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Re: Crystal Aquielle

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Hang in there and stay strong, if it's from a cold then try to ride it out

and it will pass. You don't want to up her meds if it is a cold because

then you run the risk of making her tired or other side effects. I know all

of this is easier said then done but just try to get rest when you can and

give Crystal all your love, like you always do.

The grinding of teeth could of been part of the distress. A dentist told me

that sometimes the kids do that when they cannot convey what they are upset

about.

and Kennedy

>

>Reply-To: polymicrogyria

>To: <polymicrogyria >

>Subject: I think Crystal Aquielle had more seizures last

>night - where else to go, but to the experts ???

>Date: Tue, 20 Nov 2001 17:07:55 -0500

>

>

>Hi, everyone. Im sorry I've been so quiet lately, alot going on in my life.

>Anyway, I think that Crystal woke up last night, around 4am, because of

>seizures. She made this gasping sound, then she started swallowing hard

>over

> & over. Here & there she was also grinding her teeth. Does this sound like

>complex-partial seizures ??? She was very upset, she was having problems

>catching her breath, because of the gasping & swallowing...The major

>episode

>lasted a few minutes, but she kept waking up periodically after that

>because

>of distress. She would gasp, like she couldn't breathe & then she'd settle

>back down to sleep. Under her doctor's orders, we took her to the ER this

>morning. Her blood work came out ok. They think that her threshold was

>lowered, because she has a mild cold.

>Has anything similar to this happened to any of your Angels ???

>

>Needless to say, I'm exhausted & very worried. They told me in the ER, that

>if she exhibits any difficulty in breathing, to bring her right back...Both

>her Pediatrician & Neurologist don't want to play around with her meds,

>just

>yet...

>

>I'd rather be doing something to help her, to avoid this from happening

>again !!!

>

>Lots of love, {{{ HUGS }}} & kisses to everyone & their Angels...

>

> & her little enigma - Crystal Aquielle - almost 4 years old - BPP -

>grade 3...

>

>

>

>

>

>

>

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  • 1 year later...

Dear Chris

I am amazed that Crystal was discharged, rather than keeping her for observation

till Tues. Will be praying for those who do her operation, the staff who provide

her post op care, for Crystal of course, and for you and your family. Please

know that we are with you in spirit.

Hugs and kisses to your precious girl.

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Dear Chris

I am amazed that Crystal was discharged, rather than keeping her for observation

till Tues. Will be praying for those who do her operation, the staff who provide

her post op care, for Crystal of course, and for you and your family. Please

know that we are with you in spirit.

Hugs and kisses to your precious girl.

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Dear Chris

I am amazed that Crystal was discharged, rather than keeping her for observation

till Tues. Will be praying for those who do her operation, the staff who provide

her post op care, for Crystal of course, and for you and your family. Please

know that we are with you in spirit.

Hugs and kisses to your precious girl.

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