Plagiocephaly and Microcephaly

[Guest guest]

Tara,

I'm sorry but I have never heard of this codition. Wish I could help

more but I am sure someone here can. Keep your head up.

Good luck and God speed

LuAnn and Shelbey

[Guest guest]

Hello,

It's been awhile since I've written...My daughter Sydney has been in

her helmet for 4 weeks (with an estimated time of wear of 2

months...she was almost 5 months when she was fitted.) She measured

41 centimeters when she was fitted and 3 weeks later she measured

41.5 centimeters. The doctor was a bit concerned and had expected her

to have grown a full centimeter by then. He said there was not much

to do but wait until the next appointment to see if she had a growing

spurt. He also mentioned microcephaly. Sydney is, I think rather big

for her age, yet her head measurements have always been on the

smaller side. Has anyone ever heard of a connection between

Plagiocephaly and microcephaly? Her helmet just seems big and we

aren't seeing the changes we'd hoped to in this amount of time. The

doctor just says wait and see.

Thanks for any input,

Tara

[Guest guest]

Hi Tara,

My daughter was is 14 mths. and just got diagnosed with Brachycephaly

yesterday. What really concerned them was the size of her head. It had jumped

from the 100% to the 120% in just two months. She instantly sent us up to

X-ray, to rule out the possibility of Macrocephaly. We have an appt. with

another Neuro this Monday. I myself am starting a Research tonight so I can

be prepared for the Mon. appt. If I find any information pertaining to your

question I will try to e-mail you the links.

Good Luck,

[Guest guest]

Tara.

I am so sorry, I thought you were referring to Macrocephaly. That's what I

get for not wearing my glasses!! If I see anything that might interest you, I

will still e-mail it.

Sorry about the confusion,

[Guest guest]

Thank You so much for the info. I can't seem to get any info. on this.

[Guest guest]

Actually, a large head size usually is more common with positional

plagio. Of course, this doesn't apply for preemies affected with

pos. plagio.

Sydney hasn't " fallen off the charts " with her head circumference, so

don't worry too much. I'm glad her doctor is being pro-active,

although I think he may be worrying you needlessly by bringing up

microcephaly with only 3 weeks between measurements. My daughter,

Grace, had absolutely NO change in her head circ. in a period of 3

months and it was said to be due to her head shape correcting in the

DOC band. (Grace also has benign macrocephaly, though - the opposite

of microcephaly)

Sometimes helmets take a bit longer to see results. Depending on the

type of helmet, of course. And if Sydney isn't going through a big

growth spurt right now, her head just isn't going to be filling up

the space that quickly, ya know?

Don't worry! Head sizes are like blood pressure readings. One bad

reading or measurement doesn't mean you have high blood pressure.

But, a series of high measurements (or, in Sydney's case, LOW

measurements) would be something to look into.

L.

http://www.Plagiocephaly-subscribeegroups

http://www.FDA_DocBand-subscribeegroups

----- Original Message -----

From: <tarac@...>

<Plagiocephalyegroups>

Sent: Friday, September 15, 2000 3:20 PM

Subject: Plagiocephaly and Microcephaly

|

| Hello,

| It's been awhile since I've written...My daughter Sydney has been

in

| her helmet for 4 weeks (with an estimated time of wear of 2

| months...she was almost 5 months when she was fitted.) She measured

| 41 centimeters when she was fitted and 3 weeks later she measured

| 41.5 centimeters. The doctor was a bit concerned and had expected

her

| to have grown a full centimeter by then. He said there was not much

| to do but wait until the next appointment to see if she had a

growing

| spurt. He also mentioned microcephaly. Sydney is, I think rather

big

| for her age, yet her head measurements have always been on the

| smaller side. Has anyone ever heard of a connection between

| Plagiocephaly and microcephaly? Her helmet just seems big and we

| aren't seeing the changes we'd hoped to in this amount of time. The

| doctor just says wait and see.

| Thanks for any input,

| Tara

|

|

|

[Guest guest]

Hi.

