Re: Questions on Development

[Guest guest]

Hi ,

We found that Micah has been later on all of the mobility

milestones....although all of the others are right on track. He was

late sitting, rolling over, and crawling. He finally started

crawling at 10 1/2 months... and he is just now beginning to pull up

at 11 1/2 months. That isn't terribly late according to the

charts...but, both of our other children were walking between 9 and

10 months. We, and our P.T. really believe it is tort related.

Micah also has a large head. His body is 10 - 15% and his noggin is

94%. That causes balancing to be a real issue. It seems that many

of the plagio/tort babies have larger heads, and even normal heads

are trying to balance a crooked noggin, and a band or helmet.

Many of the articles also mention developmental delays with these

kids...although, they point out that they usually catch up later (by

3, I think).

I wish someone would really research this area, because it is a

frequently asked question with this group...there must be some

connection.

Good Luck!!!!!

Laurie in Tuscaloosa

> Hi ,

>

> was in her helmet for 7 weeks. She started PT in mid April

and

> continues. We do a neck stretching exercise. We also started

sitting on

> the ball and moving from side to side. She was delayed in sitting -

she did

> not sit alone until over 9 months. She just started to crawl using

her legs

> (bent) about 10 days ago - at 11 months. HATED her stomach

for a

> very long time. She did not really feel comfortable on it until

about 10 -

> 10 1/2 months. The PT has helped tremendously.

>

> I hope this helps.

>

> BTW, Go JETS! I think we talked a while ago about the JETS. My

husband and

> 3 1/2 year old daughter went to last night's game. Alyssa was very

excited

> and stayed awake for the whole game! We have season tix.

Hopefully I will

> get to a few games this year.

>

> Amy :-)

>

> ----- Original Message -----

> From: <go_jets@h...>

> <Plagiocephalyegroups>

> Sent: Sunday, July 30, 2000 5:19 PM

> Subject: Questions on Development

>

>

> > Casey (who is 9 months old) has been in the helmet for about a

month

> > and a half. All seems to be going well -- we think we are seeing

> > progress! I wanted to get some opinions about a few development

> > things... We've been going to OT & PT for 5 months for

torticollis. I

> > wondered what types of exercises other people are doing who are

at a

> > similar stage. We do the neck exercises like the ones posted on

this

> > site at night when he goes to sleep (the only time we can do

them!).

> > We also do some exercises on a big rubber ball -- like sitting and

> > going to each side. Are there other exercises people do once the

> > torticollis seems better? Mostly we are focusing more on

> > developmental milestones now at OT/PT with Casey. Which brings me

to

> > my next question: Does anyone notice any particular development

> > delays? Casey still prefers his back a lot, although he can sit,

> > stand (with help) and roll back & forth between his stomach and

back.

> > It is transitioning from each position that he either cannot or

does

> > not feel like doing yet... Are others experiencing this? It's

hard to

> > know if he's just taking his time or if it is torticollis-

related...

> > We're in no hurry, as long as there are not development concerns

we

> > should be worrying about! Thank you in advance for any input -

> >

> >

> >

> >

> >

[Guest guest]

Hi Amy,

Thanks again for your reply back -- it is so helpful to get this

group's feedback! I'm learning so much here about the torticollis &

plagiocephaly... On a football note, GO JETS!!! So nice to have

Vinnie back. I'm looking forward to this season. I don't know if

we'll get to any games, but we'll definitely be tuning in on Sundays.

We'll work on Casey's J-E-T-S Jets Jets Jets cheer... maybe that will

be his first word. I'm interested in seeing Dennis tonight on

Monday Night Football.

> Hi ,

>

> was in her helmet for 7 weeks. She started PT in mid April

and

> continues. We do a neck stretching exercise. We also started

sitting on

> the ball and moving from side to side. She was delayed in sitting -

she did

> not sit alone until over 9 months. She just started to crawl using

her legs

> (bent) about 10 days ago - at 11 months. HATED her stomach

for a

> very long time. She did not really feel comfortable on it until

about 10 -

> 10 1/2 months. The PT has helped tremendously.

>

> I hope this helps.

>

> BTW, Go JETS! I think we talked a while ago about the JETS. My

husband and

> 3 1/2 year old daughter went to last night's game. Alyssa was very

excited

> and stayed awake for the whole game! We have season tix.

Hopefully I will

> get to a few games this year.

