreme yin was mentioned so you could be right with the sleeping pill they did mention if I remember correctly pressing acupoints around the base of the big toe nail to bring the energy down there can be many causes - diet etc of course, sometimes emotions and electormagnetics can all be involved. sometimes there are EMF changes and some people esp if vulnerable ef taking a sleeping pill if not used to it etc can trigger something... certain mineral and vitamin imbalances can also be involved... keep us posted leslieanneashburn wrote: hello everyone, i had an interesting weekend tending to my boyfriend who had a sudden and unexpected seizure on sunday night. He had been traveling extensively and was very fatigued. He took a sleeping pill and about 10 minutes later went onto his computer. he told me he was hallucinating, and to come into the room. The next thing I knew he was on the floor for about two minutes having this series of seizures. I've never seen him have anything like this before (no family history or anything), so it was quite freaky. The doctors don't think it was related to the sleeping pill, but we definitely do (extreme yin). What's the macro point of view on this? What is recommended? I haven't found out yet what part of his brain it was, except that it's the right side that, based on an EEG, does show hyperactivity (no tumor, thankfully). They're concerned, based on the description of his onset, and the area of abnormal activity in the brain that it will happen again. Of course, I believe changing his diet will definitely help. I'm guessing the usual -- avoid sugar, refined flour, more miso soup, umeboshi. Anything anyone else could let me know would be great. Thanks, -- Ilanit Tof - Signature Ilanit Ms Ilanit Tof B.A. (Psychophysiology/Psychology) Advanced Diploma Healing with Wholefoods PhD Holistic Nutrition (candidate) Little Tree Oriental Healing Arts Helping you grow to new heights of wellbeing with Oriental Traditions and Modern Nutrition ilanit@... www.littletree.com.au Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 hi leslie that must have been kinda scarey. There was a good chapter on seizures - epilepsy more so in Natural healing though macrobiotics by michio. I dont have it handy but I think there is similar info in the MB path book extreme yin was mentioned so you could be right with the sleeping pill they did mention if I remember correctly pressing acupoints around the base of the big toe nail to bring the energy down there can be many causes - diet etc of course, sometimes emotions and electormagnetics can all be involved. sometimes there are EMF changes and some people esp if vulnerable ef taking a sleeping pill if not used to it etc can trigger something... certain mineral and vitamin imbalances can also be involved... keep us posted leslieanneashburn wrote: hello everyone, i had an interesting weekend tending to my boyfriend who had a sudden and unexpected seizure on sunday night. He had been traveling extensively and was very fatigued. He took a sleeping pill and about 10 minutes later went onto his computer. he told me he was hallucinating, and to come into the room. The next thing I knew he was on the floor for about two minutes having this series of seizures. I've never seen him have anything like this before (no family history or anything), so it was quite freaky. The doctors don't think it was related to the sleeping pill, but we definitely do (extreme yin). What's the macro point of view on this? What is recommended? I haven't found out yet what part of his brain it was, except that it's the right side that, based on an EEG, does show hyperactivity (no tumor, thankfully). They're concerned, based on the description of his onset, and the area of abnormal activity in the brain that it will happen again. Of course, I believe changing his diet will definitely help. I'm guessing the usual -- avoid sugar, refined flour, more miso soup, umeboshi. Anything anyone else could let me know would be great. Thanks, -- Ilanit Tof - Signature Ilanit Ms Ilanit Tof B.A. (Psychophysiology/Psychology) Advanced Diploma Healing with Wholefoods PhD Holistic Nutrition (candidate) Little Tree Oriental Healing Arts Helping you grow to new heights of wellbeing with Oriental Traditions and Modern Nutrition ilanit@... www.littletree.com.au Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Hey , Well, it's been rough that's for sure. I am so thankful for each day with her and tell her so. I do the " rush in the house to check if she's alive " thing every time I get home though. Marlie and I love her very much. When I was pregnant Billie used to lie on my belly all the time I felt like she was already loving Marlie. I dred " the day " ........ she's such a good girl but the blood and pee on the bed well that I can do without. About G, I hope it never happens to him again too! I'm sure he'll be just fine. Gentle hugs, Reg > > > > !!! > > Oh how scary. My cat had some seizures for about a week and a > grand > > mal and I thought she was dying first time it happened (she's been > > battling breast cancer for nearly 2 years and has a tumor about the > > size of my fist) but she's " better " now. I spoke to my > acupuncturist > > about it and he said if she has another to put a needle (yea right) > or > > tap her right above the mouth in the middle as it will calm her > down. > > A cat's mouth is not like a human so I don't get it but I thought > > since your b friend is a human it could work. I would imagine you > > should also be careful with not getting attacked or bitten by him. > I > > could look thru my books if you'd like to see if there is anything > > else I can find. > > I hope he is ok. My thoughts are with you. > > Peace, > > Reggie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Hey , Well, it's been rough that's for sure. I am so thankful for each day with her and tell her so. I do the " rush in the house to check if she's alive " thing every time I get home though. Marlie and I love her very much. When I was pregnant Billie used to lie on my belly all the time I felt like she was already loving Marlie. I dred " the day " ........ she's such a good girl but the blood and pee on the bed well that I can do without. About G, I hope it never happens to him again too! I'm sure he'll be just fine. Gentle hugs, Reg > > > > !!! > > Oh how scary. My cat had some seizures for about a week and a > grand > > mal and I thought she was dying first time it happened (she's been > > battling breast cancer for nearly 2 years and has a tumor about the > > size of my fist) but she's " better " now. I spoke to my > acupuncturist > > about it and he said if she has another to put a needle (yea right) > or > > tap her right above the mouth in the middle as it will calm her > down. > > A cat's mouth is not like a human so I don't get it but I thought > > since your b friend is a human it could work. I would imagine you > > should also be careful with not getting attacked or bitten by him. > I > > could look thru my books if you'd like to see if there is anything > > else I can find. > > I hope he is ok. My thoughts are with you. > > Peace, > > Reggie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 I used to suspect that my son might have 'petit mal' as well last year.......and our VB therapists suggested the same because he was not engaging!! After a year, he is a different child now....my conclusion is to get him engaged in things he is interested in all the time so he has no chance to 'stim' or gaze into space 'petit mal'! Be your child's playmate and do interesting things together, and reward him for every little thing, building self esteem along the way. A combination of RDI and play with a dash of VB principle. Don't rely on the ABA or VB team to do this job because the time your child spent with you is as good as gold to them. > > Hi I was hoping that I could get some advice as I have a strong > suspicion that Sophie is having " small " fits what used to be called > petit mal.I used to work as a nurse in neurology many years ago so I am > reluctant to get into medications as I seem to remember the side > effects often massively outweighed the benefits of the drugs...... but > I am wondering what people on here think as I am more inclined to > listen carefully to people with real experience rather than my useless > GP.Shoul I try and get an EEG done? Although I know they can be > inconclusive? What other approaches supps may be helpful? I would be so > grateful for any input emx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 I used to suspect that my son might have 'petit mal' as well last year.......and our VB therapists suggested the same because he was not engaging!! After a year, he is a different child now....my conclusion is to get him engaged in things he is interested in all the time so he has no chance to 'stim' or gaze into space 'petit mal'! Be your child's playmate and do interesting things together, and reward him for every little thing, building self esteem along the way. A combination of RDI and play with a dash of VB principle. Don't rely on the ABA or VB team to do this job because the time your child spent with you is as good as gold to them. > > Hi I was hoping that I could get some advice as I have a strong > suspicion that Sophie is having " small " fits what used to be called > petit mal.I used to work as a nurse in neurology many years ago so I am > reluctant to get into medications as I seem to remember the side > effects often massively outweighed the benefits of the drugs...... but > I am wondering what people on here think as I am more inclined to > listen carefully to people with real experience rather than my useless > GP.Shoul I try and get an EEG done? Although I know they can be > inconclusive? What other approaches supps may be helpful? I would be so > grateful for any input emx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 I just started seeing a 2 year old male with seizures. At 6 months, parents noted limited use of left hand. They started OT and the practitioner wanted an MRI. They found evidence of a stroke that the subsequent referred neuro deemed an in-utero episode that created scar tissue. It is located in the motor cortex. He is also missing part of his brain (they were not sure which part or how much). Developmentally, he has speech issues and left arm and leg issues. Originally, the seizures were simply a shaking of the left hand. In the last two months, his seizures have increased, with the last week post otitis media being especially bad. His meds have been ramped up--Keppra, clonazepam and now, Vimpat (which has no trials on children). Ironically, this all seemed to correlate with both the otitis and recent cessation of regular craniosacral therapy with his PT. His behavior is changing with the meds for the worse. Seizures are still happening in clusters of 6, 3 times daily. They are brief. He lifts his left arm, turns his head down to the right and his eyes either go upward or to the right. I just started him on BTG, elimination of dairy, adding omega 3s and vitamin d, coconut oil and Bacopa. I am also doing craniosacral tx. Thanks for any input. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 I have had good success with constitutional homeopathics in the treatment of seizures. Best wishes, it sounds like a challenging case. Sharum Sharif, ND To: Sent: Thursday, March 1, 2012 6:10 PM Subject: Seizures I just started seeing a 2 year old male with seizures. At 6 months, parents noted limited use of left hand. They started OT and the practitioner wanted an MRI. They found evidence of a stroke that the subsequent referred neuro deemed an in-utero episode that created scar tissue. It is located in the motor cortex. He is also missing part of his brain (they were not sure which part or how much). Developmentally, he has speech issues and left arm and leg issues. Originally, the seizures were simply a shaking of the left hand. In the last two months, his seizures have increased, with the last week post otitis media being especially bad. His meds have been ramped up--Keppra, clonazepam and now, Vimpat (which has no trials on children). Ironically, this all seemed to correlate with both the otitis and recent cessation of regular craniosacral therapy with his PT. His behavior is changing with the meds for the worse. Seizures are still happening in clusters of 6, 3 times daily. They are brief. He lifts his left arm, turns his head down to the right and his eyes either go upward or to the right. I just started him on BTG, elimination of dairy, adding omega 3s and vitamin d, coconut oil and Bacopa. I am also doing craniosacral tx. Thanks for any input. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2012 Report Share Posted March 2, 2012 I've had one patient have great success with the program at unlimitedbrain.com ~ he had extended hypoxia @ birth with resulting cortical blindness ~ along with multiple developmental delays. I got this advice from another doc either here or on natchat, followed through with it, and it has been huge for this kid and his family. He was 18 months old when they started tx. Good luck, please keep us posted. Suber, ND Quote Link to comment Share on other sites More sharing options...
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