Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Thanks, Dale and Karma, for your help. I've converted my account and can now access everything that I need to! Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 , You need to link all your e-mail addresses to your id, which is any e-mail address. You will not be able to access the web site archives unless you have linked your id to your e-mail address. For example, I have several e-mail addresses that I use, but they are all linked to my id of karma3030 my e-mail address is karma3030@..., which is why my id is karma3030. There is a link on the groups main page to link your e-mail address to a id. Hope this helps, ~Karma http://www.karma.awarenesshealth.com http://www.loaves-n-fishes.com Work like you don't need the money. Love like you've never been hurt. Dance like nobody's watching. Sing like nobody's listening. Live like it's Heaven on Earth. > I just switched over from my address to this AOL address. Now it seems > that I can't get to the archives on the web. It keeps asking for my > i.d., but I'm not subscribed under the i.d. anymore. Anyone have any > ideas?? > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 Does anyone know how to search the entire archive of messages? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 JaysonI know others have already answered your question; but, here is my response. You and I and all the rest that have or had HepC, will always test positive. Even the folks that didn't know; but, their body's were able to fight off the dragon at the acute stage.In my case, it was because of an application for Life Insurance, that I even found out that I was a victim of the disease. Turned out that it was a good thing that I already had a policy in place for a very long time. It makes me feel better knowing that my son will not be left with any of my debts or burial costs.Gloria Hello , I am brand new to this group and have a very technical question. As background, I was diagnosed in 1989 and had a biopsy that same year. Diagnosis: Type 1 (they couldn't determine a or b)and stage 3 fibrosis. After two nearly back to back 48 week courses of inteferon and ribaviran, I have been PCR negative for 9 years. I am tested every year and even though the test keeps checking at a lower threshold I am still negative. I was able to upgrade an existing life insurance policy several years back on the strength that my enzymes were perfect and my PCR negativity. Recently I have applied for a new life insurance policy and was honest with them, of course, and they did bloodwork and have not approved or disapproved the insurance yet but sent me the results that are greek to me. Can someone save me a trip to a hepatologist and tell me what these readings mean? HEPATITIS C Ab Positive HEP C Ab (Riba 3.0) Positive BAND INTENSITY: 5-1-1P/C100P BAND 4 C33C BAND 4 C22P BAND 3 NS5 BAND 0 Negative HSOD BAND 0 Negative Jayson J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 Gloria,I'm going to correct your choice of words on this one... we don't test positive for the virus itself, we test positive for the antibodies. Let me put it a different way... If you get a Hep B vaccine, when they test for Hepatitis, you test positive for the antibodies and that is a good thing. It's not the virus. When we get tested if they are testing for antibodies, meaning exposure, we will test positive. We will not however, test positive for the virus itself. The lab aspect of this is kind of tricky. Antibodies are actually a good thing. It's like immunity so to speak. If we were to get re-exposed to Hep C now, our body will have more ammunition to fight it off this time because we now have Hep C Antibodies in our system. Hope I didn't confuse you more but the Hepatitis tests are pretty intricate. I don't want to over simplify it but there is a difference between testing positive for Hep C and testing positive for the Antibodies. Hugs,Teri MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page.From: Gloria <gadamscan@...> Sent: Fri, October 15, 2010 9:26:49 PMSubject: Re: [ ] technical question JaysonI know others have already answered your question; but, here is my response. You and I and all the rest that have or had HepC, will always test positive. Even the folks that didn't know; but, their body's were able to fight off the dragon at the acute stage.In my case, it was because of an application for Life Insurance, that I even found out that I was a victim of the disease. Turned out that it was a good thing that I already had a policy in place for a very long time. It makes me feel better knowing that my son will not be left with any of my debts or burial costs.Gloria Hello , I am brand new to this group and have a very technical question. As background, I was diagnosed in 1989 and had a biopsy that same year. Diagnosis: Type 1 (they couldn't determine a or b)and stage 3 fibrosis. After two nearly back to back 48 week courses of inteferon and ribaviran, I have been PCR negative for 9 years. I am tested every year and even though the test keeps checking at a lower threshold I am still negative. I was able to upgrade an existing life insurance policy several years back on the strength that my enzymes were perfect and my PCR negativity. Recently I have applied for a new life insurance policy and was honest with them, of course, and they did bloodwork and have not approved or