Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Hi list mates, I don't normally post, but I think I may have come across some valuable information regarding thyroid testing that I'd like to pass on. I have two daughters, one 13 and one 3 years of age with many autistic symptoms. I've always thought that they had thyroid issues, although they have both been tested for hypothyroidism by endochronologists with normal results. Recently I came across some information about the inaccuracies of the TSH thyroid test that is typically done and was done on my girls. I was sent this information on the better TRH test by another mother with similar issues. I am forwarding this to you with her permission. Our ped endo agreed to do the test on them after giving her this info and last week we had the TRH test done for my 13 year old. The results on the TRH came back ABNORMAL AND NOW SHE IS GOING TO PUT HER ON THYROID MEDICATION! Finally after doing other thyroid tests over many years her hypothyroidism has been properly diagnosed !!! I can't wait to have this done on my 3 year old to see if she too is hypothyroid even though her other tests were normal, but may have been inaccurate as well. My 13 year old has so many issues that I feel may have been helped many years ago. Thyroid issues may be a problem for many of our girls especially. I don't know a tremendous amount yet but am continuing to learn a lot more about the thyroid and how important it can be to our kiddos. I have more thyroid info that I can send that is helpful as well. The TRH info that was sent to me by another mom will follow. Best Wishes, , The TRH test is actually a pituitary test, in doing the TRH it makes the thyroid work, then measures how well it is working. Most Doctor's steer clear of the test because it is a timed test, and they opt to do the quick TSH test. But the TSH only measures the amount of thyroid hormone in the blood stream, which may be within the normal ranges. If the body can not convert the T4 to T3 where it is usable on a cellular level then you are still hypothyroid and go untreated and unrecognized by most doctor's. The following attachment will explain the TRH. I will also send you a copy of a letter I had written several year's ago to Dr. Rhimland as it tell's you all the symptom's my daughter had, and all the symptom's connected to a low thyroid. It took me 7 year's to find a doctor who would run the TRH, then he didn't know how to interpet the result's and tried to tell me it was normal!!! However, I did know how to read the test. The normal TSH range is (0.35 - 5.50) after the injection via a butterfly in the back of the hand, the TSH at 1/2 hour should raise only 10 point's....so should be NO HIGHER then 15.50 (my daughter's was 44.035), at the 1 hour after injection TSH it should be back in the normal range of 0.35-5.50, again my daughter's was 28.35. I alway's get copies of the test because a lot of times doctor's will tell you " it's normal " when it's borderline low, or borderline high. My daughter after we started the thyroid replacement ....she takes 180 mg. of Armour Thyroid which is a T4/T3 combination, the regular endo's just want to prescribe Synthroid and if you can't convert the T4 which Synthroid is....it doesn't benefit you at all. She started with 30 mg. and then kept increasing until we got her body temperature up into a normal range 97.6-98.6. She went from 43 lbs. (which she had been for year's) to 86 lbs., she also grew tremendously in height. She went from being sick ALL the time with ear infection's, sore throat's, upper respiratory infection's, etc. to NEVER being sick in the past 4 year's. She went from totally non-verbal to talking, she sometimes will say a few word's but can when she want's too talk in full sentences. She started absorbing food and her appetite and variety of food increased substantially. She is much more focused, and very social. Hope this is helpful. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Hi list mates, I don't normally post, but I think I may have come across some valuable information regarding thyroid testing that I'd like to pass on. I have two daughters, one 13 and one 3 years of age with many autistic symptoms. I've always thought that they had thyroid issues, although they have both been tested for hypothyroidism by endochronologists with normal results. Recently I came across some information about the inaccuracies of the TSH thyroid test that is typically done and was done on my girls. I was sent this information on the better TRH test by another mother with similar issues. I am forwarding this to you with her permission. Our ped endo agreed to do the test on them after giving her this info and last week we had the TRH test done for my 13 year old. The results on the TRH came back ABNORMAL AND NOW SHE IS GOING TO PUT HER ON THYROID MEDICATION! Finally after doing other thyroid tests over many years her hypothyroidism has been properly diagnosed !!! I can't wait to have this done on my 3 year old to see if she too is hypothyroid even though her other tests were normal, but may have been inaccurate as well. My 13 year old has so many issues that I feel may have been helped many years ago. Thyroid issues may be a problem for many of our girls especially. I don't know a tremendous amount yet but am continuing to learn a lot more about the thyroid and how important it can be to our kiddos. I have more thyroid info that I can send that is helpful as well. The TRH info that was sent to me by another mom will follow. Best Wishes, , The TRH test is actually a pituitary test, in doing the TRH it makes the thyroid work, then measures how well it is working. Most Doctor's steer clear of the test because it is a timed test, and they opt to do the quick TSH test. But the TSH only measures the amount of thyroid hormone in the blood stream, which may be within the normal ranges. If the body can not convert the T4 to T3 where it is usable on a cellular level then you are still hypothyroid and go untreated and unrecognized by most doctor's. The following attachment will explain the TRH. I will also send you a copy of a letter I had written several year's ago to Dr. Rhimland as it tell's you all the symptom's my daughter had, and all the symptom's connected to a low thyroid. It took me 7 year's to find a doctor