>

> Amy :-)

>

> ----- Original Message -----

> From: <go_jets@h...>

> <Plagiocephalyegroups>

> Sent: Sunday, July 30, 2000 5:19 PM

> Subject: Questions on Development

>

>

> > Casey (who is 9 months old) has been in the helmet for about a

month

> > and a half. All seems to be going well -- we think we are seeing

> > progress! I wanted to get some opinions about a few development

> > things... We've been going to OT & PT for 5 months for

torticollis. I

> > wondered what types of exercises other people are doing who are

at a

> > similar stage. We do the neck exercises like the ones posted on

this

> > site at night when he goes to sleep (the only time we can do

them!).

> > We also do some exercises on a big rubber ball -- like sitting and

> > going to each side. Are there other exercises people do once the

> > torticollis seems better? Mostly we are focusing more on

> > developmental milestones now at OT/PT with Casey. Which brings me

to

> > my next question: Does anyone notice any particular development

> > delays? Casey still prefers his back a lot, although he can sit,

> > stand (with help) and roll back & forth between his stomach and

back.

> > It is transitioning from each position that he either cannot or

does

> > not feel like doing yet... Are others experiencing this? It's

hard to

> > know if he's just taking his time or if it is torticollis-

related...

> > We're in no hurry, as long as there are not development concerns

we

> > should be worrying about! Thank you in advance for any input -

> >

> >

> >

> >

> >

[Guest guest]

Hi Amy,

Alyssa is a born Jets fan -- smart girl!!! That is so funny that she

could do the cheer at such a young age. I'm sure will soon

follow suit since it's in the family!... I watched part of the game

tonight, and I like Dennis . I'm definitely not the most

knowledgeable football fan, but I thought he was doing well... By the

way, back to torticollis and plagiocephaly - did phase out of

the helmet before removing it totally? I read in some of our

literature that at some point they may recommend just wearing the

helmet during sleep/nap time and in the car seat. Just wondering if

that is common. I find it just as easy to keep the helmet on Casey

all the time -- and I figure this is our chance to make it work as

best as possible.

> > > Hi ,

> > >

> > > was in her helmet for 7 weeks. She started PT in mid

April

> > and

> > > continues. We do a neck stretching exercise. We also started

> > sitting on

> > > the ball and moving from side to side. She was delayed in

sitting -

> > she did

> > > not sit alone until over 9 months. She just started to crawl

using

> > her legs

> > > (bent) about 10 days ago - at 11 months. HATED her

stomach

> > for a

> > > very long time. She did not really feel comfortable on it until

> > about 10 -

> > > 10 1/2 months. The PT has helped tremendously.

> > >

> > > I hope this helps.

> > >

> > > BTW, Go JETS! I think we talked a while ago about the JETS. My

> > husband and

> > > 3 1/2 year old daughter went to last night's game. Alyssa was

very

> > excited

> > > and stayed awake for the whole game! We have season tix.

> > Hopefully I will

> > > get to a few games this year.

> > >

> > > Amy :-)

> > >

> > > ----- Original Message -----

> > > From: <go_jets@h...>

> > > <Plagiocephalyegroups>

> > > Sent: Sunday, July 30, 2000 5:19 PM

> > > Subject: Questions on Development

> > >

> > >

> > > > Casey (who is 9 months old) has been in the helmet for about a

> > month

> > > > and a half. All seems to be going well -- we think we are

seeing

> > > > progress! I wanted to get some opinions about a few

development

> > > > things... We've been going to OT & PT for 5 months for

> > torticollis. I

> > > > wondered what types of exercises other people are doing who

are

> > at a

> > > > similar stage. We do the neck exercises like the ones posted

on

> > this

> > > > site at night when he goes to sleep (the only time we can do

> > them!).

> > > > We also do some exercises on a big rubber ball -- like

sitting and

> > > > going to each side. Are there other exercises people do once

the

> > > > torticollis seems better? Mostly we are focusing more on

> > > > developmental milestones now at OT/PT with Casey. Which

brings me

> > to

> > > > my next question: Does anyone notice any particular

development

> > > > delays? Casey still prefers his back a lot, although he can

sit,

> > > > stand (with help) and roll back & forth between his stomach

and

> > back.

> > > > It is transitioning from each position that he either cannot

or

> > does

> > > > not feel like doing yet... Are others experiencing this? It's

> > hard to

> > > > know if he's just taking his time or if it is torticollis-

> > related...

> > > > We're in no hurry, as long as there are not development

concerns

> > we

> > > > should be worrying about! Thank you in advance for any input -

> >

> > > >

> > > >

> > > >

> > > >

> > > >