disapproved the insurance yet but sent me the results that are greek to me. Can someone save me a trip to a hepatologist and tell me what these readings mean? HEPATITIS C Ab Positive HEP C Ab (Riba 3.0) Positive BAND INTENSITY: 5-1-1P/C100P BAND 4 C33C BAND 4 C22P BAND 3 NS5 BAND 0 Negative HSOD BAND 0 Negative Jayson J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 TeriYes, I knew this!! Perhaps I didn't use the correct wording; but, I definitely knew this. For exactly this reason, I knew that more testing was required to actually find out if I just had the antibodies or had an actual chronic infection.Some time back, a fella came to this site and posted that he tested positive for the virus; but, knew that he did not have a viral load. At that time, a few members stated that they had never heard of this.Gloria Gloria,I'm going to correct your choice of words on this one... we don't test positive for the virus itself, we test positive for the antibodies. Let me put it a different way... If you get a Hep B vaccine, when they test for Hepatitis, you test positive for the antibodies and that is a good thing. It's not the virus. When we get tested if they are testing for antibodies, meaning exposure, we will test positive. We will not however, test positive for the virus itself. The lab aspect of this is kind of tricky. Antibodies are actually a good thing. It's like immunity so to speak. If we were to get re-exposed to Hep C now, our body will have more ammunition to fight it off this time because we now have Hep C Antibodies in our system. Hope I didn't confuse you more but the Hepatitis tests are pretty intricate. I don't want to over simplify it but there is a difference between testing positive for Hep C and testing positive for the Antibodies. Hugs,Teri MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page.From: Gloria <gadamscan@...> Sent: Fri, October 15, 2010 9:26:49 PMSubject: Re: [ ] technical question JaysonI know others have already answered your question; but, here is my response. You and I and all the rest that have or had HepC, will always test positive. Even the folks that didn't know; but, their body's were able to fight off the dragon at the acute stage.In my case, it was because of an application for Life Insurance, that I even found out that I was a victim of the disease. Turned out that it was a good thing that I already had a policy in place for a very long time. It makes me feel better knowing that my son will not be left with any of my debts or burial costs.Gloria Hello , I am brand new to this group and have a very technical question. As background, I was diagnosed in 1989 and had a biopsy that same year. Diagnosis: Type 1 (they couldn't determine a or b)and stage 3 fibrosis. After two nearly back to back 48 week courses of inteferon and ribaviran, I have been PCR negative for 9 years. I am tested every year and even though the test keeps checking at a lower threshold I am still negative. I was able to upgrade an existing life insurance policy several years back on the strength that my enzymes were perfect and my PCR negativity. Recently I have applied for a new life insurance policy and was honest with them, of course, and they did bloodwork and have not approved or disapproved the insurance yet but sent me the results that are greek to me. Can someone save me a trip to a hepatologist and tell me what these readings mean? HEPATITIS C Ab Positive HEP C Ab (Riba 3.0) Positive BAND INTENSITY: 5-1-1P/C100P BAND 4 C33C BAND 4 C22P BAND 3 NS5 BAND 0 Negative HSOD BAND 0 Negative Jayson J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 And actually he didn't test positive for the virus... he tested positive for the antibodies, therefore no viral load. If you test positive for the virus you have a viral load. Clinical lab speak is really touchy. I figured that was what you meant but I knew it could be taken wrong which is why I wrote what I did. Hugs,Teri MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page.From: Gloria <gadamscan@...> Sent: Fri, October 15, 2010 11:53:32 PMSubject: Re: [ ] technical question TeriYes, I knew this!! Perhaps I didn't use the correct wording; but, I definitely knew this. For exactly this reason, I knew that more testing was required to actually find out if I just had the antibodies or had an actual chronic infection.Some time back, a fella came to this site and posted that he tested positive for the virus; but, knew that he did not have a viral load. At that time, a few members stated that they had never heard of this.Gloria Gloria,I'm going to correct your choice of words on this one... we don't test positive for the virus itself, we test positive for the antibodies. Let me put it a different way... If you get a Hep B vaccine, when they test for Hepatitis, you test positive for the antibodies and that is a good thing. It's not the virus. When we get tested if they are testing for antibodies, meaning exposure, we will test positive. We will not however, test positive for the virus itself. The lab aspect of this is kind of tricky. Antibodies are actually a good thing. It's like immunity so to speak. If we were to get re-exposed to Hep C now, our body will have more ammunition to fight it off this time because we now have Hep C Antibodies in our system. Hope I didn't confuse you more but the Hepatitis tests are pretty intricate. I don't want to over simplify it but there is a difference between testing positive for Hep C and testing positive for the Antibodies. Hugs,Teri MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page.From: Gloria <gadamscan@...