who would run the TRH, then he didn't know how to interpet the result's and tried to tell me it was normal!!! However, I did know how to read the test. The normal TSH range is (0.35 - 5.50) after the injection via a butterfly in the back of the hand, the TSH at 1/2 hour should raise only 10 point's....so should be NO HIGHER then 15.50 (my daughter's was 44.035), at the 1 hour after injection TSH it should be back in the normal range of 0.35-5.50, again my daughter's was 28.35. I alway's get copies of the test because a lot of times doctor's will tell you " it's normal " when it's borderline low, or borderline high. My daughter after we started the thyroid replacement ....she takes 180 mg. of Armour Thyroid which is a T4/T3 combination, the regular endo's just want to prescribe Synthroid and if you can't convert the T4 which Synthroid is....it doesn't benefit you at all. She started with 30 mg. and then kept increasing until we got her body temperature up into a normal range 97.6-98.6. She went from 43 lbs. (which she had been for year's) to 86 lbs., she also grew tremendously in height. She went from being sick ALL the time with ear infection's, sore throat's, upper respiratory infection's, etc. to NEVER being sick in the past 4 year's. She went from totally non-verbal to talking, she sometimes will say a few word's but can when she want's too talk in full sentences. She started absorbing food and her appetite and variety of food increased substantially. She is much more focused, and very social. Hope this is helpful. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Margaret, Thyroxine only supports the T4. It doesn't help the T3, the important one. The doctors are relying on proper conversion from T4 to T3 by the body itself. This is difficult to do in a selenium deficient country (most of the industrialized countries have poor soil due to over farming) and where the government tells you NOT to take added salt which would have normally provided a decent source of iodine. I was prescribed thyroxine also in Germany which didn't help me or alleviate any symptoms at all. I now have looked at my old lab reports through new specs and see I was NOT converting T4 to T3 efficiently. I was hardly using any salt at the time due to government scares and I didn't know a titch about selenium. Do you know what your free T3 is? If you want to get more info on this subject join the Natural Thyroid Yahoo list. It's been a real eye-opener for me:-)) mcollins2001uk schrieb: > > Actually, I should like to try Armour myself and am currently > prescribed 125mcg thyroxine a day. My thyroid function is tested at > least once a year. I know there is a lot of criticism of these tests, > but they do have some value, nonetheless. > I wanted to post a warning about taking thyroxine or Armour without > having regular tests. My sister had a patient who had a massive stroke > and is very disabled; it was found that this was because his GP had > over-prescribed thyroxine and had failed to monitor him with an annual > blood test. There was a massive payout from the PCT. > Margaret > > PS Sandy, thank you for that link. It is very interesting and I have > wondered about trying to see Dr Skinner myself, in order to convert > from thyroxine to Armour. (BTW I suppose you know Dr Skinner has > restrictions on his registration with the GMC following a fitness to > practice hearing. I read the report on the GMC website - there was no > allegation anyone had suffered permanent harm by his prescribing but 2 > patients were thyrotoxic and he continued to prescribe. Interestingly, > it was not Armour that was being prescribed.) > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG. > Version: 7.5.552 / Virus Database: 270.10.0/1866 - Release Date: 27/12/2008 20:49 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 , I took T3 as well for a year, but it didn't help at all, sadly. Margaret > > Margaret, > > Thyroxine only supports the T4. It doesn't help the T3, the important > one. The doctors are relying on proper conversion from T4 to T3 by the > body itself. This is difficult to do in a selenium deficient country > (most of the industrialized countries have poor soil due to over > farming) and where the government tells you NOT to take added salt > which would have normally provided a decent source of iodine. > > I was prescribed thyroxine also in Germany which didn't help me or > alleviate any symptoms at all. I now have looked at my old lab reports > through new specs and see I was NOT converting T4 to T3 efficiently. I > was hardly using any salt at the time due to government scares and I > didn't know a titch about selenium. > > Do you know what your free T3 is? > > If you want to get more info on this subject join the Natural Thyroid > Yahoo list. It's been a real eye-opener for me:-)) > > > > mcollins2001uk schrieb: > > > > Actually, I should like to try Armour myself and am currently > > prescribed 125mcg thyroxine a day. My thyroid function is tested at > > least once a year. I know there is a lot of criticism of these tests, > > but they do have some value, nonetheless. > > I wanted to post a warning about taking thyroxine or Armour without > > having regular tests. My sister had a patient who had a massive stroke > > and is very disabled; it was found that this was because his GP had > > over-prescribed thyroxine and had failed to monitor him with an annual > > blood test. There was a massive payout from the PCT. > > Margaret > > > > PS Sandy, thank you for that link. It is very interesting and I have > > wondered about trying to see Dr Skinner myself, in order to convert > > from thyroxine to Armour. (BTW I suppose you know Dr Skinner has > > restrictions on his registration with the GMC following a fitness to > > practice hearing. I read the report on the GMC website - there was no > > allegation anyone had suffered permanent harm by his prescribing but 2 > > patients were thyrotoxic and he continued to prescribe. Interestingly, > > it was not Armour that was being prescribed.) > > > > > > ------------------------------------------------------------------ ------ > > > > No virus found in this incoming message. > > Checked by AVG. > > Version: 7.5.552 / Virus Database: 270.10.0/1866 - Release Date: 27/12/2008 20:49 > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.