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Jordan

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Dear Annette,

I am sorry you are having such a hard time getting a

diagnosis for Jordan. It must be extremely

frustrating, and I'm not surprised you're angry. The

good thing is that, regardless of Jordan's diagnosis,

you've been doing everything you can for him -- taking

care of his medical problems, and getting therapies

for him. Whether he has PMG, lissencephaly, or

another diagnosis, he is getting what he needs. You

are a strong person to fight for him, especially at

the age of 21. I admire you for that. Good luck with

the helmet, and happy first birthday to your little

girl.

Meg and Teddy, almost 3, BPP, g-tube, crawls, signs,

climbs, uses a walker, and cruising a lot more

__________________________________________________

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