Thought I would pass on this link to some interesting info I found when my daughter, Grace, was diagnosed with benign macrocrania. I found particularly interesting the correlation between macrocrania and plagiocephaly supposedly due to the higher water content of the skull, causing it to be more malleable...

http://www.neurosurgery.org/sections/pediatrc/dias_hydro.html

L.http://www.Plagiocephaly-subscribeegroupshttp://www.FDA_DocBand-subscribeegroups

----- Original Message -----

From: <Ssassafras1@...>

<Plagiocephalyegroups>

Sent: Friday, September 15, 2000 7:43 PM

Subject: Re: Plagiocephaly and Microcephaly

| -------------------------- eGroups Sponsor -------------------------~-~>| Need a credit card?| Instant Approval and 0% intro APR with Aria!| 1/7101/5/_/689409/_/969065005/| -------------------------------------------------------------------->| | Hi Tara,| | My daughter was is 14 mths. and just got diagnosed with Brachycephaly | yesterday. What really concerned them was the size of her head. It had jumped | from the 100% to the 120% in just two months. She instantly sent us up to | X-ray, to rule out the possibility of Macrocephaly. We have an appt. with | another Neuro this Monday. I myself am starting a Research tonight so I can | be prepared for the Mon. appt. If I find any information pertaining to your | question I will try to e-mail you the links.| | Good Luck,| | | |

[Guest guest]

Tara I have one question to ask, did you get a CT scan done before being put in the helmet? Microcephaly is a different condition all together and craniosynostosis also can cause the head to not grow much, so that is why I asked about the CT scan. If I can do anything let me know.

Pitchke

-----Original Message-----From: tarac@... [mailto:tarac@...]Sent: Friday, September 15, 2000 4:21 PMPlagiocephalyegroupsSubject: Plagiocephaly and Microcephaly

Hello, It's been awhile since I've written...My daughter Sydney has been in her helmet for 4 weeks (with an estimated time of wear of 2 months...she was almost 5 months when she was fitted.) She measured 41 centimeters when she was fitted and 3 weeks later she measured 41.5 centimeters. The doctor was a bit concerned and had expected her to have grown a full centimeter by then. He said there was not much to do but wait until the next appointment to see if she had a growing spurt. He also mentioned microcephaly. Sydney is, I think rather big for her age, yet her head measurements have always been on the smaller side. Has anyone ever heard of a connection between Plagiocephaly and microcephaly? Her helmet just seems big and we aren't seeing the changes we'd hoped to in this amount of time. The doctor just says wait and see. Thanks for any input,Tara

[Guest guest]

I have another question is Brachycephaly where the head has a long and narrow shape to it? I know there was another mother on the group that showed me pics that looked like sagittal craniosynostosis but all the sutures were open? I have a parent on my group that has come back after a while to ask some more questions and her childs head shape looks sagittal but the sutures are open. I have sent her your way but would like to understand better myself. Tara did they bring craniosynostosis up to you?

Pitchke

-----Original Message-----From: Ssassafras1@... [mailto:Ssassafras1@...]Sent: Friday, September 15, 2000 8:43 PMPlagiocephalyegroupsSubject: Re: Plagiocephaly and Microcephaly

Hi Tara,My daughter was is 14 mths. and just got diagnosed with Brachycephaly yesterday. What really concerned them was the size of her head. It had jumped from the 100% to the 120% in just two months. She instantly sent us up to X-ray, to rule out the possibility of Macrocephaly. We have an appt. with another Neuro this Monday. I myself am starting a Research tonight so I can be prepared for the Mon. appt. If I find any information pertaining to your question I will try to e-mail you the links.Good Luck,

[Guest guest]

,

Sierra's head is wide and flat on top. BRACHYCEPHALY - A disproportionate

shortness of the head. And this was the meaning of the word.

I hope that helps. All of Sierra's cranial structure is from the forehead to

the top back of her head, There is a Ridge, and then slopes straight down

into her neck.

[Guest guest]

,

I did it again. Her head is not flat on top. Just flat on the back of the

head. It almost looks like a rounded Triangle turned upside down.

I apologize for the mistake.