Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Regarding the numbness i have been having this problem for a year or so and never said anything untill i was in the hospital and having every major test you can think of. My rheumy and the mayo docs concluded i have Reynards Syndrom iam not for sure if this is how its spelled i really need to find more about but i was told it goes along the the sjrogrens and the RA in alot of people. OUr nerve endings just get used to the pain ie hands,feet,legs and they just start going numb. they told me right now not to worry about it because it was the leastof my problem and worrys right now. love ya all connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Regarding the numbness i have been having this problem for a year or so and never said anything untill i was in the hospital and having every major test you can think of. My rheumy and the mayo docs concluded i have Reynards Syndrom iam not for sure if this is how its spelled i really need to find more about but i was told it goes along the the sjrogrens and the RA in alot of people. OUr nerve endings just get used to the pain ie hands,feet,legs and they just start going numb. they told me right now not to worry about it because it was the leastof my problem and worrys right now. love ya all connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Regarding the numbness i have been having this problem for a year or so and never said anything untill i was in the hospital and having every major test you can think of. My rheumy and the mayo docs concluded i have Reynards Syndrom iam not for sure if this is how its spelled i really need to find more about but i was told it goes along the the sjrogrens and the RA in alot of people. OUr nerve endings just get used to the pain ie hands,feet,legs and they just start going numb. they told me right now not to worry about it because it was the leastof my problem and worrys right now. love ya all connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Connie, I'm so sorry to hear that you have this condition, especially with everything you have been through. Do you still have Stills over and above this condition? Like you need anymore problems. I have been searching the net for info on Reynard's Syndrome for you but I cant find anything on it, I'm thinking it is mispelled but it doesnt matter how I type it in nothing comes up. I will keep trying. Marilyn mhogg69@... harley09534@... wrote: Regarding the numbness i have been having this problem for a year or so and never said anything untill i was in the hospital and having every major test you can think of. My rheumy and the mayo docs concluded i have Reynards Syndrom iam not for sure if this is how its spelled i really need to find more about but i was told it goes along the the sjrogrens and the RA in alot of people. OUr nerve endings just get used to the pain ie hands,feet,legs and they just start going numb. they told me right now not to worry about it because it was the leastof my problem and worrys right now. love ya all connie Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Hi all, I think it is spelled Raynaud's Syndrome. http://www.healthy.net/asp/templates/article.asp?PageType=article & ID=1520 Here is some info from the link: HealthWorld Online Symptoms to look for are: Fingers or toes turning pale white or blue, then red, in response to cold. Tingling or numbness. Pain during the white phase of discoloration. Self-Care Tips If wearing gloves and wool socks and staying indoors where it's warm is a nuisance or doesn't help, try these other warm-up tips: Don't smoke. It impairs circulation. Avoid caffeine. It constricts blood vessels. Avoid handling cold objects. Use ice tongs to pick up ice cubes, for instance. With fingers outstretched, swing your arms in large circles, like a baseball pitcher warming up for a game. This may increase blood flow to the fingers. (Skip this tip if you have bursitis or back problems). Do not wear footwear that is tight-fitting. Wiggle your toes. It may help keep them warm as a result of increased blood flow. Practice a relaxation technique, such as biofeedback > >Reply-To: Stillsdisease >To: Stillsdisease >Subject: Re: numbness.... >Date: Sat, 16 Feb 2002 10:47:43 -0800 (PST) > > > Connie, I'm so sorry to hear that you have this condition, especially >with everything you have been through. Do you still have Stills over and >above this condition? Like you need anymore problems. >I have been searching the net for info on Reynard's Syndrome for you but I >cant find anything on it, I'm thinking it is mispelled but it doesnt matter >how I type it in nothing comes up. I will keep trying. >Marilyn mhogg69@... > harley09534@... wrote: Regarding the numbness i have been having >this problem for a year or so and >never said anything untill i was in the hospital and having every major >test >you can think of. My rheumy and the mayo docs concluded i have Reynards >Syndrom iam not for sure if this is how its spelled i really need to find >more about but i was told it goes along the the sjrogrens and the RA in >alot >of people. OUr nerve endings just get used to the pain ie hands,feet,legs >and >they just start going numb. they told me right now not to worry about it >because it was the leastof my problem and worrys right now. >love ya all >connie > > >Visit the Still's Disease Message Board >http://disc.server.com/Indices/148599.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 marilyn i think its misspelled i will have to get my records out it may be spelled reyaunds. and yes i have the stills disease and everything else is secondary to stills.like i was told by my original rhuemy we dont know enough about this disease and cant tell y9ou what to expect and that was almost 14 years ago and i still dont know what to expect it seemd every couple years something knew comes up. love connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 marilyn i think its misspelled i will have to get my records out it may be spelled reyaunds. and yes i have the stills disease and everything else is secondary to stills.like i was told by my original rhuemy we dont know enough about this disease and cant tell y9ou what to expect and that was almost 14 years ago and i still dont know what to expect it seemd every couple years something knew comes up. love connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 marilyn i think its misspelled i will have to get my records out it may be spelled reyaunds. and yes i have the stills disease and everything else is secondary to stills.like i was told by my original rhuemy we dont know enough about this disease and cant tell y9ou what to expect and that was almost 14 years ago and i still dont know what to expect it seemd every couple years something knew comes up. love connie Quote Link to comment Share on other sites More sharing options...
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