Guest guest Posted September 20, 2002 Report Share Posted September 20, 2002 Good to hear from you and we hope all goes well for Austin's surgery next week. What day is she scheduled? I am guessing Friday, from past experience at RCH. As I have said before, the gtube was the best thing we ever did for Hannah, and we have never regretted it, so I am hoping that your experience will be the same. Let us know how she goes when you have the chance, we'll be thinking of you all. (Hannah's mum, Ringwood, Melbourne) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Dear I wish you for next week al the best in hospital. I hope everyting goes wel for Austin. Take care, Bianca chris rickard wrote: > Hi to the group, > Sorry i don't get many oportunities to post to the > group, but i read most of the mail. Just wanted to > give a quick update on our daughter, Austin. > She's now 11 months old, but her development is > very slow. The only reaction we get from her, is > pain/discomfort, she's very quiet even when crying. > She can't yet roll over nor even hold objects in her > hand. She does have a tendancy to grip things, but it > doesn't seem delibrate. She has PMG, missing corpus > colosum, a dislocation of her genetic make up and > other complications also. > Next week she is due to go to the RCH (Hos) and > have a g-tube inserted, for her feeding. currently she > is 100% nasal-gastric feed. She's been in glg hos. > this week, with chest infections, so we're praying > that that has cleared by next week, or else they won't > do the op. at RCH. It'll be nice to get the tube off > her face, it'll give her cheeks a rest from the tape. > She's a gorgous girl, and is starting to get quite > a few curls in her light colored hair. > > & , parents to Emerson (4.2yrs) and > Austin. Geelong, Australia. > > http://mobile.yahoo.com.au - Yahoo! Messenger for SMS > - Always be connected to your Messenger Friends > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 I am so glad the surgery went well and that Austin was well enough for it. It certainly is strange to see the tube hanging out of the tummy, but you are right about getting used to it. Before you know it you will not think about it at all. Have they talked about a button device to replace the tube in a few months? Hannah had her grommets inserted when her gtube was done too, and its great to hear that Austin is responding to sounds already. Keep us posted about her progress. There is a gtube list if you want extra support about that in particular. To subscribe - send an e-mail to listserv@.... The subject does not matter. In the body of the email put the words subscribe gtube firstname lastname Hope all continues to go well for you all. (Hannah's mum, Ringwood, Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 I am so glad the surgery went well and that Austin was well enough for it. It certainly is strange to see the tube hanging out of the tummy, but you are right about getting used to it. Before you know it you will not think about it at all. Have they talked about a button device to replace the tube in a few months? Hannah had her grommets inserted when her gtube was done too, and its great to hear that Austin is responding to sounds already. Keep us posted about her progress. There is a gtube list if you want extra support about that in particular. To subscribe - send an e-mail to listserv@.... The subject does not matter. In the body of the email put the words subscribe gtube firstname lastname Hope all continues to go well for you all. (Hannah's mum, Ringwood, Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2002 Report Share Posted October 3, 2002 Thanks for you wishes, Karan. had the stonewall (i think thats what there called??) therapist look at it yesterday, and she's very happy too, said it's looks like one of the better ones she's seen done. So we're happy with it. About the button, they've shown us what's available, & we will have one put in as soon as possible (about 8-10 weeks) because the tube is quite awkward to dress her, and when Austin is laying, it's right where she normaly lies her arm. Austin still has problems with her hearing, but the grommets certainly seemed to have helped, every bit counts, i guess. As for the other support group, i won't join yet as i have enough trouble reading and posting to this one. But it's good to know that its there, thanks. I hope Hannah is behaving for you, i don't get to follow her conditions, closely, as i don't have time on the web, but i hope she's getting better now. & (Parents to Austin) Glg, Aust. --- " GAVAN J. CANAVAN " wrote: > I am so glad the surgery went well and that Austin > was well enough for it. It certainly is strange to > see the tube hanging out of the tummy, but you are > right about getting used to it. Before you know it > you will not think about it at all. Have they talked > about a button device to replace the tube in a few > months? > > Hannah had her grommets inserted when her gtube was > done too, and its great to hear that Austin is > responding to sounds already. Keep us posted about > her progress. > > There is a gtube list if you want extra support > about that in particular. > To subscribe - send an e-mail to > listserv@.... The subject does > not matter. > In the body of the email put the words subscribe > gtube firstname lastname > > Hope all continues to go well for you all. > (Hannah's mum, Ringwood, Australia) > > > [Non-text portions of this message have been > removed] > > http://mobile.yahoo.com.au - Yahoo! Messenger for SMS - Always be connected to your Messenger Friends Quote Link to comment Share on other sites More sharing options...
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