> Sent: Fri, October 15, 2010 9:26:49 PMSubject: Re: [ ] technical question JaysonI know others have already answered your question; but, here is my response. You and I and all the rest that have or had HepC, will always test positive. Even the folks that didn't know; but, their body's were able to fight off the dragon at the acute stage.In my case, it was because of an application for Life Insurance, that I even found out that I was a victim of the disease. Turned out that it was a good thing that I already had a policy in place for a very long time. It makes me feel better knowing that my son will not be left with any of my debts or burial costs.Gloria Hello , I am brand new to this group and have a very technical question. As background, I was diagnosed in 1989 and had a biopsy that same year. Diagnosis: Type 1 (they couldn't determine a or b)and stage 3 fibrosis. After two nearly back to back 48 week courses of inteferon and ribaviran, I have been PCR negative for 9 years. I am tested every year and even though the test keeps checking at a lower threshold I am still negative. I was able to upgrade an existing life insurance policy several years back on the strength that my enzymes were perfect and my PCR negativity. Recently I have applied for a new life insurance policy and was honest with them, of course, and they did bloodwork and have not approved or disapproved the insurance yet but sent me the results that are greek to me. Can someone save me a trip to a hepatologist and tell me what these readings mean? HEPATITIS C Ab Positive HEP C Ab (Riba 3.0) Positive BAND INTENSITY: 5-1-1P/C100P BAND 4 C33C BAND 4 C22P BAND 3 NS5 BAND 0 Negative HSOD BAND 0 Negative Jayson J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 Thanks to everyone for their help. And here is my official HI to the group. You may not realize this but you collectively save lives and rstore hope. For those still struggling as I did, the dragon can and will be beat. Never give up. > > And actually he didn't test positive for the virus... he tested positive for > the antibodies, therefore no viral load. If you test positive for the virus you > have a viral load. Clinical lab speak is really touchy. I figured that was > what you meant but I knew it could be taken wrong which is why I wrote what I > did. > > Hugs, > Teri > > > MOVE ON. It's just a chapter in the past, but don't close the book. Just turn > the page. > > > > ________________________________ > From: Gloria <gadamscan@...> > > Sent: Fri, October 15, 2010 11:53:32 PM > Subject: Re: [ ] technical question > > > Teri > > Yes, I knew this!! Perhaps I didn't use the correct wording; but, I definitely > knew this. For exactly this reason, I knew that more testing was required to > actually find out if I just had the antibodies or had an actual chronic > infection. > > Some time back, a fella came to this site and posted that he tested positive for > the virus; but, knew that he did not have a viral load. At that time, a few > members stated that they had never heard of this. > > Gloria > > > > > ________________________________ > > > Gloria, > > I'm going to correct your choice of words on this one... we don't test positive > for the virus itself, we test positive for the antibodies. Let me put it a > different way... If you get a Hep B vaccine, when they test for Hepatitis, you > test positive for the antibodies and that is a good thing. It's not the virus. > When we get tested if they are testing for antibodies, meaning exposure, we > will test positive. We will not however, test positive for the virus itself. > The lab aspect of this is kind of tricky. Antibodies are actually a good thing. > It's like immunity so to speak. If we were to get re-exposed to Hep C now, our > body will have more ammunition to fight it off this time because we now have > Hep C Antibodies in our system. > > Hope I didn't confuse you more but the Hepatitis tests are pretty intricate. I > don't want to over simplify it but there is a difference between testing > positive for Hep C and testing positive for the Antibodies. > > Hugs, > Teri > > > MOVE ON. It's just a chapter in the past, but don't close the book. Just turn > the page. > > > > > > > > > ________________________________ > From: Gloria <gadamscan@...> > > Sent: Fri, October 15, 2010 9:26:49 PM > Subject: Re: [ ] technical question > > > Jayson > > I know others have already answered your question; but, here is my response. > You and I and all the rest that have or had HepC, will always test positive. > Even the folks that didn't know; but, their body's were able to fight off the > dragon at the acute stage. > > In my case, it was because of an application for Life Insurance, that I even > found out that I was a victim of the disease. Turned out that it was a good > thing that I already had a policy in place for a very long time. It makes me > feel better knowing that my son will not be left with any of my debts or burial > costs. > > Gloria > > > > > ________________________________ > > > Hello , I am brand new to this group and have a very technical question. > As background, I was diagnosed in 1989 and had a biopsy that same year. > Diagnosis: Type 1 (they couldn't determine a or b)and stage 3 fibrosis. > After two nearly back to back 48 week courses of inteferon and ribaviran, I have > been PCR negative for 9 years. > I am tested every year and even though the test keeps checking at a lower > threshold I am still negative. > I was able to upgrade an existing life insurance policy several years back on > the strength that my enzymes were perfect and my PCR negativity. > Recently I have applied for a new life insurance policy and was honest with > them, of course, and they did bloodwork and have not approved or disapproved the > insurance yet but sent me the results that are greek to me. Can someone save me > a trip to a hepatologist and tell me what these readings mean? > > > HEPATITIS C Ab Positive > HEP C Ab (Riba 3.0) Positive > > BAND INTENSITY: > 5-1-1P/C100P BAND 4 > C33C BAND 4 > C22P BAND 3 > NS5 BAND 0 Negative > HSOD BAND 0 Negative > > Jayson J. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 Jayson,You are more than welcome.. This is what I think I was meant to do. This is one of those Silver Linings for me. I was not the person to pay it forward before I dealt with Hep C. Now, I pay it forward all the time and I love every minute of it. Hep C is a strange creature ain't it?Hugs,Teri MOVE ON. It's just a chapter in the past, but don't close the book. Just turn the page.From: wattruler1 <wattruler1@...> Sent: Sat, October 16, 2010 12:43:03 AMSubject: [ ] Re: technical question Thanks to everyone for their help. And here is my official HI to the group. You may not realize this but you collectively save lives and rstore hope. For those still struggling as I did, the dragon can and will be beat. Never give up. > > And actually he didn't test positive for the virus... he tested positive for > the antibodies, therefore no viral load. If you test positive for the virus you > have a viral load. Clinical lab speak is really touchy. I figured that was > what you meant but I knew it could be taken wrong which is why I wrote what I > did. > > Hugs, > Teri > > > MOVE ON. It's just a chapter in the past, but don't close the book. Just turn > the page. > > > > ________________________________ > From: Gloria <gadamscan@...> > > Sent: Fri, October 15, 2010 11:53:32 PM > Subject: Re: [ ] technical question > > > Teri > > Yes, I knew this!! Perhaps I didn't use the correct wording; but, I definitely > knew this. For exactly this reason, I knew that more testing was required to > actually find out if I just had the antibodies or had an actual chronic > infection. > > Some time back, a fella came to this site and posted that he tested positive for > the virus; but, knew that he did not have a viral load. At that time, a few > members stated that they had never heard of this. > > Gloria > > > > > ________________________________ > > > Gloria, > > I'm going to correct your choice of words on this one... we don't test positive > for the virus itself, we test positive for the antibodies. Let me put it a > different way... If you get a Hep B vaccine, when they test for Hepatitis, you > test positive for the antibodies and that is a good thing. It's not the virus. > When we get tested if they are testing for antibodies, meaning exposure, we > will test positive. We will not however, test positive for the virus itself. > The lab aspect of this is kind of tricky. Antibodies are actually a good thing. > It's like immunity so to speak. If we were to get re-exposed to Hep C now, our > body will have more ammunition to fight it off this time because we now have > Hep C Antibodies in our system. > > Hope I didn't confuse you more but the Hepatitis tests are pretty intricate. I > don't want to over simplify it but there is a difference between testing > positive for Hep C and testing positive for the Antibodies. > > Hugs, > Teri > > > MOVE ON. It's just a chapter in the past, but don't close the book. Just turn > the page. > > > > > > > > > ________________________________ > From: Gloria <gadamscan@...> > > Sent: Fri, October 15, 2010 9:26:49 PM > Subject: Re: [ ] technical question > > > Jayson > > I know others have already answered your question; but, here is my response. > You and I and all the rest that have or had HepC, will always test positive. > Even the folks that didn't know; but, their body's were able to fight off the > dragon at the acute stage. > > In my case, it was because of an application for Life Insurance, that I even > found out that I was a victim of the disease. Turned out that it was a good > thing that I already had a policy in place for a very long time. It makes me > feel better knowing that my son will not be left with any of my debts or burial > costs. > > Gloria > > > > > ________________________________ > > > Hello , I am brand new to this group and have a very technical question. > As background, I was diagnosed in 1989 and had a biopsy that same year. > Diagnosis: Type 1 (they couldn't determine a or b)and stage 3 fibrosis. > After two nearly back to back 48 week courses of inteferon and ribaviran, I have > been PCR negative for 9 years. > I am tested every year and even though the test keeps checking at a lower > threshold I am still negative. > I was able to upgrade an existing life insurance policy several years back on > the strength that my enzymes were perfect and my PCR negativity. > Recently I have applied for a new life insurance policy and was honest with > them, of course, and they did bloodwork and have not approved or disapproved the > insurance yet but sent me the results that are greek to me. Can someone save me > a trip to a hepatologist and tell me what these readings mean? > > > HEPATITIS C Ab Positive > HEP C Ab (Riba 3.0) Positive > > BAND INTENSITY: > 5-1-1P/C100P BAND 4 > C33C BAND 4 > C22P BAND 3 > NS5 BAND 0 Negative > HSOD BAND 0 Negative > > Jayson J. > 48d4e206-8a0b-442a-97fc-7e3b741707fd1.03.01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2010 Report Share Posted October 16, 2010 JaysonThat's exactly why we stay here and try to help others!!! As I see it, I learned to give back what was so freely given to me in AA. Thus, I do not see this chronic illness any different!!The message that we try to give is - don't ever give up!!! Yup, the treatment can be a miserable journey for some; but, at least it offers the hope. Not doing something to fight the dragon, means that it has already won; but, you might live a long time with no quality of life.Nope, fighting is absolutely the only way!!! Thanks to everyone for their help. And here is my official HI to the group. You may not realize this but you collectively save lives and rstore hope. For those still struggling as I did, the dragon can and will be beat. Never give up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Hi all, I asked a similar question a while back but need a little more help. I’m currently receiving all my low dose naltrexone mail from this group in my personal email program. It’s very unmanageable. I’ve finally set up a account to receive it instead. How do I just transfer where I get these emails, from my personal account to my account? I want my account to be solely for these emails, so that’s the only place I view them. I just don’t know how/where on the site to navigate to make the switch, being as I’m already signed up with LDN as a groups member. Can anyone walk me through the process? I need specific instructions, as my mind is currently very foggy (part of my condition). Thank you!! Daria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Daria I too have/had this problem. Unfortunately I cant help you with . What I did was set up a gmail account. Then I set it up in my regular email(earthlink) for automatic transfer of any thing coming from the LDN group to be forwarded to my new gmail. In gmail I set up folders for each of the many forums/groups I get tons of daily mail from and when the mail comes into my earthlink its automatically forwarded to gmail and then automatically goes into the folder it belongs in. I also set it up to be deleted from my earthlink mail after it has been forwarded and filed in my gmail. Its a nightrmare to keep track of it all.Maybe you could change your email address in the LDN group to your new mail account so it goes straight into that. RE: [low dose naltrexone] technical question > > Hi all, > > I asked a similar question a while back but need a little more help. > > I¹m currently receiving all my low dose naltrexone mail from this group in my > personal email program. It¹s very unmanageable. > > I¹ve finally set up a account to receive it instead. > > How do I just transfer where I get these emails, from my personal account to > my account? I want my account to be solely for these emails, so > that¹s the only place I view them. > > I just don¹t know how/where on the site to navigate to make the > switch, being as I¹m already signed up with LDN as a groups member. > > Can anyone walk me through the process? > > I need specific instructions, as my mind is currently very foggy (part of my > condition). > > Thank you!! > Daria > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 At the bottom of every email from the group there is a place where it says “Visit your group on the Webâ€. You can click on that and it will take you to the group’s main page. On that page it has the name of the group near the top on the left side. Just above that it has “Edit Membershipâ€. Click on that and it will take you to a page that has all the information that you signed up with. You can make any changes you want to including your profile, Email Address, Message Delivery and Message Preference. Make the changes then click on the ‘Save Changes’ on the lower right side of the page. You may need to put in a code, but otherwise that is all there is to it. Judy HTo Health Through KnowledgeStarted taking Low Dose Naltrexone on January 20, 2009 for Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOSLDNforFibro/ Re: technical question Posted by: "Daria Alma Fand" daria@... Sat Apr 23, 2011 1:19 pm (PDT) Hi all,I asked a similar question a while back but need a little more help.I¹m currently receiving all my low dose naltrexone mail from this group in mypersonal email program. It¹s very unmanageable.I¹ve finally set up a account to receive it instead.How do I just transfer where I get these emails, from my personal account tomy account? I want my account to be solely for these emails, sothat¹s the only place I view them.I just don¹t know how/where on the site to navigate to make theswitch, being as I¹m already signed up with LDN as a groups member.Can anyone walk me through the process?I need specific instructions, as my mind is currently very foggy (part of mycondition).Thank you!!Daria Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.